👥 Ohio State Pituitary Patient Symposium, July 13, 2019

Keynote Speaker: Maria Fleseriu, MD FACE

Registration Cost: Individual $40    Save $20 and register for 2: $60

Please email carol@pituitary.org to register!

*This registration is for the Patient Symposium only. The Ohio State University is offering a CME Course separate from our Symposium. For information on the CME course go to ccme.osu.edu

 

OSU Pituitary Symposium Agenda
Saturday, July 13, 2019
Patients and Family’s Track
Gabbe Conference Room – James L045

 

8:00 AM Registration and Breakfast
8:20 AM Welcoming Remarks and Introductions: The OSU Skull Base and Pituitary Team
Lawrence Kirschner, MD, PhD
OSUCCC – James
8:30 AM Hypopituitarism: Pitfalls and Recommendations
Maria Fleseriu, MD, FACE
Oregon Health and Science University
9:00 AM Trans-sphenoidal Approach: What to Expect? Post-Operative Complications
Richard Carrau, MD
OSUCCC – James
9:30 AM Acromegaly: Why it Takes That Long to Diagnose? What are the Options?
Lawrence Kirschner, MD, PhD
OSUCCC – James
10:00 AM Round Table Q & A
10:15 AM Mid-Morning Break
10:30 AM Growth Hormone Deficiency: Journey to Adulthood
Robert Hoffman
Nationwide Children’s Hospital
11:00 AM Radiation Therapy? Difference Between Modalities and Possible Risks
Dukagjin M Blakaj, MD, PhD
OSUCCC – James
11:30 AM Round Table Q & A
11:45 AM Lunch Break and Patient’s Journey
12:45 AM Surgical Approach: What to Expect
Daniel Prevedello, MD
Douglas Hardesty, MD
OSUCCC – James
1:15 PM Visual Complications of Pituitary/Sellar Lesion? Predictors of Outcome
Abbe Craven, MD
OSUCCC – James
1:45 PM Round Table Q & A
2:00 PM Pituitary Trivia
Luma Ghalib, MD
Brian Lee
OSUCCC – James
2:30 PM Pituitary Dysfunction: Effect on Mental Health and Family
William Malarkey, MD
OSUCCC – James
3:00 PM Recovering from Trans-sphenoidal Surgery, Challenges for the Patient and their Families
Traci Douglass, RN
OSUCCC – James
3:30 PM Pituitary Network Association: Cushing’s Disease: Psychological Research and Clinical Implications
Jessica Diller Kovler, AM, MA, PhD
PNA Board Member
4:00 PM Closing Remarks
4: 15 PM Adjourn

📞 Webinar: Adrenal Insufficiency/Addison’s Disease

Presented by

Irina Bancos, MD
Assistant Professor of Medicine
Endocrinology Department
Mayo Clinic, Rochester, MN

Space is limited. Reserve your webinar seat.

After registering you will receive a confirmation email containing information about joining the webinar.

Contact us at webinar@pituitary.org if you have any questions.

Date: Tuesday, May 28, 2019

Time: 10:00 AM – 11:00 AM Pacific Daylight Time, 1:00 PM – 2:00 PM Eastern Daylight Time

Webinar Description

Learning Objectives:

  1. To distinguish between primary and secondary adrenal insufficiency
  2. To understand the pitfalls of current diagnostic tests to diagnose adrenal insufficiency.
  3. To describe physiological replacement therapy for adrenal insufficiency
  4. To distinguish between adrenal insufficiency and glucocorticoid withdrawal syndrome.

