ūü¶ď Day 14, Cushing‚Äôs Awareness Challenge 2021

Way back when we first got married, my husband thought we might have a big family with a lot of kids. ¬†He was from a family of 6 siblings, so that’s what he was accustomed to. ¬†I am an only child so I wasn’t sure about having so many.

I needn’t have worried.

In January 1974 I had a miscarriage.  I was devastated. My father revealed that my mother had also had a miscarriage.  I had no idea.

At some point later I tried fertility drugs.  Clomid and another drug.  One or both drugs made me very angry/depressed/bitchy (one dwarf I left off the image)  Little did I know that these meds were a waste of time.

Eventually, ¬†I did get pregnant and our wonderful son, Michael was born. ¬†It wasn’t until he was seven that I was finally, actually diagnosed with Cushing’s.

When I had my early Cushing’s symptoms, I thought I was pregnant again but it was not to be.

I’ll never forget the fall when he was in second grade. ¬†He was leaving for school and I said goodbye to him. ¬†I knew I was going into NIH that day for at least 6 weeks and my future was very iffy. ¬†The night before, I had signed my will – just in case. ¬†He just turned and headed off with his friends…and I felt a little betrayed.

Michael¬†wrote this paper on Cushing’s when he was in the 7th grade. From the quality of the pages, he typed this on typing paper – no computers yet!

Click on each page to enlarge.

When Michael started having headache issues in middle school, I had him tested for Cushing’s. ¬†I had no idea yet if it could be familial but I wasn’t taking any chances. ¬†It turned out that my father had also had some unnamed endocrine issues. ¬†Hmmm…

I survived my time and surgery at NIH and Michael grew up to be a wonderful young man, if an only child. ¬†ūüôā

After I survived kidney cancer (Day Twelve, Cushing’s Awareness Challenge 2015) Michael and I went zip-lining Рa goal of mine after surviving that surgery.  This photo was taken in a treetop restaurant in Belize.

For the mathematically inclined, this is his blog. ¬†Xor’s Hammer. ¬†I understand none of it. ¬†He also has a page of Math and Music, which I also don’t understand.

I know it doesn’t fit into a Cushing’s awareness post but just because I’m a very proud mama – Michael got a PhD in math from Cornell and his thesis was¬†Using Tree Automata to Investigate Intuitionistic Propositional Logic

Michael explains How do we know the quintic is unsolvable?

And, from his wedding:

proud-mom

And, as of March 7, 2021:

ūü¶ď Day 14, Cushing‚Äôs Awareness Challenge 2020

 

Way back when we first got married, my husband thought we might have a big family with a lot of kids. ¬†He was from a family of 6 siblings, so that’s what he was accustomed to. ¬†I am an only child so I wasn’t sure about having so many.

I needn’t have worried.

In January 1974 I had a miscarriage.  I was devastated. My father revealed that my mother had also had a miscarriage.  I had no idea.

At some point later I tried fertility drugs.  Clomid and another drug.  One or both drugs made me very angry/depressed/bitchy (one dwarf I left off the image)  Little did I know that these meds were a waste of time.

Eventually, ¬†I did get pregnant and our wonderful son, Michael was born. ¬†It wasn’t until he was seven that I was finally, actually diagnosed with Cushing’s.

When I had my early Cushing’s symptoms, I thought I was pregnant again but it was not to be.

I’ll never forget the fall when he was in second grade. ¬†He was leaving for school and I said goodbye to him. ¬†I knew I was going into NIH that day for at least 6 weeks and my future was very iffy. ¬†The night before, I had signed my will – just in case. ¬†He just turned and headed off with his friends…and I felt a little betrayed.

Michael¬†wrote this paper on Cushing’s when he was in the 7th grade. From the quality of the pages, he typed this on typing paper – no computers yet!

Click on each page to enlarge.

When Michael started having headache issues in middle school, I had him tested for Cushing’s. ¬†I had no idea yet if it could be familial but I wasn’t taking any chances. ¬†It turned out that my father had also had some unnamed endocrine issues. ¬†Hmmm…

I survived my time and surgery at NIH and Michael grew up to be a wonderful young man, if an only child. ¬†ūüôā

After I survived kidney cancer (Day Twelve, Cushing’s Awareness Challenge 2015) Michael and I went zip-lining Рa goal of mine after surviving that surgery.  This photo was taken in a treetop restaurant in Belize.

