This came up in the comments to https://cushingsbios.com/2018/11/17/jayne-in-the-media/
The question is
I dropped by this site because my friend’s daughter has Cushings and I wanted to learn more. Is there any chance that Cushings might be manageable or improvable in a way similar to what Izabella Wentz proposes for Hashimotos?
What do you think?
Slowly but surely, we’re rebuilding the Cushing’s Member Map. The location where we hosted it previously started charging huge amounts of money, so it’s being moved here.
Add your information (or your doctor’s) at https://cushingsbios.com/2018/10/28/we-have-a-new-bio-form/ or below:
This question came up on the message boards today: Anyone ever used a Rife Machine on Cushings syndrome?
My response:
I don’t think so – this is the first I have heard of a Rife Machine so I looked it up and found this info:
Quote
Anyone else? Have you heard of this for Cushing’s?
Frantbri, are you going to try it? If so, please keep us posted!
It would be great if something like this worked.
If you can help, please respond here or on the Message Boards. Thanks!
I have many symptoms of cushings, I have used cloatasol propionate for about 5 years for my chronic eczema I was on oral steroids in July then high dose steroids again in September. thejuly in July it was for a severe eczema breakout and in September it was for sudden hearing loss. Now I need a hearing aid. I seen one place after googling that connects cushings with sudden hearing loss. Has anyone dealt with this?
Jess asks on the Message Boards:
Hello, – a little back story. I have a 15 year old son who over the past couple of years has gained 60 pounds and has increasingly become angry, depressed, anxious- to the point where he was having thoughts of suicide. We went to a behavioral health specialist who put him on anti-anxiety meds, but his aggression has become worse and worse. I literally found myself last week saying, never in my life would I think this kid would act so violently towards me or his siblings. He was a good, sensitive kid. His mood can change in the blink of an eye. He also is very withdrawn and anxious to the point where he now does online school. We have contributed all of this to puberty and life experiences, just typical teenage stuff… but last week, when i was able to actaully have him come out of his room… i noticed a “lump” on the top of back, base of the neck. I am not sure if a buffalo hump can be caused by playing video games and sitting in a computer chair for 18 hours a day? Or if this is considered a buffalo hump??
Respond to Jess here: http://cushings.invisionzone.com/topic/54467-cushings-in-15-yo-male
Donna Asked:
Can someone please help me? Over the past few years I have gained over 40 lbs, suffer from extreme fatigue, muscle cramps, headaches, just to name a few. I also have a hump between my shoulders. I have gone to see my primary care physician and asked about Cushing’s syndrome and she said that there’s just no way I could have this because it is so rare. I asked for a referral to see a endocrinologist and she finally agreed. After doing some research on this debilitating disease, I am convinced that I am it’s next victim. I am so scared. What can I expect from this endo appointment?
Please respond here or on the message boards at http://cushings.invisionzone.com/topic/54455-please-help/?page=0#comment-474250
We have a new form to add your own bio!
Try it out below…
Thank you for submitting your bio – sometimes it takes a day or so to get them formatted for the website and listed on the pages where new bios are listed.
If you are planning to check the button that reads “Would you like to be considered for an interview? (Yes or No)” please be sure to read the Interview Page for information on how these interviews work.
Please do not ask people to email you answers to your questions. Your question is probably of interest to other Cushing’s patients and has already been asked and answered on the Message Boards.
Occasionally, people may comment on your bio. To read your bio and any comments, please look here for the date you submitted yours and click on the link.
