👥 Memorial Sloan Kettering 2020 Update on the Treatment of Pituitary Tumors

 

This event has been postponed to Dec. 5, 2020

You are Cordially Invited!

The PNA is pleased to announce our participation in this event!

Saturday, December 5, 2020
8:30am – 4:30pm
Zuckerman Research Center
417 E. 68th St. New York, NY
Memorial Sloan Kettering Cancer Center

Target Audience

This course is intended for endocrinologists, neurosurgeons, otolaryngologists, radiation oncologists, neurologists, ophthalmologists, neuro-oncologists, family medicine and internal medicine physicians, physicians in training and other allied health professionals who treat and manage patients with pituitary diseases. We also invite patients with pituitary disease and their caregivers to attend this educational activity and participate in our interactive afternoon breakout sessions. 

Overall this course aims to improve patient care and outcomes through evidence-based discussion of clinical practice guidelines and emerging therapies. Our goal is to assess and update current practices to promote earlier diagnosis and treatment of pituitary diseases. The multidisciplinary nature of the course will allow for the dissemination of knowledge across the variety of practitioners caring for pituitary patients, and for the patients themselves.

Pituitary patients will be able to review treatment options, learn about ongoing clinical trials, and discuss their comprehensive care with providers and other patients. The educational objective of this patient session is to provide a forum for pituitary patients to discuss treatment options and new therapies with providers and other patients.

Patients with pituitary disease and their caregivers are invited to attend this educational activity FREE of charge. If you are a patient or caregiver interested in attending, please email cme@mskcc.org to register (registration is required in order to attend).

Medical Professionals who wish to attend must register online:
mskcc.org/PituitaryCourse

pdfView Course Flyer

📞 / 👥 2020 Barrow Pituitary Center Patient Education Day October 24, 2020

 

The Barrow Pituitary Center is dedicated to educating patients, caregivers, and loved ones by providing information which is current and non-biased. Experts at this conference will address management of the emotional and physical elements of living with pituitary disorders. We hope attendees will leave empowered to make better-informed decisions about their healthcare and achieve their goals for a long and fruitful life.

In Person and Online Registration Options

This conference will be offered in person and through live online format with Zoom. We reserve the right to transition to a solely live online format as a result of health concerns as we move into the fall. Participants will be notified if this change develops.

Register here

🦓 Day 10, Cushing’s Awareness Challenge 2020

 

This is one of the suggestions from the Cushing’s Awareness Challenge post:

What have you learned about the medical community since you have become sick?

This one is so easy. I’ve said it a thousand times – you know your own body better than any doctor will. Most doctors have never seen a Cushing’s patient, few ever will in the future.

If you believe you have Cushing’s (or any other rare disease), learn what you can about it, connect with other patients, make a timeline of symptoms and photographs. Read, take notes, save all your doctors’ notes, keep your lab findings, get second/third/ten or more opinions.  Make a calendar showing which days you had what symptoms.  Google calendars are great for this.

This is your life, your one and only shot (no pun intended!) at it. Make it the best and healthiest that you can.

When my friend and fellow e-patient Dave deBronkart learned he had a rare and terminal kidney cancer, he turned to a group of fellow patients online and found a medical treatment that even his own doctors didn’t know. It saved his life.

In this video, he calls on all patients to talk with one another, know their own health data, and make health care better one e-Patient at a time.

7a4e4-maryoonerose

👥 Ohio State Pituitary Patient Symposium 2019

Ohio State Pituitary Patient Symposium 2019

 

 

**REGISTER NOW!**

Saturday, Sept 14, 2019

7:30am – 4:00pm

Please join the Pituitary Network Association and The Ohio State University for a Pituitary Patient Symposium featuring a series of pituitary and hormonal patient education sessions presented by some of the top physicians of pituitary and hormonal medicine. The symposium faculty will share the most up-to-date information and be available to answer your most pressing questions.

Keynote Speaker: Maria Fleseriu, MD FACE

**We are offering a limited number of registration only scholarships. Register today to claim your scholarship!**

Please email carol@pituitary.org to register!

*This registration is for the Patient Symposium only. The Ohio State University is offering a CME Course separate from our Symposium. For information on the CME course go to ccme.osu.edu
OSU Pituitary Symposium Agenda
Saturday, Sept. 14, 2019
Patient and Family Track
Gabbe Conference Room – James L045

 

