‼️ Message Board Upgrade Today

Good news! Version 4.4.0 of Invision Community is now available.

Major New Features / Enhancements

  • Post Before Registering
  • Animated GIFs
  • AdminCP Notification Center
  • New Email Features:
    • Email Statistics
    • Email Advertisements
    • Unfollow Without Logging In
  • SEO Improvements:
    • Improved pagination with page number now in path (rather than query string) and unique page titles for paginated pages.
    • Improved use of canonical tags.
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    • Improved JSON-LD markup, adding @id tags and fixing URLs for comments.
    • Removed page output hidden by JavaScript.
  • Performance Improvements:
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    • Other minor performance improvements to reduce database queries and fix unnecessary code execution.
  • Commerce Store Filters allow customers to filter products by price, review, stock, or custom admin-defined filters.

Core

  • Added setting to display user group formatting in more areas (see 6 New Micro Features).
  • Added less intrusive browser notification prompt in Notifications menu (see 6 New Micro Features).
  • Added ability to show sidebar blocks to only certain types of devices (see 6 New Micro Features).
  • Added ability for club owners to reorder the navigation tabs (see 6 New Micro Features).
  • Added ability for announcements to be linked to an URL or be a title only (see 6 New Micro Features), improved consistency in how announcements are shown in different areas.
  • Improved UI for entering time intervals in AdminCP settings (see 6 New Micro Features).
  • Added a new Icons & Logos section in the AdminCP which allows providing logos for use when sharing links from the community, adding the community as a home screen app on a mobile device (along with additional settings for a PWA manifest to control certain aspects the community’s behaviour when used in this way), and in Safari’s favourites menus and pinned tabs on macOS.
  • Added a new UI for attachments, showing a box with some information about the file, rather than a plain line (see Turbo charging loading speeds).

Removed Features

  • Removed EmojiOne-style emojis due to licensing issues.
  • Removed Gravatar support due to privacy concerns and performance issues.
  • Removed password hashes when downloading a member list from the AdminCP. This is for security, to reduce the ease of obtaining sensitive data if the AdminCP is ever compromised.
  • Removed the name of the content (e.g. topic) from the “Next Unread” link which could consume significant server resources on large communities.

❓Can You Help?

Guest Question from the message boards: Low TSH, Low FT4, buffalo hump and many other symptoms

I have been struggling with progressive symptoms of extreme fatigue, muscle weakness, increased anxiety and depression, rage, acne, weight gain, and sweating just doing small tasks over the last 3 to 4 years. I also have a very hard time controlling my body temperature. I get really cold, turn the heat up, get really hot, turn the heat down, over and over throughout the day. (I’m 36 years old) If I’m sitting I’m freezing. If I’m up moving I’m on fire and sweating. Just such dramatic ends of the spectrum. Anyway, for a long time my GP was only checking my TSH. (Hypothyroidism runs strong in my family). My TSH has always been on the low end of normal. I was feeling so awful, I insisted they were missing something and asked them to check my FT4. That has also always ran at the lower end of normal. They treat me with Levothyroxine to try to increase my FT4, but in doing so, cause my TSH to go even lower. I googled what it meant to have a Low TSH with a low FT4 and it said it could be hypothyroidism caused by a pituitary tumor. I then came across Cushing’s which started showing pictures of the classic “buffalo hump” and my jaw hit the floor.

About a month ago, I caught myself in profile in my mirror and was completely taken aback by my appearance. My husband and I aren’t sure how long my neck has looked this way. Either way I was just wondering what others thoughts were. My GP has ordered some kind of cortisol test thus far that I’ll go for tomorrow. I would also like an MRI of my pituitary and possibly adrenals. I’m just tired of sleeping my life away and have been searching for answers for so long. Please let me know what you think of the hump.

