Acromegaly

Research opportunity for Acromegaly and/or Human Growth Hormone Deficiency (GHD) Patients and Caregivers

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We have an opportunity for you to take part in a Acromegaly and Human Growth Hormone Deficiency (GHD) Study for patients and caregivers. Our project number for this study is IQV_6382.

Project Details:

  • Survey is 20-minutes long
  • $35 Reward

Things to Note:

  • We recommend using the web browsers Google Chrome or FireFox
  • Study is open to patients and caregivers
  • Please do not share study links
  • One participant per household only
  • Want to share this opportunity? Let us know and we can provide a new link
  • Please use a laptop/computer ONLY. No smartphones or tablets – Preliminary questions are mobile friendly!
  • Save this email to reference if you have any questions about the study!
  • If you have any problems, email lejla.zonic@rarepatientvoice.com and reference the project number.  

If you are interested in this study, please sign up for Rare Patient Voice here: https://rarepatientvoice.com/CushingsHelp/

Thanks as always for your participation! Please be aware that by entering this information you are not guaranteed that you will be selected to participate. As always, we do not share any of your contact information without your permission.

🎤 4th Pituitary Update | Perelman School of Medicine at the University of Pennsylvania

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Friday, October 8, 2021

7:45 am – 4:00 pm

OVERVIEW

This conference will present the newest approaches and techniques in the diagnosis and treatment of pituitary adenomas, including acromegaly and Cushing’s disease. Diagnosis and treatment will be covered from the interdisciplinary and interprofessional perspective of endocrinology, radiology, neuro-ophthalmology, neurosurgery, and radiation oncology. Didactic presentations will include case discussions. The conference format, although virtual will provide a significant opportunity for interaction with expert faculty. A simulcast of transsphenoidal surgery will occur throughout the conference with real-time discussion and case review of the progress on the day of surgery, post-op management, surveillance and follow-up care.

Participants will leave with up-to-date, practical information and written resources including: DDAVP stimulation protocol for Cushing’s disease localization, perioperative glucocorticoid and salt-water monitoring protocol, clinic note templates, laboratory testing panels, “Sick Day Rules” letter for patients with adrenal insufficiency.  These materials will have immediate clinical application and help streamline care of pituitary patients at the office and during hospitalizations.

LEARNING OBJECTIVES – CME

Upon completion of this conference, participants should be able to:

  • Evaluate a sellar mass to determine if it is a pituitary adenoma or other lesion
  • Identify the value and limits of MRI in evaluating a sellar mass
  • List the potential and limits of endoscopic transsphenoidal surgery for pituitary adenoma
  • Manage, medically, a patient following endonasal surgery
  • List the different types of radiation, including linear accelerator (IMRT, Cyberknife), gamma radiation, (Gamma Knife) and proton beam
  • Treat, medically, patients who have acromegaly and Cushing’s disease
  • Apply multidisciplinary, interprofessional and interdisciplinary approach in the management of pituitary disease

LEARNING OBJECTIVES – PATIENTS

  • Upon completion of this course patients, families and advocates will be able to:
  • Identify the latest advances in pituitary tumor treatment
  • Demonstrate familiarity with the terminology and technical aspects of pituitary tumor care
  • Demonstrate patient-active behavior in working with the healthcare team to make ongoing treatment decisions

WHO SHOULD ATTEND

This activity has been designed for endocrinologists, neurosurgeons, ophthalmologists, gynecologists, general radiologists, nurse practitioners, nurses, residents and fellows. Additionally, patients and their caregivers, family members, advocates and members of the public who may benefit from understanding current innovative approaches to pituitary tumor care are invited.

For additional information please contact Hyacen Putmon.