Presenter Bio

Dr. Irina Bancos is the Assistant Professor of Medicine and works in the Pituitary-Adrenal-Gonadal subdivision of Endocrinology division at Mayo Clinic, Rochester. She also serves as Director of the Endocrine testing center. Dr. Bancos received her M.D. from the Iuliu Hatieganu Medical University in Cluj-Napoca, Romania. She has completed her Internal Medicine Residency at Danbury Hospital in CT and Endocrinology Fellowship at Mayo Clinic, Rochester. In addition, Dr. Bancos completed a two year research fellowship (Mayo Foundation Scholarship) at the University of Birmingham, United Kingdom where she received training in steroid profiling and adrenal disorders. In 2015 she returned to Mayo Clinic, where her clinical and research interests include adrenal and pituitary tumors, adrenal insufficiency, congenital adrenal hyperplasia, Cushing syndrome, and mechanisms of steroid regulation of metabolism. Between 2015 and 2018, Dr. Bancos was the principal investigator and leader of the Transform the Adrenal Practice team at Mayo Clinic. Dr. Bancos has published 77 scientific articles. In addition to clinical practice in the pituitary-adrenal-gonadal clinic, Dr. Bancos enjoys teaching fellows, residents and medical students. She is the principal investigator of several ongoing prospective studies in Cushing syndrome, adrenal insufficiency, prolactinoma, and adrenal tumors. Dr. Bancos currently holds several grants in the field of steroid regulation of aging, metabolism and body composition.

📞Theodore Friedman Webinar on Treatments for Insomnia, June 2, 2019

Dr. Theodore Friedman hosts Jay Khorsandi, DDS and Barbara Burggraaff, MD from Snore Experts for an important webinar on insomnia

Topics to be discussed include:
• What are the causes of insomnia?
• How do hormone imbalances lead to insomnia?
• What lifestyle changes can you do to help with insomnia?
• What supplements are helpful for insomnia?
• What medicines are helpful for insomnia?

Sunday • June 2nd • 6 PM PST

Click here on start your meeting.or
https://axisconciergemeetings.webex.com/axisconciergemeetings/j.php?MTID=m2f7d9547a80ec47e43869517ef006f34
OR
Join by phone: (855) 797-9485

Meeting Number (Access Code): 807 924 444
Meeting Password: hormones

Your phone/computer will be muted on entry. There will be plenty of time for questions using the chat button.

For more information, email us at mail@goodhormonehealth.com

👥 Register for Johns Hopkins Pituitary Day October 19, 2019!

The 11th annual Pituitary Day will take place on October 19, 2019  Patients living with pituitary disorders can hear lectures from our pituitary specialists, see movies of pituitary surgeries and hear from other patients about their experience living with pituitary disease and undergoing surgery.

Attendance is free, and patients can bring one guest.

Call 410-955-3921 or reserve your spot by email at pituitaryday@jmhi.edu

More information at www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/pituitary_center/index.html

🎤Archived Interview: Robin (staticnrg) and Mary O’Connor (MaryO) Discussed Spreading the Word about Cushing’s

 

Part 1. Robin and MaryO discussed the role of blogs in helping to spread the word about Cushing’s. They also discussed popular doctor blogs and other topics of interest to Cushing’s Patients.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/08/21/tentative-interview-with-joselle

 

Part 2.  Robin and MaryO discuss the role of blogs in helping to spread the word about Cushing’s. They also discuss popular doctor blogs and other topics of interest to Cushing’s Patients, friends and family.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/09/25/robin-staticnrg-and-mary-oconnor-maryo-discuss-spreading-the-word-about-cushings-part-2

 

Would you like to participate? Just click here and tell me a bit about yourself. Then check the box that you would like to be interviewed. We’d love to have you!

 

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🎤Archived Interview: Kate (Fairley)

 

Kate (Fairley), July 17, 2008. Kate had symptoms since 1991. She had two pituitary surgeries and another recurrence. She is not yet cured and her current diagnoses are Idiopathic Intracranial Hypertension, panhypopituitarism and a CSF leak. She has appeared on National Geographic TV in the Science of Obesity.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/07/17/interview-with-kate-fairley

Sadly, Kate was only 46 when she died on June 23, 2014.  Her bio and video can be found here: https://cushingsbios.com/2015/06/23/1623/

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🎤Archived Interview: Charlie (creativeogre)

 

Charlie is not yet diagnosed with Cushing’s but has many symptoms. He writes, in part, “I understand that Cushing’s Disease is a very difficult disease to diagnose. However, it seems as though we have had to guide doctors through this process over the past year. If I sound bitter and frustrated, it is because I am! I have not been able to work over the past year. Tasks that used to take me several hours to complete now take two days. I can no longer walk the dog. I do not sleep well at night..”

Listen at http://www.blogtalkradio.com/cushingshelp/2008/07/10/interview-with-charlie-creativeogre

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