Are there other causes for this appearance? Thanks

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📞 Webinar: New and Traditional Treatments for Male Hypogonadism

Dr. Theodore Friedman will be joined by Shira Miller, MD hosting a webinar on New and Traditional Treatments for Male Hypogonadism

Spouses welcome

Topics to be discussed include:

  • How to Diagnose Male Hypogonadism?
  • Testosterone Replacement
  • HCG and Clomid Treatment
  • Supplements for Male Hypogonadism
  • Diets for Male Hypogonadism

Sunday • February 10, 2019 • 6 PM PST

Click here to join the meeting or
https://axisconciergemeetings.webex.com/axisconciergemeetings/j.php?MTID=m4969cba4e8f0960a9053f2d03a5e56db
OR
Join by phone: (855) 797-9485
Slides will be available before the webinar at slides

Meeting Number (Access Code): 800 925 805, Your phone/computer will be muted on entry. There will be plenty of time for questions using the chat button. Meeting Password: hormones
For more information, email us at mail@goodhormonehealth.com

💉 Helpful Doctors: New York

 

Michele M (Michele), added her Helpful Doctor, Toni Murphy, to the Cushing’s MemberMap

How would you rate your Helpful Doctor? 5/5
Your Doctor’s Name Toni Murphy
Your Doctor’s Address Street Address: Harlem Road
City: West Seneca
State / Province: NY
Postal / Zip Code: 14224
What are your Doctor’s Specialties? Endocrinologist
What are your Doctor’s Hospital Affiliations? Mercy Hospital

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👥Update on the Treatment of Pituitary Diseases: Emerging Therapies

Friday April 12, 2019
8:30am – 4:30pm
Zuckerman Research Center
417 E. 68th St. New York, NY
Memorial Sloan Kettering Cancer Center

This course is suited for medical professionals, patients, and caregivers to improve patient care and outcomes through evidence-based discussion of clinical practice guidelines and emerging therapies in order to assess and update current practices to promote earlier diagnosis and treatment of pituitary diseases. The multidisciplinary nature of the course will allow the dissemination of knowledge across the variety of practitioners caring for pituitary patients, as well as for patients and caregivers.

After completion of this educational activity, participants will be up-to-date on the latest in ongoing care and clinical management of patients with pituitary conditions. The patient breakout sessions will provide pituitary patients the ability to review treatment options, learn about ongoing clinical trials, and discuss their comprehensive care with providers and other patients.

Memorial Sloan Kettering Cancer Center is providing this course to pituitary patients and caregivers free of charge. To register to attend, please email cme@mskcc.org . (Please note: Registration is required in order to attend.)

Medical Professionals who wish to attend must register online: mskcc.org/PituitaryCourse .

pdfView Course Flyer

👥13th Annual Conference for Adults with Endocrine Disorder

 

13th Annual Conference for Adults with Endocrine Disorders
in Partnership with Barrow Neurological Institute Pituitary Center

February 28th, 2019 – March 3rd, 2019

Phoenix, Arizona

Schedule of Events
Thursday
5:00 pm – 7:00 pm Welcome Reception, Wyndham Garden Phoenix Midtown

Friday
9:00 am – 4:00 pm Exhibitors, Barrow Pituitary Center
10:00 am – 12:00 pm Educational Segments, Barrow Pituitary Center
12:00 am – 1:00 pm Lunch (included)
1:00 pm – 3:00 pm Educational Segments, Barrow Pituitary Center
5:00 pm – 8:00 pm Group outing to Scottsdale Waterfront
Saturday
10:00 am – 12:00 pm Educational Segments, Barrow Pituitary Center
12:00 am – 1:00 pm Lunch (included)
1:00 pm – 3:30 pm Educational Segments, Barrow Pituitary Center
Sunday
9:00 am – 1:30 pm Educational Segments, Wyndham Garden Phoenix Midtown

**********************************************************
Friday Educational Segments at Barrow Pituitary Center

10:00 am Managing Cushings: Navigating Through the Maze, Yuen
or
10:00 am Managing AGHD: Daily and Beyond, Knecht
11:00 am Hypothalamic Obesity: Not Just Calories In, Calories Out, Connor
12:00 pm LUNCH (included)
1:00 pm Me, Myself and My Adrenal Insufficiency, Yuen
2:00 pm Navigating the Medical Maze, Herring

Saturday Educational Segments at Barrow Pituitary Center

10:00 am Beyond AGHD and Cushings: Familial and Genetic Factors, Stratakis
11:00 am Q&A, Stratakis
12:00 pm LUNCH (included)
1:00 pm Tools for Coping with my Endocrine Disorder, Jonas
2:00 pm Finnigan and Friends: A Year in AI Training, Palmer
2:30 pm Quality of Life Study, Cushings, Edgar & Keil
or
2:30 pm Life is What You Make Of It, Jones

