❣️Happy 18th Birthday Cushing’s Help!

It’s unbelievable but the idea for Cushing’s Help and Support arrived 18 years ago late last night. I was talking with my dear friend Alice, who ran a wonderful menopause site called Power Surge, wondering why there weren’t many support groups online (OR off!) for Cushing’s and I wondered if I could start one myself and we decided that I could.

Thanks to a now-defunct Microsoft program called FrontPage, the first one-page “website” (http://www.cushings-help.com) first went “live” July 21, 2000 and the message boards September 30, 2000.

All our Cushing’s-related sites:

 

❣️We’re almost 18!

happybirthday-2015

It’s unbelievable but the idea for Cushing’s Help and Support arrived 18 years ago tonight.  That’s a long time for anything online.

I was talking with my dear friend Alice, who ran a wonderful menopause site called Power Surge, wondering why there weren’t many support groups online (OR off!) for Cushing’s and I wondered if I could start one myself and we decided that I could.

The first website (http://www.cushings-help.com) first went “live” July 21, 2000 and the message boards September 30, 2000. Hopefully, with these sites, I’m making some helpful differences in someone else’s life!

The message boards are very active and we have weekly online text chats, occasional live interviews, local meetings, email newsletters, a clothing exchange, a Cushing’s Awareness Day Forum, podcasts, phone support and much more.

Whenever one of the members of the boards gets into NIH, I try to go to visit them there. Other board members participate in the “Cushie Helper” program where they support others with one-on-one support, doctor/hospital visits, transportation issues and more.

Of course, we now have a Facebook page and 2 groups.  Both are secret, so if you want to join, please email or PM me for an invitation.

Other sites in the Cushing’s Help “Family”

 

maryo colorful zebra

📞 Theodore Friedman Webinar on Nuances of Diagnosing and Treating Hypothyroidism

TOPICS TO BE DISCUSSED INCLUDE:

 

  • HOW IMPORTANT IS THE TPO ANTIBODY IN THE DIAGNOSIS OF HYPOTHYROIDISM?

  • WHAT DOES IT MEAN TO HAVE HASHIMOTO’S?

  • WHICH THYROID MEDICINE IS THE BEST?

  • WHAT IS THE DIFFERENCE BETWEEN DESICCATED THYROID AND SYNTHETIC THYROID HORMONES?

  • WHAT ABOUT TAKING ONLY T3?

  • IS RT3 IMPORTANT?

  • IS DIET IMPORTANT IN PATIENTS WITH HYPOTHYROIDISM?

 

SUNDAY • JULY 29TH • 6 PM PST

 

Click here to join the meeting or
https://axisconciergemeetings.webex.com/axisconciergemeetings/j.php?MTID=m2b7d2348ee2683a5022761e3e5945087
OR
Join by phone: (855) 797-9485
Meeting Number (Access Code): 287 970 949, Meeting Password: hormone

Your phone/computer will be muted on entry. There will be plenty of time for questions using the chat button.
For more information, email us at mail@goodhormonehealth.com.

📞 Webinar: Cushing’s Disease: Recent Advances in Medical Therapy

Presented by

Eliza Geer, MD
Medical director, Multidisciplinary Pituitary & Skull Base Tumor Center
Associate Attending, Endocrine Service
Memorial Sloan Kettering Cancer Center

After registering you will receive a confirmation email with details about joining the webinar.

Contact us at webinar@pituitary.org with any questions or suggestions.

