Pituitary Tumor Support Group

Please consider joining us for #Pituitary Tumor Support Group on Saturday October 7th, 2023 at 9am to discuss Current and Emerging Medical Therapies in Pituitary Tumor Treatment by Dr. Mahalakshi Honasage, #Endocrinologist, and Dr. Jack Rock, #Neurosurgery.

Virtual and In-Person participation is available.

RSVP to 313-916-1094

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🎤 4th Pituitary Update | Perelman School of Medicine at the University of Pennsylvania

Friday, October 8, 2021

7:45 am – 4:00 pm

OVERVIEW

This conference will present the newest approaches and techniques in the diagnosis and treatment of pituitary adenomas, including acromegaly and Cushing’s disease. Diagnosis and treatment will be covered from the interdisciplinary and interprofessional perspective of endocrinology, radiology, neuro-ophthalmology, neurosurgery, and radiation oncology. Didactic presentations will include case discussions. The conference format, although virtual will provide a significant opportunity for interaction with expert faculty. A simulcast of transsphenoidal surgery will occur throughout the conference with real-time discussion and case review of the progress on the day of surgery, post-op management, surveillance and follow-up care.

Participants will leave with up-to-date, practical information and written resources including: DDAVP stimulation protocol for Cushing’s disease localization, perioperative glucocorticoid and salt-water monitoring protocol, clinic note templates, laboratory testing panels, “Sick Day Rules” letter for patients with adrenal insufficiency.  These materials will have immediate clinical application and help streamline care of pituitary patients at the office and during hospitalizations.

LEARNING OBJECTIVES – CME

Upon completion of this conference, participants should be able to:

  • Evaluate a sellar mass to determine if it is a pituitary adenoma or other lesion
  • Identify the value and limits of MRI in evaluating a sellar mass
  • List the potential and limits of endoscopic transsphenoidal surgery for pituitary adenoma
  • Manage, medically, a patient following endonasal surgery
  • List the different types of radiation, including linear accelerator (IMRT, Cyberknife), gamma radiation, (Gamma Knife) and proton beam
  • Treat, medically, patients who have acromegaly and Cushing’s disease
  • Apply multidisciplinary, interprofessional and interdisciplinary approach in the management of pituitary disease

LEARNING OBJECTIVES – PATIENTS

  • Upon completion of this course patients, families and advocates will be able to:
  • Identify the latest advances in pituitary tumor treatment
  • Demonstrate familiarity with the terminology and technical aspects of pituitary tumor care
  • Demonstrate patient-active behavior in working with the healthcare team to make ongoing treatment decisions

WHO SHOULD ATTEND

This activity has been designed for endocrinologists, neurosurgeons, ophthalmologists, gynecologists, general radiologists, nurse practitioners, nurses, residents and fellows. Additionally, patients and their caregivers, family members, advocates and members of the public who may benefit from understanding current innovative approaches to pituitary tumor care are invited.

For additional information please contact Hyacen Putmon.

Register Now

📞 eSummet: Quality of Life of Pituitary Patients

Register Now! 2nd annual WAPO eSummit March 19 & 20, 2021
World Alliance of Pituitary Organizations represents the voice of 37 patient advocacies around the globe. This event is also translated into Español, there’s something for everyone!

The World Alliance of Pituitary Organizations (‘WAPO’) represents the voice of 37 patient advocacies around the globe.

We seek to empower and improve the Quality of Life of Pituitary Patients, by sharing knowledge and inform you about treatment choices.

By registering to the WAPO eSummit 2021, you will have a unique opportunity to learn about the latest medical research, raise questions and dialogue with international experts on the pituitary gland!

Get involved and register in one of the provided languages.

We are looking forward to meeting you!

For more information visit the link below.

📞 Pituitary Support Meeting Saturday November 14, 2020

From group leader Sharmyn McGraw: Hi All, I hope you can join us on Zoom this Saturday, Nov. 14, 2020 starting at 9:00 a.m. (PST). For those that can’t make it, I will record the meeting and post it later on our Facebook page. I look forward to seeing you!

