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April 12, 2019 MaryO

I give thanks for all of you daily as I have hope now that persistence will pay off and I’ll have a diagnosis soon, and I wouldn’t have ever been able to have that hope without this site! Thank you MaryO!!

~ From the Message Boards

📰 Catastrophic ACTH-secreting Pheochromocytoma
Cushing’s syndrome due to ectopic adrenocorticotropic hormone (ACTH) secretion (EAS) by a pheochromocytoma is a challenging condition.
🖤 In Memory: Thomas F. Zachman ~ 1950-2010
Thomas “Tommy” F. Zachman, of Windsor, formerly of Toledo, Ohio, died suddenly and unexpectedly at University Hospital in Denver on June 3, 2010, complications of Cushing's Syndrome.
📰 Ketoconazole As Second-Line Treatment for Cushing’s Disease After Transsphenoidal Surgery
The first-line treatment for Cushing’s disease is transsphenoidal surgery for pituitary tumor resection. Ketoconazole has been used as a second-line drug despite limited data on its safety and efficacy for this purpose.
🖤 In Memory of Sherry Carlson ~ May 30, 2020
Sherry passed away, naturally and peacefully in her sleep. She loved her community and we know how grateful she was to every one of her friends on here for the genuine love and support she’s received over the years.
📰 Seliciclib for the Treatment of Cushing’s Disease Targeting Pituitary
Seliciclib (R-roscovitine) has been shown in preclinical studies to inhibit neoplastic corticotroph proliferation and the production of adrenocorticotropic hormone (ACTH) in the pituitary gland. Therefore, for a study, researchers sought to investigate the effectiveness of seliciclib as a pituitary-targeting treatment for patients with Cushing’s disease (CD).
‼️ Message Board Upgrade Done
Among other things, we now have Introducing Courses Courses is a new, lightweight learning platform designed to help you provide a new learning experience for your members. Courses are perfect for requiring your community to read and understand documentation and to deliver training and lessons to your community.
‼️ Solu-Cortef® Shortage
Pfizer has been experiencing a supply issue for our life saving drug Solu-Cortef® and many in our community have been unable to find it. According to Pfizer they will soon be back to "normal" production rates. (projected end of June) However, we understand that some of you are still unable to fill your prescriptions and […]
✍️ Follow HappyGirl's BLA Journey
May 28th will be 3 months post bla. Still heading in the right direction weight wise! Woot! My highest cushie weight was 312 on my lil 5 ft 6 frame.
‼️ Message Board Upgrade (and new features!) Coming this Weekend
Version 4.7.10 of Invision Community is now available This is our May maintenance release. Key changes include: Introducing Courses Giving you control with Email Bounce Management
✍️ Comment added to Deborah S, Undiagnosed Bio
I have exactly the same problem, diagnosed with pots but think it’s cushings – did you ever get an outcome?

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