Date: Wednesday, July 18, 2018
Time: 10:00 AM – 11:00 AM Pacific Daylight Time 1:00 PM – 2:00 PM Eastern Daylight Time

Webinar Description:

Learning Objectives:

Review Cushing’s disease treatment guidelines

Evaluate currently available medical therapies for Cushing’s disease

Discuss new therapies in clinical trials

Presenter Bio:

Dr. Geer is an endocrinologist who specializes in caring for people with pituitary and neuroendocrine diseases. She is the Medical Director of Memorial Sloan Kettering’s Multidisciplinary Pituitary & Skull Base Tumor Center, located at Memorial Hospital in Manhattan. Their multidisciplinary pituitary team provides personalized surgical and medical treatment for people with pituitary and skull base tumors, including prolactinomas, growth-hormone secreting adenomas (acromegaly), and Cushing’s disease. Their overall goal is to improve and advance the care of people with these conditions.

Dr. Geer’s research interests focus on achieving a better understanding of how and why pituitary tumors develop, and characterizing long-term outcomes in patients with Cushing’s disease. She has conducted a number of studies investigating body composition, adipose tissue regulation, and appetite in patients with Cushing’s disease, and she is involved in clinical trials investigating new medical therapies for patients with Cushing’s and acromegaly.

Dr. Geer completed her internship and residency at the NewYork-Presbyterian Hospital/Columbia Medical Center. She was a fellow in endocrinology and metabolism at the Icahn School of Medicine/Mount Sinai Medical Center, after which she was a member of the faculty for ten years. She is currently an associate professor of medicine and an active member of the Endocrine Society, the Pituitary Society, the Pituitary Network Association and the American Association of Clinical Endocrinologists.

💊 Top Doctors Receiving Payments From Corcept, makers of Korlym

 

Top Doctors Receiving Payments From this Company

Totals listed account for all payments from August 2013 to December 2016.

DOCTOR PAYMENTS
PEJMAN COHAN

Endocrinology, Diabetes & Metabolism

BEVERLY HILLS, CA

$116K
RICHARD AUCHUS

Internal Medicine

ANN ARBOR, MI

$50,682
TODD FRIEZE

Endocrinology, Diabetes & Metabolism

BILOXI, MS

$40,012
ALAN COHEN

Endocrinology, Diabetes & Metabolism

MEMPHIS, TN

$38,156
AMIR HAMRAHIAN

Endocrinology, Diabetes & Metabolism

CLEVELAND, OH

$36,287
KIMBERLEY BOURNE

Endocrinology, Diabetes & Metabolism

ORLANDO, FL

$35,485
JAMES FINDLING

Endocrinology, Diabetes & Metabolism

MENOMONEE FALLS, WI

$31,486
TY CARROLL

Endocrinology, Diabetes & Metabolism

MENOMONEE FALLS, WI

$28,499
KEVIN YUEN

Endocrinology, Diabetes & Metabolism

SEATTLE, WA

$27,553
JOHN PARKER

Endocrinology, Diabetes & Metabolism

WILMINGTON, NC

$21,878

Top Teaching Hospitals Receiving Payments From this Company

Totals listed account for all payments from August 2013 to December 2016.

HOSPITAL PAYMENTS
HOSPITAL OF THE UNIV OF PENNA

PHILA, PA

$10,000
UNIVERSITY OF LOUISVILLE HOSPITAL

LOUISVILLE, KY

$5,000
UNIV OF MI HOSPITALS & HLTH CTRS

ANN ARBOR, MI

$5,000
CEDARS-SINAI MEDICAL CENTER

LOS ANGELES, CA

$4,550
UNIV OF MISSOURI HEALTH CARE

COLUMBIA, MO

$3,183
LANGLEY PORTER PSYCHIATRIC HOSPTIAL

SAN FRANCISCO, CA

$3,000
NATIONAL JEWISH HEALTH

DENVER, CO

$2,500
TEMPLE UNIVERSITY HOSPITAL

PHILADELPHIA, PA

$2,000
THE MOUNT SINAI HOSPITAL.

NEW YORK, NY

$2,000
ADVOCATE LUTHERAN GENERAL HOSPITAL

PARK RIDGE, IL

$1,700

 

See if your doctor is making money from this drug here:
https://projects.propublica.org/docdollars/company/corcept-therapeutics