Interviews, Meetings and Conferences

📞 Webinar: Updates on Treating Hypothyroidism

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Updates on Treating Hypothyroidism

Dr. Theodore Friedman will be giving a webinar on Updates on Treating Hypothyroidism.

Topics to be discussed include:

  • New articles showing patients prefer desiccated thyroid
  • New thyroid hormone preparations
  • Update on desiccated thyroid recalls
  • New article on why TSH is less important than thyroid hormone measurements
  • What is the difference between desiccated thyroid and synthetic thyroid hormones?
  • Is rT3 important?

Sunday • April 25• 6 PM PDT

Via Zoom Click here to join the meeting or
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OR
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Slides will be available before the webinar and recording after the meeting at slides

      Meeting ID: 420 968 7343 Passcode: 111116
Your phone/computer will be muted on entry. There will be plenty of time for questions using the chat button.
For more information, email us at mail@goodhormonehealth.com

 

🎤 Mary O’Connor (MaryO) second archived interview with Robin Smith (staticnrg)

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Robin had Cushing’s for over 20 years, at least. Of course, no one figured it out or even put two and two together until her new PCP whom she found in 2004 said “endocrine”. She didn’t figure it out, either, but at least Robin had a piece of the puzzle and she found cushings-help.com. Robin immediately went into denial and left for several months until she got so sick she knew she had to have help. She had originally sought this PCP because she had been going to all sorts of doctors.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/03/07/symptoms-and-diagnosis-part-2-cushings-message-board-members

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🎤 Archived Interview: Cushing’s Diagnosis and Symptoms, part 2

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Listen as Robin Smith (staticnrg) and Mary O’Connor (MaryO) co-host Cushing’s message board members calling in to talk about their fight for diagnosis and treatment. The show will be opened with a brief explanation of what Cushing’s is and what the symptoms are.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/03/13/-cushings-diagnosis-and-symptoms-part-2

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🎤 Archived Interview with Judy, Mom to Two Cushing’s Patients, and her Daughter, Jess

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Interview with Judy, the mother of two Cushing’s patients, and her daughter, Jess, a high school student with Cushing’s. Robin (staticnrg) hosted.

Sadly, Judy died on December 15, 2019, after battling lung cancer, Atrial fibrillation, and total body weakness.  She was a great warrior for her children.  Here’s her bio: https://cushingsbios.com/2019/12/15/in-memory-judy-kennedy-december-15-2019/

 

Listen at http://www.blogtalkradio.com/cushingshelp/2008/01/17/judy-mom-to-2-cushings-patients-and-her-daughter-jess

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🎤 Archived Interview: JenS discussed Bilateral Adrenalectomy (BLA)

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Jen had Pituitary surgery by Dr. Shahinian 4/28/04, removed ACTH secreting corticotroph hyperplasia and prolactinoma.

She was diagnosed by Dr. Theodore Friedman as cyclical pituitary Cushings.

Her second Surgery 7/21/04 for infection resulted in neuralgia. She had a BLA in March 2006 as Corticol Hyperplasia returned and she now has possible Nelson’s syndrome. Jen also has Thyroid Issues (Hashimoto’s, multiple nodules and entire thyroid removed 2003) and she is Growth Hormone Deficient (3/2006)

Listen at http://www.blogtalkradio.com/cushingshelp/2008/02/29/jens-discusses-bilateral-adrenalectomy-bla

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🎤 Archived Cushing’s Awareness Day Archived Voice Chat!

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Listen as Jayne Kerns and Robin Smith (staticnrg) hosted a Cushing’s Awareness Day Special Chat a few years ago.

This chat had callers and some testimonials for the website and Mary O’Connor (MaryO). Ideas were discussed for setting up non-profit status for this website.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/04/09/special-cushings-awareness-day-voice-chat

 

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🎤 Archived Interview with Mary O’Connor aka MaryO, Cushings-Help.com founder

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As part of this year’s Cushing’s Awareness Challenge, I’ve decided to share our Interview Series again since there was lots of great info in there.

The series is still going on, so if you’d like to be a part of this, just let me know.  You can fill out this form and check off that you want to do an interview – Add Your Bio

There are currently 89 interviews in our series.  This is the first one:

Interview with Mary O’Connor (MaryO), founder of Cushings-Help.com and 20-year pituitary Cushing’s Survivor. Robin (staticnrg) hosted.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/01/03/mary-oconnor-aka-maryo-cushings-helpcom-founder

Some of the comments:

This is the first podcast I have listened to. How wonderful to hear your voices! Thank you Mary for sharing your story and for Robin for being the perfect host. This is a wonderful way of hearing about many of our journies with this awful disease – just brilliant!

Great topic……more awareness is needed as I’m convinced this is under-diagnoised vs. uncommon!!

The information age and innovative thinking meets new medical needs

Great show. informative and potentially life saving

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📞 Celebrate 20 Years-Pituitary Patient Support Group

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Please Join Us to Celebrate 20 Years-Pituitary Patient Support Group. Saturday April 10, 2021: 9:00am-11:00am (PST) (Scroll below for Zoom meeting links)
We invite you to join the conversation with our experts: Pejman Cohan, neuro-endocrinologist & Daniel Kelly, neurosurgery. Email me or leave your questions in the chat below. We will answer as many questions as time allows.
We can’t wait to see you on Zoom!
Thank you, Sharmyn McGraw, patient advocate, community outreach. pituitarybuddy@hotmail.com
Meeting ID: 849 6356 9824
Passcode: 596170
Zoom: https:/zoom.us/join
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Meeting ID: 849 6356 9824
Passcode: 596170
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🎤 Archived Interview: Symptoms and Diagnosis: Cushing’s Message Board Members

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As part of this year’s Cushing’s Awareness Challenge, I’ve decided to share our Interview Series again since there was lots of great info in there.

The series is still going on, so if you’d like to be a part of this, just let me know.  You can fill out this form and check off that you want to do an interview – Add Your Bio

There are currently 89 interviews in our series.  This is the second one:

Robin Smith (staticnrg) hosted as Cushing’s message board members called in to talk about their fight for diagnosis and treatment. Robin opened the show with a brief explanation of what Cushing’s is and what the symptoms are.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/01/10/cushings-members

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＄Growth Hormone Study Opportunity

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Here’s your chance to make your voice heard on Growth Hormone Issues.

Anyone interested would sign up with Rare Patient Voice using the CushingsHelp referral Link. You would then get an email invite to the actual study.
Study Opportunity for Idiopathic Short Stature (ISS) Caregivers
This is a 30 min online survey and Compensation is $50
Please sign up at the link below for more information or to see if you qualify
https://rarepatientvoice.com/CushingsHelp/