Register Now

👥 Ohio State Pituitary Patient Symposium, July 13, 2019 – Scholarships Added

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Ohio State Pituitary Patient Symposium – SCHOLARSHIPS

**The PNA has secured additional funding that has allowed us to offer
a limited number of scholarships to pay for the cost of the symposium only.
ACT FAST AND REGISTER TO SECURE YOUR SPOT TODAY! **

Keynote Speaker: Maria Fleseriu, MD FACE

Registration Cost: Individual $40    Save $20 and register for 2: $60

Please email carol@pituitary.org to register!

*This registration is for the Patient Symposium only. The Ohio State University is offering a CME Course separate from our Symposium. For information on the CME course go to ccme.osu.edu

 

OSU Pituitary Symposium Agenda
Saturday, July 13, 2019
Patients and Family’s Track
Gabbe Conference Room – James L045

 

8:00 AM Registration and Breakfast
8:20 AM Welcoming Remarks and Introductions: The OSU Skull Base and Pituitary Team
Lawrence Kirschner, MD, PhD
OSUCCC – James
8:30 AM Hypopituitarism: Pitfalls and Recommendations
Maria Fleseriu, MD, FACE
Oregon Health and Science University
9:00 AM Trans-sphenoidal Approach: What to Expect? Post-Operative Complications
Richard Carrau, MD
OSUCCC – James
9:30 AM Acromegaly: Why it Takes That Long to Diagnose? What are the Options?
Lawrence Kirschner, MD, PhD
OSUCCC – James
10:00 AM Round Table Q & A
10:15 AM Mid-Morning Break
10:30 AM Growth Hormone Deficiency: Journey to Adulthood
Robert Hoffman
Nationwide Children’s Hospital
11:00 AM Radiation Therapy? Difference Between Modalities and Possible Risks
Dukagjin M Blakaj, MD, PhD
OSUCCC – James
11:30 AM Round Table Q & A
11:45 AM Lunch Break and Patient’s Journey
12:45 AM Surgical Approach: What to Expect
Daniel Prevedello, MD
Douglas Hardesty, MD
OSUCCC – James
1:15 PM Visual Complications of Pituitary/Sellar Lesion? Predictors of Outcome
Abbe Craven, MD
OSUCCC – James
1:45 PM Round Table Q & A
2:00 PM Pituitary Trivia
Luma Ghalib, MD
Brian Lee
OSUCCC – James
2:30 PM Pituitary Dysfunction: Effect on Mental Health and Family
William Malarkey, MD
OSUCCC – James
3:00 PM Recovering from Trans-sphenoidal Surgery, Challenges for the Patient and their Families
Traci Douglass, RN
OSUCCC – James
3:30 PM Pituitary Network Association: Cushing’s Disease: Psychological Research and Clinical Implications
Jessica Diller Kovler, AM, MA, PhD
PNA Board Member
4:00 PM Closing Remarks
4: 15 PM Adjourn

👥 Ohio State Pituitary Patient Symposium, July 13, 2019

MaryO Interviews, Meetings and Conferences , , , , , , , , ,

Keynote Speaker: Maria Fleseriu, MD FACE

Registration Cost: Individual $40    Save $20 and register for 2: $60

Please email carol@pituitary.org to register!

*This registration is for the Patient Symposium only. The Ohio State University is offering a CME Course separate from our Symposium. For information on the CME course go to ccme.osu.edu

 

OSU Pituitary Symposium Agenda
Saturday, July 13, 2019
Patients and Family’s Track
Gabbe Conference Room – James L045

 

