❓Guest Question: Rife Machine

This question came up on the message boards today: Anyone ever used a Rife Machine on Cushings syndrome?

My response:

I don’t think so – this is the first I have heard of a Rife Machine so I looked it up and found this info:

Quote

American scientist Royal Raymond Rife invented the Rife machine. It produces an energy similar to radio waves.

Rife’s machine built on the work of Dr. Albert Abrams. Abrams believed every disease has its own electromagnetic frequency. He suggested doctors could kill diseased or cancerous cells by sending an electrical impulse identical to the cell’s unique electromagnetic frequency. This theory is sometimes called radionics.

Rife machines are Rife’s version of the machines used by Abrams. Some people claim they can help cure cancer and treat other conditions like Lyme disease and AIDS.

From https://www.healthline.com/health/rife-machine-cancer#claims

Anyone else?  Have you heard of this for Cushing’s?

Frantbri, are you going to try it?  If so, please keep us posted!

It would be great if something like this worked.

 

❓Guest Question: Sudden Hearing Loss

 

If you can help, please respond here or on the Message Boards.  Thanks!

I  have many symptoms of cushings,  I have used cloatasol propionate for about 5 years for my chronic eczema I was on oral steroids in July then high dose steroids again in September. thejuly in July it was for a severe eczema breakout and in September it was for sudden hearing loss.  Now I need a hearing aid.  I seen one place after googling that connects cushings with sudden hearing loss.  Has anyone dealt with this?

 

❓Guest Question: Cushing’s in 15 year old male

Jess asks on the Message Boards:

Hello, – a little back story. I have a 15 year old son who over the past couple of years has gained 60 pounds and has increasingly become angry, depressed, anxious- to the point where he was having thoughts of suicide. We went to a behavioral health specialist who put him on anti-anxiety meds, but his aggression has become worse and worse. I literally found myself last week saying, never in my life would I think this kid would act so violently towards me or his siblings. He was a good, sensitive kid. His mood can change in the blink of an eye. He also is very withdrawn and anxious to the point where he now does online school. We have contributed all of this to puberty and life experiences, just typical teenage stuff… but last week, when i was able to actaully have him come out of his room… i noticed a “lump” on the top of back, base of the neck. I am not sure if a buffalo hump can be caused by playing video games and sitting in a computer chair for 18 hours a day? Or if this is considered a buffalo hump??

Respond to Jess here: http://cushings.invisionzone.com/topic/54467-cushings-in-15-yo-male

❓Guest Question: Upcoming Endo Appointment

Donna Asked:

Can someone please help me?  Over the past few years I have gained over 40 lbs, suffer from extreme fatigue, muscle cramps, headaches, just to name a few. I also have a hump between my shoulders. I have gone to see my primary care physician and asked about Cushing’s syndrome and she said that there’s just no way I could have this because it is so rare. I asked for a referral to see a endocrinologist and she finally agreed. After doing some research on this debilitating disease, I am convinced that I am it’s next victim. I am so scared. What can I expect from this endo appointment?

Please respond here or on the message boards at http://cushings.invisionzone.com/topic/54455-please-help/?page=0#comment-474250

✍️ New Bio Form!

We have a new form to add your own bio!

Try it out below…

 

 

Thank you for submitting your bio – sometimes it takes a day or so to get them formatted for the website and listed on the pages where new bios are listed.

If you are planning to check the button that reads “Would you like to be considered for an interview? (Yes or No)” please be sure to read the Interview Page for information on how these interviews work.

Please do not ask people to email you answers to your questions. Your question is probably of interest to other Cushing’s patients and has already been asked and answered on the Message Boards.

Occasionally, people may comment on your bio. To read your bio and any comments, please look here for the date you submitted yours and click on the link.

Please post any questions for which you need answers on the message boards.

 

🎤 Interview Info

Cushing’s Podcast Interview Information

Scheduled Interviews

If you want to be interviewed, please chose “Yes” on the form below.

A time will be arranged for your interview. On that day, please call the guest call-in number about 5-10 minutes before the interview is scheduled.

You can chat informally with the MaryO before the chat begins. You will hear the BlogTalk lady say “BlogTalkRadio” and there will be some Cushing’s theme music followed by your introduction and welcome. The first question will be asked.

Talk normally, just like you’re on the phone chatting with friends.

Archived audio is available through BlogTalkRadio or through iTunes Podcasts

This player will play either the last recorded show or, if the show is currently occurring, you can hear the live show.

Listen to CushingsHelp on internet talk radio

Subscribe to the CushingsHelp podcasts on iTunes

Think of our podcast as a radio show on Cushing’s. The show consists of many “episodes”. You can listen on your computer, or your iPods, completely free of charge.

To listen, you will need to “subscribe” to the podcast feed using a “podcatcher” application such as iTunes. After you subscribe, each time you launch iTunes, it will automatically check if new episodes are available and if yes, it will download the most recent episode to your computer for you to hear. Then you can sync your iPod with iTunes to get the show onto your iPod for listening on the go.

For help in subscribing to podcasts with iTunes, you can use this tutorial from Apple or if you’re iTunes savvy, you can subscribe now!

To be interviewed, please be sure to include your name, email address and check the box that says “Would you like to be considered for a phone interview?”

 

❓Guest Question: Can you have Cushing’s with Normal Cortisol Levels?

 

Kenz asked:

I got my lab work done.

I have all the symptoms of cushing’s Disease, from the buffalo hump and obesity to the easy bruising and the muscle weakness.

My cortisol levels came back normal, and I haven’t gotten the results of my ACTH yet.

Has anyone had normal cortisol levels come back and still had cushing’s Disease?

Respond here or in the Guest Forum