Webinar: Make Sense of Your Dollars

Tuesday, June 13, 2017 at 10:00am PST.

A rare disease diagnosis is something that no one can plan or prepare for and it can often lead to financial burdens, but with the right guidance in financial planning, you can overcome these budgeting obstacles. Listen in to hear professionals in finance guide you through money management and budget preparation.

If you are unable to attend the live webinar, still register so you can receive a link to the recorded content.

Don’t forget, to access this webinar use the password: “Rare” with a capital “R”.

Panelists:
 Lori Leathers, Advisor, 1847 Financial

As an advisor with 1847Financial, Lori supports the goals of individuals and families through life insurance, fixed annuities, disability, and long-­‐term care insurance. Before working in this industry, Lori as a pharmaceutical sales representative for Merck&Co., but experienced a life-­‐changing event when she became the mother of a son diagnosed with Fragile X Syndrome. Lori made a significant career change to help other families navigate through the special needs planning process, and to help them secure the future they envisioned for themselves and their loved ones. Her mission is to help as many families as possible achieve their goals by ensuring all financial, legal, and government benefit resources effectively combine to work to their advantage.

Lori is involved in many efforts within the special needs community, including advocacy, participation in clinical research, co-­‐leader and member of parent support groups, and a parent mentor of Parent to Parent USA. Lori is also a member of Children and Adults with Attention Deficit Disorder (CHADD), and Parent and Founder of the Special Needs Resource Network.

Lori received her Bachelor’s Degree in Biology from Bucknell University and her Master of Science degree in Ecology from Pennsylvania State University. She also obtained a Master of Science degree in Regulatory Affairs and Quality Assurance from Temple University in Philadelphia, PA.

 

 Pat Bergmaier, CFP, ChSNC, Chartered Special Needs Consultant, 1847 Financial

Pat is a Certified Financial Planner (CFP) and has a passion for working with families. His knowledge and expertise allows him to develop comprehensive and holistic financial plans for his clients that provide the framework for making financial decisions that will help achieve their lifetime and legacy planning goals.

Pat is also a Chartered Special Needs Consultant (ChSNC).This designation has provided Pat with the knowledge to address the unique circumstances and requirements of planning for individuals with special needs a core focus of his practice. Pat received his Bachelor’s Degree in Finance from Albright College in Reading, PA and holds his FINRA Series 7, 66, 63 & 6 Securities Licenses. Pat began his career in the financial services industry in 2005 after a successful baseball career at Albright where he was awarded Conference Player of the Year during his senior season.

Prior to joining 1847Financial, Pat partnered with the MetLife Center for Special Needs Planning where his passion for working with the special needs community began. He is a board member of the Timothy School in Berwyn, PA which is devoted exclusively to teaching students with autism. He is involved with supporting many special needs organizations such as Ascend–the Asperger and Autism Alliance of Greater Philadelphia, Autism Cares Foundation, Down Syndrome Interest Groups, and PLAN of PA.

 

  Tony Ferrandino, Founder, Drew’s Hope & Senior Financial Advisor, Merill Lynch

Tony Ferrandino founded Drew’s Hope in 2007 with his wife, Katie, when their son Drew was diagnosed with Batten disease. Drew’s Hope is a non-profit foundation which is focused on raising funds for Batten disease research. As a parent of a child with a rare disease, Tony has used his personal experience to fuel his passion for advocacy. In September of 2014, Drew passed away from late infantile Batten disease. Tony serves on the Board of Directors for the Batten Disease Support and Research Association (BDSRA) and works closely with the Scientific Advisory Board to determine appropriate research funding. He received a Portrait of Courage Award in 2015 from the National Organization for Rare Disorders (NORD) for his continued efforts to raise funds for research. Tony is a Senior Financial Advisor at Merrill Lynch with over 25 years of experience in the financial services industry and he has focused on helping families with special needs children prepare financially for life’s transitions.

Moderator:
Danny_LevineDaniel Levine, Founder & Principal, Levine Media Group

Daniel Levine is an award-winning business journalist who has reported on the life sciences, economic development, and business policy issues throughout his 25-year career. Since 2011, he has served as the lead editor and writer of Burrill Media’s acclaimed annual book on the biotech industry and hosts The Burrill Report’s weekly podcast. His work has appeared in The New York Times, The Industry Standard, TheStreet.com, and other national publications.

