We’re sharing the story of Annie, who was treated at Eunice Kennedy Shriver National Institute of Child Health and Human Development for Cushing Syndrome.
Thanks to the incredible doctors at NICHD & The NIH Clinical Center, she underwent an extremely successful clinical trial and surgery and is now thriving like a child should.
Originally posted on Facebookâââââââ
To all my Cushie friends who are still dealing with this horrible disease, keep fighting, donât ever give up, you will get better. I told a very close friend of mine the other day, if I had the power I would heal everyone you today.  Cushingâs is a horrible disease, and unless you have been through it there is no way anyone could ever understand it.
After a year and a half  since my BLA and I am the healthiest, happiest person I have been in a very long time. I am working out with a personal trainer once a week because I am determined to regain the strength I lost due to having Cushingâs for six very long years.   I have a long way to go and it is not going to happen overnight but it will happen.
I live each day to the absolute fullest and enjoy every minute of every day, I am so grateful to have made it through to the other side, not without some emotional and physical scars, but I made it none the less.
I think about and pray for all of you every day because without your knowledge and support I donât know that I would have made it.
To those of you who are still on the boards please feel free to share this post and my story to everyone there. I am sorry I donât go on the boards any more, but as I said I didnât make through without some emotional scars.
I love you all, god bless and be good to yourself always.