❓Guest Question: Upcoming Endo Appointment

Donna Asked:

Can someone please help me?  Over the past few years I have gained over 40 lbs, suffer from extreme fatigue, muscle cramps, headaches, just to name a few. I also have a hump between my shoulders. I have gone to see my primary care physician and asked about Cushing’s syndrome and she said that there’s just no way I could have this because it is so rare. I asked for a referral to see a endocrinologist and she finally agreed. After doing some research on this debilitating disease, I am convinced that I am it’s next victim. I am so scared. What can I expect from this endo appointment?

Please respond here or on the message boards at http://cushings.invisionzone.com/topic/54455-please-help/?page=0#comment-474250

✍️ New Bio Form!

We have a new form to add your own bio!

Try it out below…

 

 

Thank you for submitting your bio – sometimes it takes a day or so to get them formatted for the website and listed on the pages where new bios are listed.

If you are planning to check the button that reads “Would you like to be considered for an interview? (Yes or No)” please be sure to read the Interview Page for information on how these interviews work.

Please do not ask people to email you answers to your questions. Your question is probably of interest to other Cushing’s patients and has already been asked and answered on the Message Boards.

Occasionally, people may comment on your bio. To read your bio and any comments, please look here for the date you submitted yours and click on the link.

Please post any questions for which you need answers on the message boards.

 

🎤 Interview Info

Cushing’s Podcast Interview Information

Scheduled Interviews

If you want to be interviewed, please chose “Yes” on the form below.

A time will be arranged for your interview. On that day, please call the guest call-in number about 5-10 minutes before the interview is scheduled.

You can chat informally with the MaryO before the chat begins. You will hear the BlogTalk lady say “BlogTalkRadio” and there will be some Cushing’s theme music followed by your introduction and welcome. The first question will be asked.

Talk normally, just like you’re on the phone chatting with friends.

Archived audio is available through BlogTalkRadio or through iTunes Podcasts

This player will play either the last recorded show or, if the show is currently occurring, you can hear the live show.

Listen to CushingsHelp on internet talk radio

Subscribe to the CushingsHelp podcasts on iTunes

Think of our podcast as a radio show on Cushing’s. The show consists of many “episodes”. You can listen on your computer, or your iPods, completely free of charge.

To listen, you will need to “subscribe” to the podcast feed using a “podcatcher” application such as iTunes. After you subscribe, each time you launch iTunes, it will automatically check if new episodes are available and if yes, it will download the most recent episode to your computer for you to hear. Then you can sync your iPod with iTunes to get the show onto your iPod for listening on the go.

For help in subscribing to podcasts with iTunes, you can use this tutorial from Apple or if you’re iTunes savvy, you can subscribe now!

To be interviewed, please be sure to include your name, email address and check the box that says “Would you like to be considered for a phone interview?”

 

❓Guest Question: Can you have Cushing’s with Normal Cortisol Levels?

 

Kenz asked:

I got my lab work done.

I have all the symptoms of cushing’s Disease, from the buffalo hump and obesity to the easy bruising and the muscle weakness.

My cortisol levels came back normal, and I haven’t gotten the results of my ACTH yet.

Has anyone had normal cortisol levels come back and still had cushing’s Disease?

Respond here or in the Guest Forum

❓Guest Question: Is Itching Common with Cushing’s Syndrome?

Is itching common with Cushing’s Syndrome?  Is it common to feel somewhat good for a day and then have itching, high blood pressure, nausea, flushed red face?

 

Please either respond here or in the comments below.

❓Guest Question: PTSD and Cushings

I’m wondering if anyone post surgery is dealing with PTSD, specifically feeling like you are re-experiencing Cushings when you are having anxiety. I’m almost 3 years post surgery and have regular panic attacks where I feel like I am re-living having the disease

Please either respond here or in the comments below.

⁉️ Have You Had Treatment for Cushing’s?

Survey for Cushies who’ve had treatment!

Fellow Cushing’s Survivors NEED YOUR VOICES and recovery experiences to help assess our needs and guide advocacy projects within the medical community! Adults of all Cushie types welcome!

Google-Form Survey: http://bit.ly/CushingsRecoverySurvey. Results will be anonymous!

Questions? Reach out: CushingsRecovery@gmail.com
Developed by Andrea Patten, Andrea Hauenstein, & Karen H.