“Thriving With ( )… A convention empowering those with Cushing’s Syndrome and other Chronic Illnesses”
August 8th-August 11th, 2019
The EPIC Foundation proudly announces our upcoming first annual convention!
Get ready to come and meet other chronic illness warriors, get support, and take classes that will help you learn how to THRIVE with chronic illness!
Come out and meet our Keynote Speaker, Teresa Tapp, Founder and Creator of the T-Tapp workout, a rehabilitative workout that is no impact but produces real results! Teresa Tapp cares deeply for the chronic illness community and changes lives every day!
Our first annual convention is taking place in Chicago, IL near O’Hare Airport:
Hilton Rosemont Chicago O’Hare
5550 North River Road
Rosemont, IL 60018
Thursday August 8th- Sunday August 11th, 2019
Thursday- Check into hotel plus Meet and Greet reception at 6 PM
Friday and Saturday- Seminars & and Keynote speaker, Teresa Tapp
Sunday-Meet the Executive Board, Staff, and Volunteers from EPIC
Also enjoy some complimentary meals including a dinner with a fashion show!
Start planning NOW!!!! See you there!!!
Many of the speakers are from within the community, as we value your strengths!
MaryO will be one of the speakers 🙂
Kenneth M. De Los Reyes MD, MSc
Co-director of Skull Base Surgery
Director of Quality Assurance
Department of Neurosurgery
Loma Linda University Medical Center
After registering you will receive a confirmation email with details about joining the webinar.
Contact us at email@example.com with any questions or suggestions.
Date: Wednesday, December 13, 2017
Time: 10:00 AM – 11:00 AM Pacific Standard Time 1:00 PM – 2:00 PM Eastern Standard Time
Building Patient and Medical Provider Awareness
- To build awareness among patients and medical providers of early signs and symptoms of pituitary and pituitary related tumors
- To understand the consequences of delays in diagnosis of pituitary tumors
- To outline steps for patients and medical providers to take to prevent delays in diagnosis of pituitary tumors.
Finally, the dream has come true.
Testing your salivary cortisol can now be done on your iPhone with Point of Care (POC) technology. Join Dr. Friedman for a webinar informing the Cushing’s and Addison’s community on the newly available Peak Biometric Research Stress Management System that offers a quick, private, and non-invasive way to measure cortisol levels —without the hassle and expense of sending samples to a lab. Dr. Friedman will go over how to order and use the POC salivary cortisol monitor. He will explain that the product is not FDA-approved for diagnostic purposes and how to use it with commercial salivary testing. There will be plenty of time for questions and discussion.
salivary cortisol webinar
Sunday, November 19, 2017
6:00 pm | Pacific Standard Time (San Francisco, GMT-08:00) | 1 hr
Meeting password: cushings
join the meeting by clicking here.
Join by phone
+1-855-797-9485 US Toll free
You can join on a website (that will allow you to hear the presentation and view the slides) or by telephone (that will allow you only to hear the presentation). There will be time for questions by “chat” and the videoconference will be posted on goodhormonehealth.com a few days after. You will be required to mute your phones/computers. Please contact us at firstname.lastname@example.org if you have questions.
Unprecedented Access Inside the National Institutes of Health’s Building 10
Premieres August 10
Directed by Emmy® Winner John Hoffman; Produced by McGee Media
Near the nation’s capital, on the campus of the National Institutes of Health, sits Building 10: the largest hospital in the world devoted solely to research. Inside, our country’s most brilliant scientific minds carry out some of medicine’s riskiest and most critical research, testing new treatments in people for the very first time.
With unprecedented access to the halls of Building 10, First in Human reveals for the first time how the medical breakthroughs of tomorrow make their way out of the hi-tech research laboratories and into the hands of our world’s medical professionals. The series explores the lives of the doctors, researchers, and patients who together make progress possible in this cutting-edge testing ground. Narrated by Emmy,® Golden Globe®, and Critics Choice® winning actor Jim Parsons (“The Big Bang Theory,” “Hidden Figures,”) directed by Emmy winner John Hoffman, and executive produced by Hoffman and Emmy winner Dyllan McGee, the three-part documentary series begins airing in August 10 at 9pm ET/PT exclusively on Discovery.
Because the treatments they’re testing are so new and their outcomes are entirely unknown, the doctors leading first in human trials at Building 10 can only partner with patients who have exhausted the options the medical establishment has to offer. This doctor-patient partnership is utterly unique to medicine: live or die, each of these brave “first in human” volunteers immediately becomes part of medical history. Previous trials in the building led to the development of modern chemotherapy treatments, the first treatments for HIV/AIDS, and the first successful gene therapy.
