🔵 New on the Message Boards ~ July 29, 2017

 

A quick summary of some of this week’s activity on the Cushing’s Help message boards.

 

The Guest Questions have returned on a trial basis.  At the moment, new guest questions are not moderated.  Guests may ask for information and (hopefully!) board members will answer.

There is one question so far on How to search the boards?

A New Introduction at Jasmine, Possible Cushie, Stressed Beyond Belief!

More on an insurance issue in Dr F Update

Just for fun, I’ve added other images to Announcements, Questions About How These Boards Work? and Introduce Yourself to help newcomers find their way.

Information about A Phase III Study of Osilodrostat to Treat Cushing’s Disease

A long-time board member reports that she is Cured! No Surgery 🙂

The ups and downs of Blood Pressure

There’s other stuff happening but you’ll just have to read the boards to find out what!

(Please note that I’m sharing these from the Cushings-Help.com message boards. You must be a logged-in member of that board to read them. Log in or register at http://cushings.invisionzone.com )

Please join us!

 

🔵 New on the Message Boards ~ July 22, 2017

 

A quick summary of some of this week’s activity on the Cushing’s Help message boards.

A new member posted Another Hump Pic

More discussion about post-op cortisol and weaning in Nicole, Undiagnosed Bio

Save the Date info for a Conference on Adrenal Insufficiency

Form over fashion may save your life! Yes, You Need a Medical Alert Bracelet!

Our newest Newbie has been cleared for surgery in August!

A new member wonders about A Small Hump Maybe?

The Boards Have Been Upgraded Again.  There are 3 skin choices at the bottom, including the default, if you want to try another look.

You can post directly to Facebook and/or Twitter, if you choose.  People who are not logged into the boards will not be able to see what you post on them.

This new upgrade brought us some icons in the bottom right of each post where you can “rate” the information – but only in a positive way.   They slide out from the little heart-looking image and are fairly self-explanatory.

Screenshot 2017-07-20 00.05.11.png

 

I just added a new icon to the list.  Although it’s small, it’s to welcome new members.

 

There’s other stuff happening but you’ll just have to read the boards to find out what!

(Please note that I’m sharing these from the Cushings-Help.com message boards. You must be a logged-in member of that board to read them. Log in or register at http://cushings.invisionzone.com )

Please join us!

 

🎂 Cushings Help is almost 17!

It’s Nearly Our Birthday!

It’s unbelievable but the idea for Cushing’s Help and Support arrived 17 years ago tonight. I was talking with my dear friend Alice, who ran a wonderful menopause site called Power Surge, wondering why there weren’t many support groups online (OR off!) for Cushing’s and I wondered if I could start one myself and we decided that I could.

Thanks to a now defunct Microsoft program called FrontPage, the first one-page “website” (http://www.cushings-help.com) first went “live” July 21, 2000 and the message boards September 30, 2000.

Stay tuned for the celebration tomorrow!

🔵 New on the Message Boards ~ July 15, 2017

 

A quick summary of some of this week’s activity on the Cushing’s Help message boards.

A new question about the cost vs benefits of growth hormone under the topic Growth Hormone

A newbie who is not yet diagnosed but has Bi lateral adrenal tumors

Information about Webinar: Coping With the Ups and Downs of Pituitary Disorders

A new Image GalleryA Dancer’s 40 lbs Weight Gain in under 2 years + symptoms

The first picture shows me in peak performance shape weighing about 105 lbs standing at 5’4″ contrasted with how I look now at about 147 lbs with swollen legs&arms, puffy red face, fat above the collar bone and on the neck, and lots of weight gain in the butt/thigh area. It really looks like I don’t have a neck anymore.

Following are photos of how my face has steadily changed every few months. Notice how I used to have a very defined heart-shaped face with a pointy chin, and now have a round face with jowls and numerous neck lines/rolls that extend past my collar bone.

The question was asked: Has anyone stayed in a hospital for multiple days of inpatient testing?

A new member from Nottingham, UK was told she had cyclical edema, then PCOS which all turned out to be Cushing’s.

 

There’s other stuff happening but you’ll just have to read the boards to find out what!

(Please note that I’m sharing these from the Cushings-Help.com message boards. You must be a logged-in member of that board to read them. Log in or register at http://cushings.invisionzone.com )

Please join us!

 

🔵 New on the Message Boards

 

A new feature! A weekly (or thereabouts) summary of the Message Board features.

There has been a discussion about a new state regulation that went into effect July 1st, affecting insurance that will not cover anything ordered or prescribed by out-of-state doctors that aren’t enrolled in some quality control database. Find that here.

There have been Gallery and Blog updates as well a newcomer wondering about PCOS vs Cushing’s.

The “Reputation” system is back so you can vote for posts that you especially like – but not your own.  Sorry!

I’ve made one board – What do *YOU* Think – for people to post questions and get answers from other members.

There’s other stuff happening but I just thought of this post today and didn’t keep track.

(Please note that I’m sharing these from the Cushings-Help.com message boards. You must be a logged-in member of that board to read them. Log in or register at http://cushings.invisionzone.com )

🔵 The Boards have been Upgraded!

The upgrade is here, it’s different and I need a new “skin” for this to get rid of all the white.

Some things are still happening behind the scenes.

Here’s info from Invisionboard

Hello,

Your community has been upgraded to version 4, and is back online. The following information was shown during the upgrade:

Pages HTML
HTML in pages, blocks and templates in Pages cannot be converted during the upgrade. While those pages and blocks will continue to work, you will need to review, and adjust as necessary, the HTML following the upgrade to integrate the styling used by the Community Suite 4.0.

Support Staff
Support staff cannot be converted during the upgrade. Please log in and set up support staff as administrators in the admin control panel after the upgrade and then review support department staff settings.

Please take a few minutes to thoroughly review your community for any issues. If any issues are found, please use the Support tool in the ACP for further assistance.

Please check any custom moderator permissions (ACP -> Members -> Moderators) for Pages Database categories. These have been reset to ‘All Categories’.

Please be sure to review the above item(s).

There are a number of Background Tasks running, to rebuild content slowly so as not to cause server resource issues, and which you can check on your ACP -> System page.

Please do not run those tasks manually, as that can cause server overload.

Those tasks are triggered by forum activity (people logged in and browsing the site), and until they finish, some of the layout may not be correct, such as quotes, signatures, lists, images, etc.

Once they have finished, however, if you notice any issues, please open a new ticket detailing the problem.

Message Board Upgrade Coming Soon!

I’m sure that there will be changes which we will figure out together.

The “skin” that we have now won’t be supported by the upgrade but I’m sure I can make it look nice again after the upgrade.

Please be patient during this process, and while we figure out the new features.

Thanks!

Find the message boards here.