8:00 AM Registration and Breakfast
8:20 AM Welcoming Remarks and Introductions: The OSU Skull Base and Pituitary Team
Lawrence Kirschner, MD, PhD
OSUCCC – James
8:30 AM Hypopituitarism: Pitfalls and Recommendations
Maria Fleseriu, MD, FACE
Oregon Health and Science University
9:00 AM Trans-sphenoidal Approach: What to Expect? Post-Operative Complications
Richard Carrau, MD
OSUCCC – James
9:30 AM Acromegaly: Why it Takes That Long to Diagnose? What are the Options?
Lawrence Kirschner, MD, PhD
OSUCCC – James
10:00 AM Round Table Q & A
10:15 AM Mid-Morning Break
10:30 AM Growth Hormone Deficiency: Journey to Adulthood
Robert Hoffman
Nationwide Children’s Hospital
11:00 AM Radiation Therapy? Difference Between Modalities and Possible Risks
Dukagjin M Blakaj, MD, PhD
OSUCCC – James
11:30 AM Round Table Q & A
11:45 AM Lunch Break and Patient’s Journey
12:45 AM Surgical Approach: What to Expect
Daniel Prevedello, MD
Douglas Hardesty, MD
OSUCCC – James
1:15 PM Visual Complications of Pituitary/Sellar Lesion? Predictors of Outcome
Abbe Craven, MD
OSUCCC – James
1:45 PM Round Table Q & A
2:00 PM Pituitary Trivia
Luma Ghalib, MD
Brian Lee
OSUCCC – James
2:30 PM Pituitary Dysfunction: Effect on Mental Health and Family
William Malarkey, MD
OSUCCC – James
3:00 PM Recovering from Trans-sphenoidal Surgery, Challenges for the Patient and their Families
Traci Douglass, RN
OSUCCC – James
3:30 PM Pituitary Network Association: Cushing’s Disease: Psychological Research and Clinical Implications
Jessica Diller Kovler, AM, MA, PhD
PNA Board Member
4:00 PM Closing Remarks
4: 15 PM Adjourn

👥 Stanford Pituitary Patient Education Day

MaryO Helpful Doctors, Interviews, Meetings and Conferences , , , , , , , , , , , ,

The Stanford Pituitary Center invites patients with pituitary disease, their family and friends to Stanford’s Pituitary Patient Education Day!

May 18, 2019 at the Sheraton Palo Alto Hotel
625 El Camino Real
Palo Alto, CA 94301 
USA

Registration Contact:

Jennie Visitacion
E: JennieV@Stanford.edu
Ph: 650-725-4715

Topics and Breakout Sessions:

  • Function of the pituitary gland
  • General review of pituitary tumors
  • Endoscopic endonasal surgery for pituitary tumors
  • Quality of life after endonasal surgery
  • Radiation therapy for pituitary tumors
  • Cushing’s Disease, prolactinoma, and acromegaly
  • Hypopituitarism therapy and growth hormone deficiency

Speakers:

  • Olivia Chu, NP, Nurse Practitioner
  • Robert Dodd, MD, Associate Professor of Neurosurgery
  • Juan Fernandez-Miranda, MD, Professor of Neurosurgery
  • Andrew Hoffman, MD, Professor of Medicine
  • Peter Hwang, MD, Professor of Otolaryngology
  • Laurence Katznelson, MD, Professor of Neurosurgery and Medicine
  • Erin Wolff, NP, Nurse Practitioner

Course Directors:

Dr. Juan C. Fernandez Miranda

Juan C. Fernandez-Miranda, MD, FACS
Professor of Neurosurgery, and by Courtesy, of Otolaryngology – Head & Neck Surgery
Co-Director, Stanford Skull Base Surgery Program

Dr. Laurence Katznelson

Laurence Katznelson, MD
Professor of Neurosurgery and of Medicine (Endocrinology)
Medical Director, Pituitary Center

Webinar: Growth Hormone Replacement: Not Just for Kids?

