Thanks for being there for many of us. Including Me. ALWAYS a Positive inspiration. Thx for the past 4.fb Anniversary years. Stick around many more . Hugs and Smiles ALWAYS to U and urs.
Thank the gods, you have saved so many of us xxx
These came up in my Facebook Memories from this date in 2009!
Just wanted to add much love and thanks for everything you have done. You probably don’t even know how many lives you have touched, and saved! Although I don’t have an official diagnosis yet, I did find out about being GH deficient so if I ever get insurance to cooperate hopefully that will improve symptoms. Thanks again:)
On my Facebook timeline, from the past
I love the new look for the site!
WOW! You have been through so much. It is a miracle to me that you have as good of an attitude as you do. I think if this had been me, either I would have given up by now or be in a psychiatric ward due to anxiety and panic attacks. You are amazing!
From the comments at https://cushingsbios.com/2017/06/21/maryo-growth-hormone-update/
Please help me if you can. I really enjoy and am grateful for this group. I’ve learned so much and I now know I’m not alone with this disease. Thank you for your time.
From my email.
Hi everyone! I would first like to say how happy i am that this website exists it makes me feel so much better that others have gone through what i am currently experiencing and have made amazing recoveries!
i am so scared and hope to support others and find support through this amazing site! Thank you 🙂
From Victoria’s bio
I found out last week I have Cushing’s disease & before finding your blog I found nearly nada on the serious health condition that’s taken over me- but i’m so thankful for you& your sharing your personal journey along with all the intel, articles, advice, medical breakthroughs, personal experiences anecdotal stories and more as I feel I have an Allie in this battle I’ve just begun & I felt completely alone until now- thanks to you
From the comments area of https://cushieblog.com/2017/01/28/imaging-technique-measures-tumor-stiffness-to-aid-surgical-planning/
thanks for blazing the path for cushing’s patients. It never goes unnoticed how many people you have helped.
From my PMs
You have provided an invaluable service to many, many people with Cushing’s and other Cushing’s-like diseases and syndromes. I have a very dear friend I met on the Boards. I’m sorry you have had to use your own money to maintain the site, but in it’s time, it has made a huge difference in the lives of many people. It has always been an open Board, where one can go to find information, but you are right in stating that many fb pages have been created for people with Cushing’s, Addison’s and what have you. Often, you have to be “referred” or “invited” in order to enter those sites, though.
You have been a pioneer in this field and you created an avenue for people to find information, when it was often withheld by the medical profession as proprietary. Thank you so much for all you have done.
Susan from the Seattle area
From the Cushing’s Help message boards
Thank you Mary O’Conner for your compassion and dedicated personal time for this site. I’m certain you have helped a large number of people. I am blessed to have discovered your site. Thank you for listening and responding to all inquiries.
On the Cushing’s Help boards.
I am hoping that a solution can be found to keep this website open. It has so much knowledge for so many undiagnosed cushies and holds too many memories for me. No where else can I look to find “In Memory” for all the cushie friends I’ve met and known for so many years. it is almost like a high school yearbook. I am not on any other social media.
You have touched so many thousands of peoples lives with this site.
Jayne, on the Cushing’s Help message boards