First In Human represents the first time cameras have embedded in Building 10 and followed first in human patients throughout their entire trial. This unique access is the product of Hoffman’s nearly twenty years of filmmaking in partnership with the NIH on projects such as The Alzheimer’s Project and The Weight of the Nation.
“NIH’s Building 10 has given generations hope when they need it most,” comments Rich Ross, Group President, Discovery Channel, Animal Planet, Science Channel, and Velocity. “We are proud that the NIH has invited Discovery inside their doors for an unvarnished look at how these brave men and women work hand in hand with their doctors and technologists to seek cures to the most confounding diseases that exist.”
“Because of the very nature of first in human trials, most of the patients who enter Building 10 to enroll in them are remarkably unique: all standard care out in the world has failed them,” says Hoffman. “What was most powerful about embedding in Building 10 and following these trials was observing how the doctors and patients came to rely on each other in a true partnership to advance medicine.”
States Parsons, “I know that everyone who watches First in Human will feel the same sense of pride I did when I discovered this incredible institution that our country created. I hope viewers will share the sense of gratitude and awe that I felt when learning about the human beings who bravely put their lives in the hands of some of our most innovative scientists and doctors as they search together for the medicines and cures that give all of us fuller, longer lives. This is truly the story of how we, as human beings, function: both at an elemental level and at our most profound.”
“The NIH Clinical Center’s more than 60-year history has resulted in remarkable medical advances, from the first use of chemotherapy to treat cancer, to the development of the technique to keep the blood supply clean and safe from viruses,” said NIH Director Francis S. Collins, M.D., Ph.D. “For millions of patients around the world, it is known as the National Institutes of Hope.”
From leukemia to sickle cell disease to the rarest diseases on the planet, First in Human captures the stories of the doctors, researchers, staff, and, most importantly, the patients and families in this remarkable facility that together are pushing far into the unknown.
FIRST IN HUMAN is produced by McGee Media for Discovery Channel. The series is directed by John Hoffman; produced by, John Hoffman, Beth Wichterich, and Michael Epstein; narrated by, Jim Parsons; executive producers Dyllan McGee, Jim Parsons, Todd Spiewak, and Eric Norsoph; producer, Jon Bardin; supervising producer, Stacia Thompson; senior editor, Adriana Pacheco; director of photography, Simon Schneider. For Discovery Channel, supervising producer, Jon Bardin; executive producer, John Hoffman.
Save the Dates!! March 23-25, 2018
Conference on Adrenal Insufficiency
We’re thrilled to announce the date for AIU’s first stand alone conference for Adrenal Insufficiency. We have some incredible speakers lined up and hope you’ll come join us. A list of speakers will be included with registration information in September/October.
Here’s what you need to know:
- There will be sessions to address the needs of affected adults and children
- Registration will include snacks at an evening reception held Friday night, lunches on Saturday & Sunday, and all sessions.
- Dates: March 23 @1:00 p.m – March 25 @ 1:00 p.m. 2018
- The conference will be held at the Embassy Suites Kansas City Airport Hotel. They offer a free shuttle, in room refrigerators and hot breakfast. On site child care available for an additional fee
Be sure to watch for more details on our website and join our FB event.
Registration will open in September/October once our program is complete. *Please wait until registration opens to book your room. We’ll have several reserved at a discount rate.
- AIU will be actively seeking sponsors and fundraising in order to make the conference affordable. Please join our FB event or email@example.com if you would like to help.
Join Dr. Theodore Friedman for an informative webinar on the endocrine causes of hair loss in women. Dr. Friedman will discuss what hormones to measure if a woman is experiencing hair loss. He will discuss how to optimize hormone replacement to minimize or reverse hair loss. There will be plenty of time for questions and discussion.
Sunday, July 16, 2017 at 5:00 pm Pacific Daylight Time, 8:00 pm Eastern Daylight Time
Meeting number (access code): 808 128 401
Meeting password: hormones
join the meeting here.
Join by phone Audio connection:
+1-855-797-9485 US Toll free
+1-415-655-0002 US Toll
Global call-in numbers
Show toll-free dialing restrictions
Access code: 808 128 401
You can join on a website (that will allow you to hear the presentation and view the slides) or by telephone (that will allow you only to hear the presentation). There will be time for questions by “chat” and the video conference will be posted on goodhormonehealth.com a few days after.
You will be required to mute your phones/computers. Please contact us at firstname.lastname@example.org if you have questions.
Dr. Friedman has been our guest four times on BlogTalkRadio. Listen to one of his past interviews here: http://www.blogtalkradio.com/cushingshelp/2012/04/03/dr-theodore-friedman-returns-for-his-fourth-interview