For the mathematically inclined, this is his blog. ¬†Xor’s Hammer. ¬†I understand none of it. ¬†He also has a page of Math and Music, which I also don’t understand.

I know it doesn’t fit into a Cushing’s awareness post but just because I’m a very proud mama – Michael got a PhD in math from Cornell and his thesis was¬†Using Tree Automata to Investigate Intuitionistic Propositional Logic

 

Michael explains How do we know the quintic is unsolvable?

And, from his wedding:

proud-mom

ūü¶ď Day 13: Cushing‚Äôs Awareness Challenge 2019

 

Way back when we first got married, my husband thought we might have a big family with a lot of kids. ¬†He was from a family of 6 siblings, so that’s what he was accustomed to. ¬†I am an only child so I wasn’t sure about having so many.

I needn’t have worried.

In January 1974 I had a miscarriage.  I was devastated. My father revealed that my mother had also had a miscarriage.  I had no idea.

At some point after this, I tried fertility drugs.  Clomid and another drug.  One or both drugs made me very angry/depressed/bitchy (one dwarf I left off the image)  Little did I know that these meds were a waste of time.

Eventually, ¬†I did get pregnant and our wonderful son, Michael was born. ¬†It wasn’t until he was seven that I was finally, actually diagnosed with Cushing’s.

When I had my early Cushing’s symptoms, I thought I was pregnant again but it was not to be.

I’ll never forget the autumn when he was in second grade. ¬†He was leaving for school and I said goodbye to him. ¬†I knew I was going into NIH that day for at least 6 weeks and my future was very iffy. ¬†The night before, I had signed my will – just in case. ¬†He just turned and headed off with his friends…and I felt a little betrayed.

Michael¬†wrote this paper on Cushing’s when he was in the 7th grade. From the quality of the pages, he typed this on typing paper – no computers yet!

Click on each page to enlarge.

When Michael started having headache issues in middle school, I had him tested for Cushing’s. ¬†I had no idea yet if it could be familial but I wasn’t taking any chances. ¬†It turned out that my father had also had some unnamed endocrine issues. ¬†Hmmm…

I survived my time and surgery at NIH and Michael grew up to be a wonderful young man, if an only child. ¬†ūüôā

After I survived kidney cancer (Day Twelve, Cushing’s Awareness Challenge 2015) Michael and I went zip-lining Рa goal of mine after surviving that surgery.  This photo was taken in a treetop restaurant in Belize.

For the mathematically inclined, this is his blog. ¬†Xor’s Hammer. ¬†I understand none of it. ¬†He also has a page of Math and Music, which I also don’t understand.

I know it doesn’t fit into a Cushing’s awareness post but just because I’m a very proud mama – Michael got a PhD in math from Cornell and his thesis was¬†Using Tree Automata to Investigate Intuitionistic Propositional Logic

These days, he’s working on Wall Street, running a Math Meetup, still playing the piano…¬† Speaking of piano, he met his lovely wife through their mutual piano teacher!¬† From the October wedding…

 

proud-mom

ūü¶ď Day 12: Cushing‚Äôs Awareness Challenge 2018

 

Way back when we first got married, my husband thought we might have a big family with a lot of kids. ¬†He was from a family of 6 siblings, so that’s what he was accustomed to. ¬†I am an only child so I wasn’t sure about having so many.

I needn’t have worried.

In January 1974 I had a miscarriage.  I was devastated. My father revealed that my mother had also had a miscarriage.  I had no idea.

At some point after this, I tried fertility drugs.  Clomid and another drug.  One or both drugs made me very angry/depressed/bitchy (one dwarf I left off the image)  Little did I know that these meds were a waste of time.

Eventually, ¬†I did get pregnant and our wonderful son, Michael was born. ¬†It wasn’t until he was seven that I was finally, actually diagnosed with Cushing’s.

When I had my early Cushing’s symptoms, I thought I was pregnant again but it was not to be.

