It’s unbelievable but the idea for Cushing’s Help and Support arrived 21 years ago late last night. I was talking with my dear friend Alice, who ran a wonderful menopause site called Power Surge, wondering why there weren’t many support groups online (OR off!) for Cushing’s and I wondered if I could start one myself and we decided that I could.

Thanks to a now-defunct Microsoft program called FrontPage, the first one-page “website” (http://www.cushings-help.com) first went “live” July 21, 2000 and the message boards September 30, 2000.

All our Cushing’s-related sites:

• Addison’s Help
• Addison’s Help (Blog)
• Adrenal Crisis (Facebook)
• Adrenal Insufficiency Virginia (Facebook)
• Cushing’s and Addison’s Documents
• Cushing’s Help Message Boards
• Cushie Blogger, mostly used for Cushing’s Awareness Posts and meeting information
• Cushie Bloggers (Blog)
• CushieWiki
• Cushing’s and Addison’s Documents
• Cushing’s and Cancer (Blog)
• Cushing’s Bios
• Cushing’s Help
• Cushing’s Help and Support
• Cushing’s Help Live Interviews
• Cushing’s Help Message Boards
• Cushing’s Help Organization
• Cushing’s Help Podcasts
• Cushing’s News Feed
• Cushing’s Support
• MaryO Cushing’s Bio
• Twitter Cushings Help Organization, Inc

It’s unbelievable but the idea for Cushing’s Help and Support arrived 20 years ago tonight.  That’s a long time for anything online.

I was talking with my dear friend Alice, who ran a wonderful menopause site called Power Surge, wondering why there weren’t many support groups online (OR off!) for Cushing’s and I wondered if I could start one myself and we decided that I could.

The first website (http://www.cushings-help.com) first went “live” July 21, 2000 and the message boards September 30, 2000. Hopefully, with these sites, I’m making some helpful differences in someone else’s life!

The message boards are still active and we have a Cushing’s Awareness Day Forum, podcasts, phone support and much more.

Whenever one of the members of the boards gets into NIH, I try to go to visit them there. Other board members participate in the “Cushie Helper” program where they support others with one-on-one support, doctor/hospital visits, transportation issues and more.

Of course, we now have a Facebook page and 2 groups.  Both are secret, so if you want to join, please email or PM me for an invitation.

Other sites in the Cushing’s Help “Family”

It’s unbelievable but the idea for Cushing’s Help and Support arrived 19 years ago late last night. I was talking with my dear friend Alice, who ran a wonderful menopause site called Power Surge, wondering why there weren’t many support groups online (OR off!) for Cushing’s and I wondered if I could start one myself and we decided that I could.

Thanks to a now-defunct Microsoft program called FrontPage, the first one-page “website” (http://www.cushings-help.com) first went “live” July 21, 2000 and the message boards September 30, 2000.

All our Cushing’s-related sites:

• Addison’s Help
• Addison’s Help (Blog)
• Addison’s knol
• Adrenal Crisis (Facebook)
• Adrenal Insufficiency Virginia (Facebook)
• Cushing’s and Addison’s Documents
• Cushing’s Help Message Boards
• Cushie Blogger, mostly used for Cushing’s Awareness Posts and meeting information
• Cushie Bloggers (Blog)
• CushieWiki
• Cushing’s and Addison’s Documents
• Cushing’s and Cancer (Blog)
• Cushing’s Bios
• Cushing’s Help
• Cushing’s Help and Support
• Cushing’s Help Live Interviews
• Cushing’s Help Message Boards
• Cushing’s Help Organization
• Cushing’s Help Podcasts
• Cushing’s News Feed
• Cushing’s Support
• MaryO Cushing’s Bio
• Twitter Cushings Help Organization, Inc

It’s unbelievable but the idea for Cushing’s Help and Support arrived 19 years ago tonight.  That’s a long time for anything online.

I was talking with my dear friend Alice, who ran a wonderful menopause site called Power Surge, wondering why there weren’t many support groups online (OR off!) for Cushing’s and I wondered if I could start one myself and we decided that I could.

The first website (http://www.cushings-help.com) first went “live” July 21, 2000 and the message boards September 30, 2000. Hopefully, with these sites, I’m making some helpful differences in someone else’s life!

The message boards are still active and we have a Cushing’s Awareness Day Forum, podcasts, phone support and much more.

Whenever one of the members of the boards gets into NIH, I try to go to visit them there. Other board members participate in the “Cushie Helper” program where they support others with one-on-one support, doctor/hospital visits, transportation issues and more.

Of course, we now have a Facebook page and 2 groups.  Both are secret, so if you want to join, please email or PM me for an invitation.

Other sites in the Cushing’s Help “Family”

It’s unbelievable but the idea for Cushing’s Help and Support arrived 18 years ago late last night. I was talking with my dear friend Alice, who ran a wonderful menopause site called Power Surge, wondering why there weren’t many support groups online (OR off!) for Cushing’s and I wondered if I could start one myself and we decided that I could.

Thanks to a now-defunct Microsoft program called FrontPage, the first one-page “website” (http://www.cushings-help.com) first went “live” July 21, 2000 and the message boards September 30, 2000.

All our Cushing’s-related sites:

• Addison’s Help
• Addison’s Help (Blog)
• Addison’s knol
• Adrenal Crisis (Facebook)
• Adrenal Insufficiency Virginia (Facebook)
• Cushing’s and Addison’s Documents
• Cushing’s Help Message Boards
• Cushie Blogger, mostly used for Cushing’s Awareness Posts and meeting information
• Cushie Bloggers (Blog)
• Cushie Info
• CushieWiki
• Cushing’s and Addison’s Documents
• Cushing’s and Cancer (Blog)
• Cushing’s Bios
• Cushing’s Help
• Cushing’s Help and Support
• Cushing’s Help Live Interviews
• Cushing’s Help Message Boards
• Cushing’s Help Organization
• Cushing’s Help Podcasts
• Cushing’s News Feed
• Cushing’s Support
• MaryO Cushing’s Bio
• Twitter Cushings Help Organization, Inc