Guest Question from the message boards: Low TSH, Low FT4, buffalo hump and many other symptoms
Can You Help?
❓What Do *You* Think?
This came up in the comments to https://cushingsbios.com/2018/11/17/jayne-in-the-media/
The question is
I dropped by this site because my friend’s daughter has Cushings and I wanted to learn more. Is there any chance that Cushings might be manageable or improvable in a way similar to what Izabella Wentz proposes for Hashimotos?
What do you think?
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Slowly but surely, we’re rebuilding the Cushing’s Member Map. The location where we hosted it previously started charging huge amounts of money, so it’s being moved here.
Add your information (or your doctor’s) at https://cushingsbios.com/2018/10/28/we-have-a-new-bio-form/ or below:
❓Guest Question: Rife Machine
This question came up on the message boards today: Anyone ever used a Rife Machine on Cushings syndrome?
My response:
I don’t think so – this is the first I have heard of a Rife Machine so I looked it up and found this info:
Quote
Anyone else? Have you heard of this for Cushing’s?
Frantbri, are you going to try it? If so, please keep us posted!
It would be great if something like this worked.
❓Guest Question: Sudden Hearing Loss
If you can help, please respond here or on the Message Boards. Thanks!
I have many symptoms of cushings, I have used cloatasol propionate for about 5 years for my chronic eczema I was on oral steroids in July then high dose steroids again in September. thejuly in July it was for a severe eczema breakout and in September it was for sudden hearing loss. Now I need a hearing aid. I seen one place after googling that connects cushings with sudden hearing loss. Has anyone dealt with this?
❓Guest Question: Cushing’s in 15 year old male
Jess asks on the Message Boards:
Hello, – a little back story. I have a 15 year old son who over the past couple of years has gained 60 pounds and has increasingly become angry, depressed, anxious- to the point where he was having thoughts of suicide. We went to a behavioral health specialist who put him on anti-anxiety meds, but his aggression has become worse and worse. I literally found myself last week saying, never in my life would I think this kid would act so violently towards me or his siblings. He was a good, sensitive kid. His mood can change in the blink of an eye. He also is very withdrawn and anxious to the point where he now does online school. We have contributed all of this to puberty and life experiences, just typical teenage stuff… but last week, when i was able to actaully have him come out of his room… i noticed a “lump” on the top of back, base of the neck. I am not sure if a buffalo hump can be caused by playing video games and sitting in a computer chair for 18 hours a day? Or if this is considered a buffalo hump??
Respond to Jess here: http://cushings.invisionzone.com/topic/54467-cushings-in-15-yo-male
❓Guest Question: Upcoming Endo Appointment
Donna Asked:
Can someone please help me? Over the past few years I have gained over 40 lbs, suffer from extreme fatigue, muscle cramps, headaches, just to name a few. I also have a hump between my shoulders. I have gone to see my primary care physician and asked about Cushing’s syndrome and she said that there’s just no way I could have this because it is so rare. I asked for a referral to see a endocrinologist and she finally agreed. After doing some research on this debilitating disease, I am convinced that I am it’s next victim. I am so scared. What can I expect from this endo appointment?
Please respond here or on the message boards at http://cushings.invisionzone.com/topic/54455-please-help/?page=0#comment-474250
I have been struggling with progressive symptoms of extreme fatigue, muscle weakness, increased anxiety and depression, rage, acne, weight gain, and sweating just doing small tasks over the last 3 to 4 years. I also have a very hard time controlling my body temperature. I get really cold, turn the heat up, get really hot, turn the heat down, over and over throughout the day. (I’m 36 years old) If I’m sitting I’m freezing. If I’m up moving I’m on fire and sweating. Just such dramatic ends of the spectrum. Anyway, for a long time my GP was only checking my TSH. (Hypothyroidism runs strong in my family). My TSH has always been on the low end of normal. I was feeling so awful, I insisted they were missing something and asked them to check my FT4. That has also always ran at the lower end of normal. They treat me with Levothyroxine to try to increase my FT4, but in doing so, cause my TSH to go even lower. I googled what it meant to have a Low TSH with a low FT4 and it said it could be hypothyroidism caused by a pituitary tumor. I then came across Cushing’s which started showing pictures of the classic “buffalo hump” and my jaw hit the floor.
About a month ago, I caught myself in profile in my mirror and was completely taken aback by my appearance. My husband and I aren’t sure how long my neck has looked this way. Either way I was just wondering what others thoughts were. My GP has ordered some kind of cortisol test thus far that I’ll go for tomorrow. I would also like an MRI of my pituitary and possibly adrenals. I’m just tired of sleeping my life away and have been searching for answers for so long. Please let me know what you think of the hump.
Are there other causes for this appearance? Thanks