Cushing’s Help

The Boards have been Upgraded!

MaryO Cushing’s Help , ,

The upgrade is here, it’s different and I need a new “skin” for this to get rid of all the white.

Some things are still happening behind the scenes.

Here’s info from Invisionboard

Hello,

Your community has been upgraded to version 4, and is back online. The following information was shown during the upgrade:

Pages HTML
HTML in pages, blocks and templates in Pages cannot be converted during the upgrade. While those pages and blocks will continue to work, you will need to review, and adjust as necessary, the HTML following the upgrade to integrate the styling used by the Community Suite 4.0.

Support Staff
Support staff cannot be converted during the upgrade. Please log in and set up support staff as administrators in the admin control panel after the upgrade and then review support department staff settings.

Please take a few minutes to thoroughly review your community for any issues. If any issues are found, please use the Support tool in the ACP for further assistance.

Please check any custom moderator permissions (ACP -> Members -> Moderators) for Pages Database categories. These have been reset to ‘All Categories’.

Please be sure to review the above item(s).

There are a number of Background Tasks running, to rebuild content slowly so as not to cause server resource issues, and which you can check on your ACP -> System page.

Please do not run those tasks manually, as that can cause server overload.

Those tasks are triggered by forum activity (people logged in and browsing the site), and until they finish, some of the layout may not be correct, such as quotes, signatures, lists, images, etc.

Once they have finished, however, if you notice any issues, please open a new ticket detailing the problem.

$5 Bonus for Cushings Help!

MaryO Cushing’s Help , ,

As most of you know, I hate to ask for money, but this website, and all websites, cost money.  Most have ads but I decided long ago not to go that route.

This is a very easy way to give back without it costing you anything –   From iGive:

Summer shopping can help Cushings Help grow their donations this year. New members’ summer shopping can help even more!

Every new member who joins to support your organization by July 15th and makes their first purchase by July 31st earns a $5 Bonus for Cushings Help!

So, Tell-A-Friend about iGive today, and encourage all of your supporters to do the same! You can post to Facebook, Share on Twitter, send an email (here’s your JoinLink to use: https://www.iGive.com/cushings) or literally tell someone.

Cheers!

The iGive Cause Support Team

Fine Print: Referred member MUST be new to iGive. They must join iGive by July 15th AND make their first purchase by July 31st, 2017. New member must join by using your Tell A Friend or Cause JoinLink to qualify.

Message Board Upgrade Coming Soon!

MaryO Cushing’s Help ,

I’m sure that there will be changes which we will figure out together.

The “skin” that we have now won’t be supported by the upgrade but I’m sure I can make it look nice again after the upgrade.

Please be patient during this process, and while we figure out the new features.

Thanks!

Find the message boards here.

A Cushing’s Collection: A Humorous Journey Surviving Cushing’s Disease, Diabetes Insipidus, and a Bilateral Adrenalectomy

MaryO Cushing’s Help, Humor, books , , , , ,

 

The author of this book has submitted a bio and is a member of the Cushing’s Help message boards.

From Amazon:

Diagnosed with a rare disease that only affects between two and ten people per million, Marie Conley used emails to communicate with family, friends, and co-workers to keep them apprised of the diagnosis and prognosis of Cushing’s disease and the many complications she experienced on this journey. Her ironic humor and raw, emotional approach helps bring hope to those touched by this rare and unrelenting disease.

In her mid-thirties, Conley, who strived to keep herself healthy while maintaining the delicate balance of raising a young child, keeping a home, and a demanding career, began to experience a variety of unexplained maladies inconsistent with her life style.Because of the elusive nature of Cushing’s disease, the treatment is a long and complicated process of trial and error.

At this time, there is no cure, largely due to the fact that Cushing’s disease is considered an “orphan disease.” As is her nature, she has decided to “adopt” this “orphan” and is doing everything she can to bring awareness to this disease.Conley’s tenacious spirit and determination would not allow this insidious disease to triumph over her life. Armed with her laptop as the only weapon available in the sterility of the recovery room, the author attacks the keyboard with a vengeance to let friends and family know that in this battle, there is no surrender.

16 Years of Help and Support.

MaryO Cushing’s Help , , , , , , , , , , , ,

happybirthday-2015

It’s unbelievable but the idea for Cushing’s Help and Support arrived 16 years ago tonight.  That’s a long time for anything online.

I was talking with my dear friend Alice, who ran a wonderful menopause site called Power Surge, wondering why there weren’t many support groups online (OR off!) for Cushing’s and I wondered if I could start one myself and we decided that I could.

The first website (http://www.cushings-help.com) first went “live” July 21, 2000 and the message boards September 30, 2000. Hopefully, with these sites, I’m making some helpful differences in someone else’s life!

The message boards are very active and we have weekly online text chats, occasional live interviews, local meetings, email newsletters, a clothing exchange, a Cushing’s Awareness Day Forum, podcasts, phone support and much more.

Whenever one of the members of the boards gets into NIH, I try to go to visit them there. Other board members participate in the “Cushie Helper” program where they support others with one-on-one support, doctor/hospital visits, transportation issues and more.

Of course, we now have a Facebook page and 2 groups.  Both are secret, so if you want to join, please email  or PM me for an invitation.

Other sites in the Cushing’s Help “Family”

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