Webinar: Growth Hormone Replacement: Not Just for Kids?

Thu, Mar 23, 2017 12:00 PM – 1:00 PM EDT

Presented by:

Susan L Samson MD PhD FRCPC FACE
Associate Professor, Department of Medicine
Medical Director, Pituitary Center at Baylor St. Luke’s Medical Center

Learning Objectives: At the end of the session the learner will be able to:

1) Discuss the testing approaches for confirmation of growth hormone deficiency in adult patients with pituitary disease
2) Understand the far reaching effects of growth hormone throughout the body
3) Describe the potential benefits and adverse effects of growth hormone replacement therapy in appropriate patients

Presenter Bio:

Susan L. Samson MD PhD FRCPC FACE is an Associate Professor of Medicine and Neurosurgery at Baylor College of Medicine in Houston, Texas. She is originally from Canada and completed her medical degree at Queen’s University (Kingston, Ontario) and Internal Medicine training in her hometown of Calgary, Alberta. She moved to Baylor for Endocrinology fellowship training and then joined the faculty. She is the Medical Director of the Pituitary Center at Baylor St. Luke’s Medical Center where she is part of a multidisciplinary team – with Dr. Daniel Yoshor (Neurosurgery) and Dr. Mas Takashima (Otolaryngology)- who are committed to excellence in surgical and clinical outcomes for pituitary patients. She currently serves on the board of directors of the American Association of Clinical Endocrinologists and is a member of the Neuroendocrine and Pituitary Scientific committee. She also is involved in training future endocrinologists as the Endocrinology fellowship program director. Dr. Samson has a basic science lab and has also been involved as a site principal investigator for pharmaceutical clinical trials of therapies for pituitary disorders. She has been awarded the Fulbright and Jaworski L.L.P. Faculty Excellence Award for Teaching and Evaluation as well as the Rising Star award at Baylor College of Medicine. Her major clinical interest is pituitary disorders including pituitary adenomas, hypopituitarism, Cushing’s disease and Acromegaly.

Register at https://attendee.gotowebinar.com/register/6691253214341976066?utm_source=newsletter_232&utm_medium=email&utm_campaign=webinar-announcement-growth-hormone-replacement-not-just-for-kids

Advances in the Treatment of Pediatric Brain Tumors Webinar

Sign up to join Johns Hopkins’ director of pediatric neurosurgery Alan Cohen on Tuesday, March 7, from 7 to 8 p.m. ET for a free online seminar to learn more about the latest surgical treatment options for pediatric brain tumors, including minimally invasive techniques.

REGISTER:

US Residents

International Residents

Webinar: Advances in Pituitary Surgery

Presented by

Paul Gardner, MD
Associate Professor, Neurological Surgery
Director, Center for Skull Base Surgery
University of Pittsburgh Medical Center (UPMC)

Register Now

After registering you will receive a confirmation email with details about joining the webinar.

Contact us at webinar@pituitary.org with any questions or suggestions.

Date: February 16, 2017
Time: 1:00 PM Pacific Standard Time, 4:00 PM Eastern Standard Time

Webinar Objectives:

1. Understand the advantages of the endoscopic approach to the pituitary
2. Recognize limitations of modern pituitary surgery
3. Understand techniques for avoiding complications

Presenter Bio:

Paul A. Gardner, MD, Associate Professor, Department of Neurological Surgery, University of Pittsburgh School of Medicine and Neurosurgical Director, Center for Cranial Base Surgery, University of Pittsburgh Medical Center.

Dr. Gardner joined the faculty of the Department of Neurological Surgery at the University of Pittsburgh School of Medicine in 2008 after completing his residency and fellowship training at the University of Pittsburgh. He completed his undergraduate studies at Florida State University, majoring in biochemistry, and received his Medical Degree from the University of Pittsburgh School of Medicine.

