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Victoria

Hi everyone! I would first like to say how happy i am that this website exists it makes me feel so much better that others have gone through what i am currently experiencing and have made amazing recoveries!

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i am so scared and hope to support others and find support through this amazing site! Thank you 🙂

From Victoria’s bio

msmuzikblog

I found out last week I have Cushing’s disease & before finding your blog I found nearly nada on the serious health condition that’s taken over me- but i’m so thankful for you& your sharing your personal journey along with all the intel, articles, advice, medical breakthroughs, personal experiences anecdotal stories and more as I feel I have an Allie in this battle I’ve just begun & I felt completely alone until now- thanks to you

From the comments area of https://cushieblog.com/2017/01/28/imaging-technique-measures-tumor-stiffness-to-aid-surgical-planning/

Susan (SDSather)

Mary O,

You have provided an invaluable service to many, many people with Cushing’s and other Cushing’s-like diseases and syndromes. I have a very dear friend I met on the Boards. I’m sorry you have had to use your own money to maintain the site, but in it’s time, it has made a huge difference in the lives of many people. It has always been an open Board, where one can go to find information, but you are right in stating that many fb pages have been created for people with Cushing’s, Addison’s and what have you. Often, you have to be “referred” or “invited” in order to enter those sites, though.

You have been a pioneer in this field and you created an avenue for people to find information, when it was often withheld by the medical profession as proprietary. Thank you so much for all you have done.

Susan from the Seattle area

From the Cushing’s Help message boards

Jayne

I am hoping that a solution can be found to keep this website open. It has so much knowledge for so many undiagnosed cushies and holds too many memories for me. No where else can I look to find “In Memory” for all the cushie friends I’ve met and known for so many years. it is almost like a high school yearbook. :) I am not on any other social media.

You have touched so many thousands of peoples lives with this site.

Jayne, on the Cushing’s Help message boards

Rissa

I haven’t been on here for awhile and like others said, this site is a godsend Mary! I come back every once in awhile when I’m looking for more answers. Thank you so much for this site. So many people here have offered advice and friendship. I am grateful for it.

From the Message Boards

Anonymous

If it wasn’t for MaryO’s hard work in creating an online community I don’t know if I’d have made it through all these years. She’s a behind the scenes kind of person, she doesn’t ask for much and often winds up on the periphery but despite her own health challenges she gives and gives and gives and has helped thousands of people.”

From http://info.wegohealth.com/hero-2011 (page no longer exists)

EPIC Foundation

Cushing’s survivor Mary Kelly O’Connor has dedicated the last two decades of her life giving back in a mighty way! She pioneered community building through social media and was the first advocate to help increase awareness as well as create a space for others to learn more about their illness as well as share with others. She continues to do this tremendous work and offers valuable resources to the community and their loved ones.

http://www.cushings-help.com

From http://www.epictogether.org/resources-2/