Donna

I just wanted to thank you for your willingness to help me during this difficult time in my life. This has been by far the worst thing that’s ever happened to me in my life. I especially appreciate the help of your website. I have learned so much from other people’s experiences both good and bad. Thank you for all that you do to help others. ((:

~ On the Message Boards

Jessica H

Today is National Cushing’s Awareness Day.

My story with Cushing’s has been shared before. I was laughed at, ridiculed, and told to “diet and exercise” for many, many years by doctors who had no clue what I had. I had no clue. It took over 25 years with this disease before I finally saw a doctor who cared and helped me. I had Cushing’s Disease. Now to fix my new health issues I have a secondary form of Cushing’s bit thanks to Mary Kelly O’Connor and the support she has created for thousands of people I am stronger and ready for the fight.

Why do we share? Because there are a lot of people with this disease who have doctors like I had. Very few doctors even have half a clue what Cushing’s is. They look at the symptoms separately and do not put them all together into the whole disease. Nor do most doctors know how to test for it. Or how to read those tests. Let us know if you need help.

~ From Facebook