7:30 AM Registration and Breakfast
8:00 AM Welcoming Remarks and Introductions: The OSU Skull Base and Pituitary Team
8:05 AM Trans-sphenoidal Approach: What to Expect? Post-Operative Complications
Richard Carrau, MD Professor Department of Otolaryngology OSUCCC – James
8:30 AM Radiation Therapy? Difference Between Modalities and Possible Risks
Dukagjin M Blakaj, MD, PhD
OSUCCC – James
9:00 AM What Are The Challenges Our Patients Face, and How Can We Help?
Kami Perdue, PA-C
OSUCCC – James
9:30 AM Round Table Q & A
9:45 AM Mid-Morning Break and Visit Vendors
10:00 AM Acromegaly: Why it Takes That Long to Diagnose? What are the Options?
Lawrence Kirschner, MD, PhD  Professor Division of Endocrinology, Diabetes, and Metabolism
OSUCCC – James
10:30 AM Growth Hormone Deficiency: Beyond Growth
Rohan Henry, MD Pediatric Endocrinologist
Nationwide Children’s Hospital
11:00 AM Hypopituitarism: Pitfalls and Recommendations
Maria Fleseriu, MD, FACE
Oregon Health and Science University – Keynote Speaker
11:30 AM Round Table Q & A
11:45 AM Lunch Break and Patient’s Journey
12:45 PM Pituitary Trivia
Luma Ghalib, MD Assistant Professor – Clinical Division of Endocrinology, Diabetes, and Metabolism
OSUCCC – James
Brian Lee, RN OSUCCC – James
1:15 PM Surgical Approach: What to Expect
Daniel Prevedello, MD Professor and Chair, Department of Neurological Surgery
OSUCCC – James
1:45 PM Visual Complications of Pituitary/Sellar Lesion? Predictors of Outcome
Abbe Craven, MD Assistant Professor – Clinical Department of Ophthalmology
OSUCCC – James
2:15 PM Round Table Q & A
2:30 PM Mid-Afternoon Break and Visit Vendors
2:45 PM Recovering from Trans-sphenoidal Surgery, Challenges for the Patient and their Families
Traci Douglass, RN
OSUCCC – James
3:15 PM Pituitary Network Association: Cushing’s Disease: Psychological Research and Clinical Implications
Jessica Diller Kovler, AM, MA, PhD
PNA Board Member
3:45 PM Closing Remarks
4: 00 PM Adjourn

🎤Archived Interview Donna Sellers, Mother of a Cushing’s patient

 

Donna Sellers, President, John’s Foundation for Cushing’s Awareness, mother of a Cushing’s patient.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/06/19/interview-with-donna-sellers-mother-of-a-cushings-patient

HOME | Sitemap | Abbreviations | Adrenal Crisis! | Glossary | Forums | Bios | Add Your Bio | Add Your Doctor | MemberMap | CushieWiki

🎤 Archived Interview: Dr. Dori Middleman, Pituitary Cushing’s Survivor

 

Dr. Dori Middleman is a Psychophamacologist, Certified Gestalt Psychotherapist and Cushing’s Patient.

She has had both pituitary surgery and two gamma knife radiosurgeries.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/06/12/dr-dori-middleman-pituitary-cushings-survivor

HOME | Sitemap | Abbreviations | Adrenal Crisis! | Glossary | Forums | Bios | Add Your Bio | Add Your Doctor | MemberMap | CushieWiki

🦓 Day 3: Cushing’s Awareness Challenge 2019

 

This is one of the suggestions from the Cushing’s Awareness Challenge post:

What have you learned about the medical community since you have become sick?

This one is so easy. I’ve said it a thousand times – you know your own body better than any doctor will. Most doctors have never seen a Cushing’s patient, few ever will in the future.

If you believe you have Cushing’s (or any other rare disease), learn what you can about it, connect with other patients, make a timeline of symptoms and photographs. Read, take notes, save all your doctors notes, keep your lab findings, get second/third/ten or more opinions.  Make a calendar showing which days you had what symptoms.  Google calendars are great for this.

This is your life, your one and only shot (no pun intended!) at it. Make it the best and healthiest that you can.

When my friend and fellow e-patient Dave deBronkart learned he had a rare and terminal kidney cancer, he turned to a group of fellow patients online and found a medical treatment that even his own doctors didn’t know. It saved his life.

In this video he calls on all patients to talk with one another, know their own health data, and make health care better one e-Patient at a time.

7a4e4-maryoonerose

🎤 Archived Interview with Donna Sellers, Mother of a Cushing’s patient

 

Donna Sellers, President, John’s Foundation for Cushing’s Awareness, mother of a Cushing’s patient.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/06/19/interview-with-donna-sellers-mother-of-a-cushings-patient

HOME | Sitemap | Adrenal Crisis! | Abbreviations | Glossary | Forums | Donate | Bios | Add Your Bio | Add Your Doctor | MemberMap | CushieWiki

🎤 Archived Interview with Dr. Dori Middleman, Pituitary Cushing’s Survivor

 

Dr. Dori Middleman is a Psychophamacologist, Certified Gestalt Psychotherapist and Cushing’s Patient.

She has had both pituitary surgery and two gamma knife radiosurgeries.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/06/12/dr-dori-middleman-pituitary-cushings-survivor

HOME | Sitemap | Adrenal Crisis! | Abbreviations | Glossary | Forums | Donate | Bios | Add Your Bio | Add Your Doctor | MemberMap | CushieWiki

🦓 Day 3: Cushing’s Awareness Challenge 2018

 

This is one of the suggestions from the Cushing’s Awareness Challenge post:

What have you learned about the medical community since you have become sick?

This one is so easy. I’ve said it a thousand times – you know your own body better than any doctor will. Most doctors have never seen a Cushing’s patient, few ever will in the future.

If you believe you have Cushing’s (or any other rare disease), learn what you can about it, connect with other patients, make a timeline of symptoms and photographs. Read, take notes, save all your doctors notes, keep your lab findings, get second/third/ten or more opinions.  Make a calendar showing which days you had what symptoms.  Google calendars are great for this.

This is your life, your one and only shot (no pun intended!) at it. Make it the best and healthiest that you can.

When my friend and fellow e-patient Dave deBronkart learned he had a rare and terminal kidney cancer, he turned to a group of fellow patients online and found a medical treatment that even his own doctors didn’t know. It saved his life.

In this video he calls on all patients to talk with one another, know their own health data, and make health care better one e-Patient at a time.

7a4e4-maryoonerose