MaryO Interviews, Meetings and Conferences , , , , , , , ,

Thu, Mar 23, 2017 12:00 PM – 1:00 PM EDT

Presented by:

Susan L Samson MD PhD FRCPC FACE
Associate Professor, Department of Medicine
Medical Director, Pituitary Center at Baylor St. Luke’s Medical Center

Learning Objectives: At the end of the session the learner will be able to:

1) Discuss the testing approaches for confirmation of growth hormone deficiency in adult patients with pituitary disease
2) Understand the far reaching effects of growth hormone throughout the body
3) Describe the potential benefits and adverse effects of growth hormone replacement therapy in appropriate patients

Presenter Bio:

Susan L. Samson MD PhD FRCPC FACE is an Associate Professor of Medicine and Neurosurgery at Baylor College of Medicine in Houston, Texas. She is originally from Canada and completed her medical degree at Queen’s University (Kingston, Ontario) and Internal Medicine training in her hometown of Calgary, Alberta. She moved to Baylor for Endocrinology fellowship training and then joined the faculty. She is the Medical Director of the Pituitary Center at Baylor St. Luke’s Medical Center where she is part of a multidisciplinary team – with Dr. Daniel Yoshor (Neurosurgery) and Dr. Mas Takashima (Otolaryngology)- who are committed to excellence in surgical and clinical outcomes for pituitary patients. She currently serves on the board of directors of the American Association of Clinical Endocrinologists and is a member of the Neuroendocrine and Pituitary Scientific committee. She also is involved in training future endocrinologists as the Endocrinology fellowship program director. Dr. Samson has a basic science lab and has also been involved as a site principal investigator for pharmaceutical clinical trials of therapies for pituitary disorders. She has been awarded the Fulbright and Jaworski L.L.P. Faculty Excellence Award for Teaching and Evaluation as well as the Rising Star award at Baylor College of Medicine. Her major clinical interest is pituitary disorders including pituitary adenomas, hypopituitarism, Cushing’s disease and Acromegaly.

Register at https://attendee.gotowebinar.com/register/6691253214341976066?utm_source=newsletter_232&utm_medium=email&utm_campaign=webinar-announcement-growth-hormone-replacement-not-just-for-kids

8th Annual Johns Hopkins Pituitary Patient Day

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Johns Hopkins Pituitary Patient Day

Join us on Saturday, September 17, 2016

8th Annual Johns Hopkins Pituitary Patient Day
Saturday, September 17, 2016, 9:30 a.m.
Location:
Johns Hopkins Mt. Washington Conference Center
5801 Smith Avenue
Baltimore, MD 21209
map and directions

This is a free event, but seating is limited. Reserve your space now: Please R.S.V.P. by September 9, 2016 by email (preferred) to PituitaryDay@jhmi.edu  or by calling Alison Dimick at 410-955-3921.

Agenda

9:30 – 9:55 a.m.: Registration

9:55 – 10:00 a.m.: Welcome and Acknowledgements

10:00 – 10:25 a.m.: Different Kinds of Tumors in the Pituitary Area: Non-Functioning, Acromegaly, Cushing, etc. (Roberto Salvatori, M.D.)

10:25 – 10:50 a.m.: The Pituitary Gland, Cortisol and Stress (Gary Wand, M.D.)

10:50 – 11:10 a.m.: A Patient’s Story

11:10 – 11:30 a.m.: The Eye and the Pituitary Gland: Why It’s Important to SEE the Right Doctor (Pun Intended) (Dan Gold, D.O.)

11:30 – 11:50 a.m.: Surgery for Pituitary Tumors: (Not So Scary) Pictures from the Operating Room Treating Acromegaly, Cushing and Non-Functioning Tumors (Gary Gallia, M.D., Ph.D.)

11:50 a.m. – 12:10 p.m.: Coordinating the Care of Pituitary Patients: It Takes a Village (Pituitary Nurse)

12:10 – 12:30 p.m.: Radiation Therapy for Cushing, Acromegaly and Non-Functioning Tumors: A Good Option when Needed (Lawrence Kleinberg, M.D.)

12:30 – 1:25 p.m.: Lunch

1:30 – 3:00 p.m. Round Table Discussions:

  • Medical: Making Sense of So Many Medications
  • Surgical: Meet Surgeons and Patients Who Have Had Pituitary Surgery
  • Radiation: Share Your eX-peRience!