Dr. Gardner completed a two-year fellowship in endoscopic endonasal pituitary and endoscopic and open skull base surgery at the University of Pittsburgh Medical Center. His research has focused on evaluating patient outcomes following these surgeries and more recently on molecular phenotyping of rare tumors. He is recognized internationally as a leader in the field of endoscopic endonasal surgery, a minimally invasive surgical approach to the skull base. His other surgical interests include pituitary tumors, open cranial base surgery, and vascular surgery.

Dr. Gardner is certified by the American Board of Neurological Surgery and is a member of the American Association of Neurological Surgeons, Congress of Neurological Surgeons, and the North American Skull Base Society where he currently serves as a member of the Scientific Program Committee and the Membership Committee. Dr. Gardner is co-editor of the textbook Skull Base Surgery, part of the Master Techniques in Otolaryngology – Head and Neck Surgery series published by Wolters Kluwer, and has authored 190 peer-reviewed publications and 71 book chapters.

Webinar: The Essentials: The Diagnosis and Treatment of Hypopituitarism

Presented By

John D. Carmichael, MD
Associate Professor of Clinical Medicine
Co-Director, USC Pituitary Center

After registering you will receive a confirmation email with details about joining the webinar.

Contact us at webinar@pituitary.org with any questions or suggestions.
Date: Thursday, June 30, 2016
Time: 11:00 AM Pacific Daylight Time, 2:00 PM Eastern Daylight Time

Webinar Description

This will be a case-based review of the causes, diagnosis and treatment of pituitary failure, focusing on the most common scenarios patients may encounter. We will review issues with hormonal testing unique to patients with pituitary disease, and the approach toward optimizing pituitary hormone replacement.

Presenter Bio

John CarmichaelDr. John Carmichael is the Co-Director of the USC Pituitary Center and Associate Professor of Clinical Medicine at the Keck School of Medicine at the University of Southern California. After earning a degree in biomedical ethics at Brown University, Dr. Carmichael graduated from the Medical College of Virginia in Richmond. He then completed internship and residency at Virginia Mason Medical Center in Seattle, Washington. He received his endocrinology fellowship training at NYU, where he received a research fellowship grant to conduct clinical trials devoted to growth hormone deficiency and acromegaly after his clinical fellowship. In 2006, he moved to Los Angeles to join the Pituitary Center at Cedars-Sinai Medical Center, where he cared for patients with pituitary disease, devised and conducted clinical trials, and taught medical students, residents, and endocrinology fellows. In 2014, he joined the faculty at the University of Southern California. He has authored several journal articles devoted to clinical pituitary medicine, book chapters covering hypopituitarism and hypothalamic disease, and sits on the editorial boards for Pituitary and Endocrine, Diabetes, and Metabolism Case Reports.

Webinar: Endoscopic Endonasal Surgery for the Treatment of Cushing’s Disease

Mon, Jun 13, 2016 11:00 AM – 12:00 PM EDT


Presented by:
Dr. Maria Koutourousiou

Webinar DescriptionAn update on the diagnosis and treatment options of Cushing’s disease. Description of the endoscopic endonasal approach for the management of CD. Surgical videos demonstration and comparison with the microscopic transsphenoidal approach. Surgical outcomes and adjuvant treatment.

Presenter Bio

Dr. Mary Koutourousiou is an attending Neurosurgeon and Assistant Professor at the University of Louisville. She is the Director of the Pituitary and Skull Base Program. Dr. Koutourousiou received her M.D. from the Aristotle University of Thessaloniki, Greece and completed her neurosurgical residency at the General Hospital of Athens “G. Gennimatas”, in Greece. She underwent subspecialty fellowship training in Endoscopic Pituitary Surgery and Minimally Invasive Neurosurgery at the UMC St. Radboud, Nijmegen, in the Netherlands. She moved to the United States in 2010 and completed four years of research and a clinical fellowship in Endoscopic and Open Skull Base Surgery at UPMC Presbyterian in Pittsburgh, Pennsylvania.

Dr. Koutourousiou has published extensively in the field of endoscopic skull base surgery. Her studies have been presented in national and international neurosurgical meetings. Dr. Koutourousiou’s work in skull base surgery has been recognized by the European Skull Base Society and the World Federation of Skull Base Societies.