📞 Webinar: Expect more from pituitary surgery: difference-makers for post-operative outcomes

 Presented by

Ahmad Sedaghat, MD, PhD – Associate Professor and Director of the Division of Rhinology, Allergy and Anterior Skull Base Surgery in the Department of Otolaryngology – Head and Neck Surgery at the University of Cincinnati College of Medicine and UC Health.

Norberto Andaluz, MD, MBA, FACS – Professor of Neurosurgery and Otolaryngology/Head and Neck Surgery – Director, Division of Skull Base Surgery University of Cincinnati College of Medicine and University of Cincinnati Gardner Neuroscience Institute – UC Health

 

Click here to attend

Date: Wednesday, Sept 23, 2020

Time: 3:00 PM  Eastern Daylight Time

Learning objectives:

1.  To understand the surgical steps of endoscopic pituitary surgery
2.  To understand how the surgical steps of endoscopic pituitary surgery translate to post-operative outcomes
3.  To understand surgical factors that can modify post-operative outcomes after endoscopic pituitary surgery
4.  To understand post-operative care that can modify post-operative outcomes after endoscopic pituitary surgery

💲 Cushing Syndrome interview (NEON_4470), 60-minutes, One Hundred Dollar reward

 

Thanks for being a member of Rare Patient Voice, LLC. We have an opportunity for you to take part in a Cushing Syndrome interview (NEON_4470) for Patients. Our project number for this study is NEON_4470.

Project Details:

  • Telephone interview
  • Interview is 60-minutes long
  • One Hundred Dollar Reward
  • Looking for Patients diagnosed with Endogenous Cushing Syndrome 

Things to Note:

  • Patient study only, Caregivers please pass the link along
  • Unique links, please do not pass along for 2nd use
  • Want to share this opportunity? Let us know and we can provide a new link
  • Please use a laptop/computer ONLY. No smartphones or tablets – Preliminary questions are Mobile Friendly!
  • Save this email to reference if you have any questions about the study!
  • If you have any problems, email michael.taylor@rarepatientvoice.com and reference the project number.  If you hit reply, you will get an auto do-not-reply email.

If you are interested in this study, please click the link below to answer a few questions to see if you qualify.

Study Link: Link

Thanks as always for your participation! Please be aware that by entering this information you are not guaranteed that you will be selected to participate. As always, we do not share any of your contact information without your permission.

Not Interested in this study? (Click link below so we do not send you any reminders for this study)

Study Reminder Opt Out Link: Link

We truly appreciate the time you set aside to interact with our company and don’t take it for granted. Receive a $5 gift card for referring others who may want to participate in this or future studies. Invite them to join Rare Patient Voice: https://www.rarepatientvoice.com/sign-up. They, too, receive a gift card.

Our Privacy Policy

Regards,

Michael Taylor
Project Manager
Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions
Phone: + 1 609-462-5519
Email: michael.taylor@rarepatientvoice.com
Websites: www.rarepatientvoice.com
Rare Patient Voice

📞 Webinar: Growth Hormone Deficiency, PCOS or Cushing’s: How do You Tell Them Apart?

Dr. Theodore Friedman (The Wiz) will host a webinar on Growth Hormone Deficiency, PCOS or Cushing’s: How do You Tell Them Apart?

Dr. Friedman will discuss topics including:

  • Signs and Symptoms of Cushing’s Syndrome
  • Testing for Cushing’s
  • Signs and Symptoms of Growth Hormone Deficiency
  • Testing for Growth Hormone Deficiency
  • Signs and Symptoms of PCOS
  • Testing for PCOS
  • How do you tell them apart?

Sunday • August 2 • 6 PM PDT
Click here on start your meeting or
https://axisconciergemeetings.webex.com/axisconciergemeetings/j.php?MTID=m4eda0c468071bd2daf33e6189aca3489
OR
Join by phone: (855) 797-9485

Meeting Number (Access Code): 133 727 0164 Your phone/computer will be muted on entry.
Slides will be available on the day of the talk here
There will be plenty of time for questions using the chat button. Meeting Password: pcos
For more information, email us at mail@goodhormonehealth.com

👥 Memorial Sloan Kettering 2020 Update on the Treatment of Pituitary Tumors

 

This event has been postponed to Dec. 5, 2020

You are Cordially Invited!

The PNA is pleased to announce our participation in this event!

Saturday, December 5, 2020
8:30am – 4:30pm
Zuckerman Research Center
417 E. 68th St. New York, NY
Memorial Sloan Kettering Cancer Center

Target Audience

This course is intended for endocrinologists, neurosurgeons, otolaryngologists, radiation oncologists, neurologists, ophthalmologists, neuro-oncologists, family medicine and internal medicine physicians, physicians in training and other allied health professionals who treat and manage patients with pituitary diseases. We also invite patients with pituitary disease and their caregivers to attend this educational activity and participate in our interactive afternoon breakout sessions. 

Overall this course aims to improve patient care and outcomes through evidence-based discussion of clinical practice guidelines and emerging therapies. Our goal is to assess and update current practices to promote earlier diagnosis and treatment of pituitary diseases. The multidisciplinary nature of the course will allow for the dissemination of knowledge across the variety of practitioners caring for pituitary patients, and for the patients themselves.