📅 Pituitary Patient Support Group Saturday March 24, 2018

 

Pituitary Patient Support Group Saturday March 24, 2018
Pejman Cohan, MD 10:00am – 11:45am
Daniel F. Kelly, MD 11:45am – 12:45pm
Lunch 1:00pm – 2:00pm
Family and friends welcome
Please RSVP to Sharmyn Mcgraw
pituitarybuddy@hotmail.com

Pituitary Patient Support Group Meeting

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Pituitary Patient Support Group Meeting!
Saturday–November 19th, 2016
“We will be Live Streaming on Facebook!!!”

Speaker: Garni Barkhoudarian, MD
Topic: “Advancements in Pituitary Surgery-Better Treatments, Better Quality of Life”
Meeting: 10:00am-11:00am
Breakfast Snack will be served 10:00am-11:00am
Lunch will be served 11:30am following the meeting
Family and Friends Welcome!
Please RSVP: Sharmyn McGraw at pituitarybuddy@hotmail.com or message on FB

8th Annual Johns Hopkins Pituitary Patient Day

Johns Hopkins Pituitary Patient Day

Join us on Saturday, September 17, 2016

8th Annual Johns Hopkins Pituitary Patient Day
Saturday, September 17, 2016, 9:30 a.m.
Location:
Johns Hopkins Mt. Washington Conference Center
5801 Smith Avenue
Baltimore, MD 21209
map and directions

This is a free event, but seating is limited. Reserve your space now: Please R.S.V.P. by September 9, 2016 by email (preferred) to PituitaryDay@jhmi.edu  or by calling Alison Dimick at 410-955-3921.

Agenda

9:30 – 9:55 a.m.: Registration

9:55 – 10:00 a.m.: Welcome and Acknowledgements

10:00 – 10:25 a.m.: Different Kinds of Tumors in the Pituitary Area: Non-Functioning, Acromegaly, Cushing, etc. (Roberto Salvatori, M.D.)

10:25 – 10:50 a.m.: The Pituitary Gland, Cortisol and Stress (Gary Wand, M.D.)

10:50 – 11:10 a.m.: A Patient’s Story

11:10 – 11:30 a.m.: The Eye and the Pituitary Gland: Why It’s Important to SEE the Right Doctor (Pun Intended) (Dan Gold, D.O.)

11:30 – 11:50 a.m.: Surgery for Pituitary Tumors: (Not So Scary) Pictures from the Operating Room Treating Acromegaly, Cushing and Non-Functioning Tumors (Gary Gallia, M.D., Ph.D.)

11:50 a.m. – 12:10 p.m.: Coordinating the Care of Pituitary Patients: It Takes a Village (Pituitary Nurse)

12:10 – 12:30 p.m.: Radiation Therapy for Cushing, Acromegaly and Non-Functioning Tumors: A Good Option when Needed (Lawrence Kleinberg, M.D.)

12:30 – 1:25 p.m.: Lunch

1:30 – 3:00 p.m. Round Table Discussions:

  • Medical: Making Sense of So Many Medications
  • Surgical: Meet Surgeons and Patients Who Have Had Pituitary Surgery
  • Radiation: Share Your eX-peRience!

Pituitary Patient Support Group Meeting

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Pituitary Patient Support Group Meeting, Saturday May 28, 2016.

Neuro Endocrine expert Dr. Pejman Cohan will be speaking. “From Diagnosis to Treatments”

There will be time for Q&A and lunch served after the meeting.

Meeting 10:30am-11:45am Lunch 11:45am-1:00pm

Location: John Wayne Cancer Institute- 2nd floor conference room, 2200 Santa Monica Blvd. Santa Monica, CA 90404

Free parking with validation, behind building in the JWCI parking lot.

Please RSVP to Sharmyn at pituitarybuddy@hotmail.com

Download flyer here.