❓Can You Help?

Guest Question from the message boards: Low TSH, Low FT4, buffalo hump and many other symptoms

I have been struggling with progressive symptoms of extreme fatigue, muscle weakness, increased anxiety and depression, rage, acne, weight gain, and sweating just doing small tasks over the last 3 to 4 years. I also have a very hard time controlling my body temperature. I get really cold, turn the heat up, get really hot, turn the heat down, over and over throughout the day. (I’m 36 years old) If I’m sitting I’m freezing. If I’m up moving I’m on fire and sweating. Just such dramatic ends of the spectrum. Anyway, for a long time my GP was only checking my TSH. (Hypothyroidism runs strong in my family). My TSH has always been on the low end of normal. I was feeling so awful, I insisted they were missing something and asked them to check my FT4. That has also always ran at the lower end of normal. They treat me with Levothyroxine to try to increase my FT4, but in doing so, cause my TSH to go even lower. I googled what it meant to have a Low TSH with a low FT4 and it said it could be hypothyroidism caused by a pituitary tumor. I then came across Cushing’s which started showing pictures of the classic “buffalo hump” and my jaw hit the floor.

About a month ago, I caught myself in profile in my mirror and was completely taken aback by my appearance. My husband and I aren’t sure how long my neck has looked this way. Either way I was just wondering what others thoughts were. My GP has ordered some kind of cortisol test thus far that I’ll go for tomorrow. I would also like an MRI of my pituitary and possibly adrenals. I’m just tired of sleeping my life away and have been searching for answers for so long. Please let me know what you think of the hump.

Are there other causes for this appearance? Thanks

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❓Guest Question: Cushing’s in 15 year old male

Jess asks on the Message Boards:

Hello, – a little back story. I have a 15 year old son who over the past couple of years has gained 60 pounds and has increasingly become angry, depressed, anxious- to the point where he was having thoughts of suicide. We went to a behavioral health specialist who put him on anti-anxiety meds, but his aggression has become worse and worse. I literally found myself last week saying, never in my life would I think this kid would act so violently towards me or his siblings. He was a good, sensitive kid. His mood can change in the blink of an eye. He also is very withdrawn and anxious to the point where he now does online school. We have contributed all of this to puberty and life experiences, just typical teenage stuff… but last week, when i was able to actaully have him come out of his room… i noticed a “lump” on the top of back, base of the neck. I am not sure if a buffalo hump can be caused by playing video games and sitting in a computer chair for 18 hours a day? Or if this is considered a buffalo hump??

Respond to Jess here: http://cushings.invisionzone.com/topic/54467-cushings-in-15-yo-male

❣️The Message Boards Turn 18 Today!

 

 

Today  is the birthday, or anniversary, of the boards starting September 30, 2000 (The rest of the site started earlier that year on July 21, 2000)

As of today, we have 72,796 members who have made countless posts.

Find the message boards here: http://cushings.invisionzone.com/

 

‼️Another Day, Another Board Upgrade

 

Another message board upgrade happening right now. I’m not sure how long it will take (or what cosmetic changes need to be done afterwards.

If you see any other issues I should be watching for – and maybe correct later – please let me know.

Patience, please!

FWIW – I see we have the Twitter and Facebook share boxes back. Even if you share from the boards, people on these other services will not be able to see anything other than the beginning snippet unless they are board members and they log in.

 

❣️Happy 18th Birthday Cushing’s Help!

It’s unbelievable but the idea for Cushing’s Help and Support arrived 18 years ago late last night. I was talking with my dear friend Alice, who ran a wonderful menopause site called Power Surge, wondering why there weren’t many support groups online (OR off!) for Cushing’s and I wondered if I could start one myself and we decided that I could.

Thanks to a now-defunct Microsoft program called FrontPage, the first one-page “website” (http://www.cushings-help.com) first went “live” July 21, 2000 and the message boards September 30, 2000.

All our Cushing’s-related sites:

 

❣️We’re almost 18!

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It’s unbelievable but the idea for Cushing’s Help and Support arrived 18 years ago tonight.  That’s a long time for anything online.

I was talking with my dear friend Alice, who ran a wonderful menopause site called Power Surge, wondering why there weren’t many support groups online (OR off!) for Cushing’s and I wondered if I could start one myself and we decided that I could.

The first website (http://www.cushings-help.com) first went “live” July 21, 2000 and the message boards September 30, 2000. Hopefully, with these sites, I’m making some helpful differences in someone else’s life!

The message boards are very active and we have weekly online text chats, occasional live interviews, local meetings, email newsletters, a clothing exchange, a Cushing’s Awareness Day Forum, podcasts, phone support and much more.

Whenever one of the members of the boards gets into NIH, I try to go to visit them there. Other board members participate in the “Cushie Helper” program where they support others with one-on-one support, doctor/hospital visits, transportation issues and more.

Of course, we now have a Facebook page and 2 groups.  Both are secret, so if you want to join, please email or PM me for an invitation.

Other sites in the Cushing’s Help “Family”

 

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