Pituitary patients will be able to review treatment options, learn about ongoing clinical trials, and discuss their comprehensive care with providers and other patients. The educational objective of this patient session is to provide a forum for pituitary patients to discuss treatment options and new therapies with providers and other patients.

Patients with pituitary disease and their caregivers are invited to attend this educational activity FREE of charge. If you are a patient or caregiver interested in attending, please email cme@mskcc.org to register (registration is required in order to attend).

Medical Professionals who wish to attend must register online:
mskcc.org/PituitaryCourse

pdfView Course Flyer

📞 / 👥 2020 Barrow Pituitary Center Patient Education Day October 24, 2020

 

The Barrow Pituitary Center is dedicated to educating patients, caregivers, and loved ones by providing information which is current and non-biased. Experts at this conference will address management of the emotional and physical elements of living with pituitary disorders. We hope attendees will leave empowered to make better-informed decisions about their healthcare and achieve their goals for a long and fruitful life.

In Person and Online Registration Options

This conference will be offered in person and through live online format with Zoom. We reserve the right to transition to a solely live online format as a result of health concerns as we move into the fall. Participants will be notified if this change develops.

Register here

📞 Webinar: The Current “State-of-the-Art” in the Treatment of Pituitary Disease.

Presented by

Georgios A. Zenonos, MDAssistant Professor of Neurological Surgery
Associate Director, Center for Skull Base Surgery
University of Pittsburgh Medical Center200 Lothrop Street, Pittsburgh PA, 15217
Presbyterian Hospital, Suite B400

No Registration is Required.  It will be webcast by Microsoft Teams.

Click here to attend.

Date: Friday, July 17, 2020

Time: 10:00 AM Pacific Daylight Time, 1:00 PM Eastern Daylight Time

📞 Webinar: What every Patient needs to know about Recent Advancements in Pituitary Surgery

Presented by Georgios A. Zenonos, MD

Assistant Professor of Neurological Surgery
Associate Director, Center for Skull Base Surgery
University of Pittsburgh Medical Center

200 Lothrop Street, Pittsburgh PA, 15217
Presbyterian Hospital, Suite B400

Register Now!

After registering you will receive a confirmation email containing information about joining the Webinar.

Date: Wednesday, July 1, 2020

Time: 3:00 PM Pacific Daylight Time, 6:00 PM Eastern Daylight Time

📞 Webinar: Pituitary Surgery During the COVID-19 Pandemic

 

Presented by

Jamie J. Van Gompel, M.D., B.S., Professor in Neurosurgery and Otolaryngology specializing in endoscopic/open skull base focusing on Pituitary tumors as well as Epilepsy at the Mayo Clinic in Rochester, Minnesota, USAand

Garret W. Choby, M.D., a fellowship-trained rhinologist and endoscopic skull base surgeon practicing at the Mayo Clinic.

Objectives:

–          Understand the additional considerations that are key to performing endonasal surgery during the COVID pandemic
–          Identify the practice changes that are allowing pituitary surgery to proceed safely
–          Characterize the nasal cavity and nasopharynx as a reservoir for the coronavirus
–          Identify the risk of undergoing pituitary surgery during the Covid -19 pandemic
After registering you will receive a confirmation email containing information about joining the Webinar.Date: Monday, May 11, 2020

Time: 4:00 PM Pacific Daylight Time  – 5:15 PM Pacific Daylight Time

📞 Webinar: The Implications of COVID-19 on Patients with Endocrine Disorders

 

Presented by

Nelson M. Oyesiku, MD, PhD, FACS
Professor of Neurosurgery and Medicine
Vice-Chairman, Neurosurgery Residency Program Director
Emory University School of Medicine

Register Now!

After registering you will receive a confirmation email containing information about joining the Webinar.

 

Date: Sunday, May 10, 2020

Time: 11:00 AM Pacific Daylight Time to 12:15 PM Pacific Daylight Time/ 2:00 PM – 3:15 PM Eastern Daylight Time

📞 Dr. Theodore Friedman (The Wiz) will host a webinar on “How to improve quality of life for those with no adrenals (BLA and Addison’s)”

 

Dr. Friedman will discuss topics including:

  1. Who should get an adrenalectomy?
  2. How do you optimally replace adrenal hormones?
  3. What laboratory tests are needed to monitor replacement?
  4. When and how do you stress dose?
  5. What about subcut cortisol versus cortisol pumps?
  6. Patient Melissa will lead a Q and A

Sunday • May 17 • 6 PM PST
Click here on start your meeting or
https://axisconciergemeetings.webex.com/axisconciergemeetings/j.php?MTID=mb896b9ec88bc4e1163cf4194c55b248f

OR
Join by phone: (855) 797-9485

Meeting Number (Access Code): 802 841 537 Your phone/computer will be muted on entry.
Slides will be available on the day of the talk here
There will be plenty of time for questions using the chat button. Meeting Password: addison
For more information, email us at mail@goodhormonehealth.com