Sunday Educational Segments at Wyndham Garden Phoenix Midtown

9:00 am Preventing Muscle Wasting and Nutrition, Fine
10:00 am Nuances of Treating Hypothyroidism, Friedman
11:00 am Macrilen Stimulation Test for Growth Hormone Deficiency, Friedman
11:45 am The New and The Old for Diagnosing Cushing’s Syndrome, Friedman
12:30 pm Ask the Wiz, Friedman

Location
Barrow Neurological Institute at St. Joseph’s Hospital and Medical Center
Goldman Auditorium and Sonntag Pavilion
350 W. Thomas Rd.
Phoenix, AZ 85013

Transportation will be provided on Friday and Saturday between the Wyndham Hotel to Barrow for an hour prior to the segments and an hour after close of the segments. The hotel is approximately 1/2 mile away from Barrow Pituitary Center if you choose to walk or travel there on your own.

Hotel Room Rates and Reservations
Wyndham Garden Phoenix Midtown
3600 N. 2nd Ave.
Phoenix, AZ 85013

$109 per night + tax. Includes free wifi, parking and buffet breakfast

To make hotel reservations call 602-604-4900 and ask for The MAGIC Foundation guest room block. Refrigerators are first come so be sure to request one when making your reservation.

Airport Transportation
Transportation is not provided to/from the hotel from the airport. The Wyndham is approximately 9 miles from the airport. Preferred airport is Phoenix, AZ – PHX – Sky Harbor Intl.

Deadline to Register and book your hotel is January 28, 2019

View the entire PDF Program

💉 Helpful Doctors: New Jersey

James K. Liu, MD
Professor of Neurosurgery
Director of Skull Base and Pituitary Surgery
Rutgers University, New Jersey Medical School
RWJ Barnabas Health

Dr. James K. Liu is the Director of Cerebrovascular, Skull Base and Pituitary Surgery at the Rutgers Neurological Institute of New Jersey, and Professor of Neurological Surgery at Rutgers University, New Jersey Medical School. He is board certified by the American Board of Neurological Surgery, and has a robust pituitary tumor practice at University Hospital and Saint Barnabas Medical Center.

Dr. Liu graduated summa cum laude from UCLA with Phi Beta Kappa honors, and obtained his MD from New York Medical College with AOA honors. After completing a neurosurgery residency at the University of Utah in Salt Lake City, he was awarded the Dandy Clinical Fellowship by the Congress of Neurological Surgeons, and obtained advanced fellowship training in Skull Base, Cerebrovascular Surgery & Neuro-oncology at the Oregon Health & Science University in Portland.

Dr. Liu is renowned for his comprehensive treatment of complex brain tumors and skull base lesions, including pituitary tumors, acoustic neuromas, meningiomas, craniopharyngiomas, chordomas, and jugular foramen tumors. His robust clinical practice encompasses both traditional open and minimally invasive endoscopic endonasal skull base approaches. He also specializes in microsurgery of cerebrovascular diseases including aneurysms, arteriovenous malformations (AVMs), cavernous malformations, and carotid artery stenosis. He also has expertise in cerebrovascular bypass procedures for moya moya disease, carotid artery occlusion, vertebral artery occlusion, complex aneurysms and skull base tumors, as well as endoscopic-assisted microvascular decompression for trigeminal neuralgia and hemifacial spasm.

As one of the most active researchers in his field, Dr. Liu has published extensively with over 250 peer-reviewed publications and 25 textbook chapters. He has taught many hands-on cadaver dissection courses in skull base surgery and has lectured extensively nationally and internationally throughout North America, Latin America, Europe, and Asia. Dr. Liu’s research is focused on the development of innovative and novel skull base and endoscopic techniques, quantitative surgical neuroanatomy, microsurgical and microvascular anastomosis skills training, virtual surgical simulation, pituitary tumor biology, and clinical outcomes after skull base and cerebrovascular surgery.

Dr. Liu is an active member of the American Association of Neurological Surgeons, Congress of Neurological Surgeons, North American Skull Base Society, Pituitary Network Association, The Facial Pain (Trigeminal Neuralgia) Association, AANS/CNS Cerebrovascular Section, Tumor Section. He serves on the medical advisory board of the Acoustic Neuroma Association of New Jersey, and is the current Secretary-Treasurer of the International Meningioma Society.

HOME | Sitemap | Abbreviations | Adrenal Crisis! | Glossary | Forums | Bios | Add Your Bio | Add Your Doctor | MemberMap | CushieWiki