A twilight zone moment – I just started rereading this book again last night and this post from November 10, 2008 appeared on Facebook:
“The Shattered Oak: Overcoming Domestic Abuse and a Misdiagnosis of Mental Illness,” by Sherry Genga and published by Safe Goods Publishing in Sheffield, is based on a true story. It is a story of open and honest reflections of personal experience with domestic abuse, the profound realities of recovery and a startling, and ultimately triumphant, resolution.
The story ends well through the interventions of a therapist, a very sharp nurse and the National Institute of Health (NIH). Or. as the story’s hero describes it, “a little slice of heaven carved out just for me.” This is a story of straight-forward disclosure in the first-person narrative that informs, inspires and provides one person’s path through the wilderness of family dysfunction, abusive hardships in the extreme and extraordinary insights.
Narrator Barbara’s “whole life changed” when she married the charming, intelligent and talented man named Innocent. Barbara could not have predicted how horrendously violent and abusive Innocent would become, in spite of how he provided so well for her and her three daughters and created a lovely, upscale home for them. Barbara is “drawn to putting (her) thoughts down on paper.” Her journal entries are a solace and a method of keeping track of reality. With her husband’s lies and her discovery of shocking secrets of his past life, Barbara recalls her past in order to fathom how she finds herself in a relationship with a man who brutally beats her regularly. The fact is, she remembers a childhood without love, extreme poverty and want, and with these revelations, a deeper understanding of herself. She is also well aware that her husband, too, suffered torment and abuse himself while growing up in an alcoholic family.
In spite of the kindness of a therapist and a courageous divorce in which she attains freedom from abuse for herself and her daughters, Barbara cannot shake a profound depression that leads to three suicide attempts. Deeply religious and spiritual, Barbara prays for enlightenment, or at the very least, a release from mental torment. But when she is committed to a mental hospital, she experiences a jolting loss of personal freedom and brutal treatment. It seems that she has gone from a life of torment to a life of torment in a new kind of hell. But through the attentive and kind professionalism of a nurse named Nancy, who notices markings on her body that seem to indicate Barbara has an undiagnosed medical condition, just recently discussed in medical journals, Barbara is released on medical advice to an NIH hospital in Bethesda, Md. It is at that point that her story mercifully changes for the better in her climb to effective treatments for Cushing’s disease, pituitary cancer and a chance to recover her life.
Barbara’s treatments at that time were part of a ground-breaking clinical study. The effects of high degrees of stress are just now being understood when it comes to trauma and abuse. New insights into Post-Traumatic Stress Syndrome and Cushing’s disease are important medical aspects of domestic abuse situations. This book is a good resource for those in need of help and it tells of how one heroic soul faced down extremes of abuse and trauma with love and determination to recover her life.
In her post script, the author writes, “Some stories are meant to be a secret and some stories are meant to be forgotten. Some stories need to be heard to help the survivor live. There is help for women battling domestic violence, child abuse, suicide and Cushing’s disease.” There are links and resources for that kind of help at the end of the book.
Colin Harrington is the events manager at The Bookstore & Get Lit Wine Bar in Lenox. He welcomes readers’ comments at firstname.lastname@example.org.
This question was originally posted on Facebook.
I responded with a quote from this book: Harvey Cushing: A Life in Surgery
“Dr. Harvey Cushing, who is the one responsible for discovering our disease, found some of his patients in circuses.”
Other responses so far:
OP: Thank you for sharing this Mary Kelly O’Connor… as sad as this is… that our past cushing’s friends were on display as freaks in circuses, i am happy he was able to find them and help them and further his research.
Mary Kelly O’Connor: I remembered from reading this book many years ago.
For a long time, I was “mad” at circuses until I realized that they were the only people offering jobs to Cushies and others who should have had a better chance at life.
I know the circuses were exploiting the “freaks” but at least they could find a place in society.
I am so thankful to Dr. Cushing and the work he did…for all of us. I hate the disease but I am so glad that I’m alive after it was discovered and I didn’t have to run away to join a circus, too.
OP: Mary Kelly O’Connor i also am thankful to dr harvey cushing… even though i did read he was sorta an asshole arrogant jerk. Lol. I guess when you are the father of neuroscience you are entitled though…
Mary Kelly O’Connor: My first “real” endo, the one who diagnosed me was that description. But he got me into NIH for surgery and I’m thankful to him, too. (But I never went back after I found another endo. LOL)
Diagnosed with a rare disease that only affects between two and ten people per million, Marie Conley used emails to communicate with family, friends, and co-workers to keep them apprised of the diagnosis and prognosis of Cushing’s disease and the many complications she experienced on this journey. Her ironic humor and raw, emotional approach helps bring hope to those touched by this rare and unrelenting disease.
In her mid-thirties, Conley, who strived to keep herself healthy while maintaining the delicate balance of raising a young child, keeping a home, and a demanding career, began to experience a variety of unexplained maladies inconsistent with her life style.Because of the elusive nature of Cushing’s disease, the treatment is a long and complicated process of trial and error.
At this time, there is no cure, largely due to the fact that Cushing’s disease is considered an “orphan disease.” As is her nature, she has decided to “adopt” this “orphan” and is doing everything she can to bring awareness to this disease.Conley’s tenacious spirit and determination would not allow this insidious disease to triumph over her life. Armed with her laptop as the only weapon available in the sterility of the recovery room, the author attacks the keyboard with a vengeance to let friends and family know that in this battle, there is no surrender.