Lili

Mary, I’d like to stay active on your site.  I’ve learned so much that helped prepare me for the doctors appointments and the procedures that I’d like to give back anything I can in the way of my experience of living with the symptoms and not knowing what was wrong with me to fighting for a diagnosis to the cure…

I just know I am grateful to you and this site.

From Lili’s bio

Sally C

I just realized with Facebook I haven’t been here now for years. Mary saved my life with her site and I had so many good times with her in real life. I did a search to see if old Penelopee was still here and she is :) perhaps some new people can enjoy the craziness of Cushies at Sea :)

From the Message Boards

Donna

I just wanted to thank you for your willingness to help me during this difficult time in my life. This has been by far the worst thing that’s ever happened to me in my life. I especially appreciate the help of your website. I have learned so much from other people’s experiences both good and bad. Thank you for all that you do to help others. ((:

~ On the Message Boards

Jessica H

Today is National Cushing’s Awareness Day.

My story with Cushing’s has been shared before. I was laughed at, ridiculed, and told to “diet and exercise” for many, many years by doctors who had no clue what I had. I had no clue. It took over 25 years with this disease before I finally saw a doctor who cared and helped me. I had Cushing’s Disease. Now to fix my new health issues I have a secondary form of Cushing’s bit thanks to Mary Kelly O’Connor and the support she has created for thousands of people I am stronger and ready for the fight.

Why do we share? Because there are a lot of people with this disease who have doctors like I had. Very few doctors even have half a clue what Cushing’s is. They look at the symptoms separately and do not put them all together into the whole disease. Nor do most doctors know how to test for it. Or how to read those tests. Let us know if you need help.

~ From Facebook