I’ll never forget the autumn when he was in second grade. ¬†He was leaving for school and I said goodbye to him. ¬†I knew I was going into NIH that day for at least 6 weeks and my future was very iffy. ¬†The night before, I had signed my will – just in case. ¬†He just turned and headed off with his friends…and I felt a little betrayed.

Michael¬†wrote this paper on Cushing’s when he was in the 7th grade. From the quality of the pages, he typed this on typing paper – no computers yet!

Click on each page to enlarge.

When Michael started having headache issues in middle school, I had him tested for Cushing’s. ¬†I had no idea yet if it could be familial but I wasn’t taking any chances. ¬†It turned out that my father had also had some unnamed endocrine issues. ¬†Hmmm…

I survived my time and surgery at NIH and Michael grew up to be a wonderful young man, if an only child. ¬†ūüôā

After I survived kidney cancer (Day Twelve, Cushing’s Awareness Challenge 2015) Michael and I went zip-lining Рa goal of mine after surviving that surgery.  This photo was taken in a treetop restaurant in Belize.

For the mathematically inclined, this is his blog. ¬†Xor’s Hammer. ¬†I understand none of it. ¬†He also has a page of Math and Music, which I also don’t understand.

I know it doesn’t fit into a Cushing’s awareness post but just because I’m a very proud mama – Michael got a PhD in math from Cornell and his thesis was¬†Using Tree Automata to Investigate Intuitionistic Propositional Logic

These days, he’s working on Wall Street, running a Math Meetup, still playing the piano…

 

proud-mom

ūüé¨ Annie, Pituitary Video

We’re sharing the story of Annie, who was treated at¬†Eunice Kennedy Shriver National Institute of Child Health and Human Development¬†for Cushing Syndrome.

Thanks to the incredible doctors at NICHD & The NIH Clinical Center, she underwent an extremely successful clinical trial and surgery and is now thriving like a child should.

Day 11: Cushing‚Äôs Awareness Challenge 2017

 

Way back when we first got married, my husband thought we might have a big family with a lot of kids. ¬†He was from a family of 6 siblings, so that’s what he was accustomed to. ¬†I am an only child so I wasn’t sure about having so many.

I needn’t have worried.

In January, 1974 I had a miscarriage.  I was devastated. My father revealed that my mother had also had a miscarriage.  I had no idea.

At some point after this I tried fertility drugs.  Clomid and another drug.  One or both drugs made me very angry/depressed/bitchy (one dwarf I left off the image)  Little did I know that these meds were a waste of time.

Eventually, ¬†I did get pregnant and our wonderful son, Michael was born. ¬†It wasn’t until he was seven that I was finally, actually diagnosed with Cushing’s.

When I had my early Cushing’s symptoms, I thought I was pregnant again but it was not to be.

I’ll never forget the autumn when he was in second grade. ¬†He was leaving for school and I said goodbye to him. ¬†I knew I was going into NIH that day for at least 6 weeks and my future was very iffy. ¬†The night before, I had signed my will – just in case. ¬†He just turned and headed off with his friends…and I felt a little betrayed.

Michael¬†wrote this paper on Cushing’s when he was in the 7th grade. From the quality of the pages, he typed this on typing paper – no computers yet!

Click on each page to enlarge.

When Michael started having headache issues in middle school, I had him tested for Cushing’s. ¬†I had no idea yet if it could be familial but I wasn’t taking any chances. ¬†It turned out that my father had also had some unnamed endocrine issues. ¬†Hmmm…

I survived my time and surgery at NIH and Michael grew up to be a wonderful young man, if an only child. ¬†ūüôā

After I survived kidney cancer (Day Twelve, Cushing’s Awareness Challenge 2015) Michael and I went zip-lining Рa goal of mine after surviving that surgery.  This photo was taken in a treetop restaurant in Belize.

For the mathematically inclined, this is his blog. ¬†Xor’s Hammer. ¬†I understand none of it. ¬†He also has a page of Math and Music, which I also don’t understand.

I know it doesn’t fit into a Cushing’s awareness post but just because I’m a very proud mama – Michael got a PhD in math from Cornell and his thesis was¬†Using Tree Automata to Investigate Intuitionistic Propositional Logic

These days, he’s working on Wall Street, running a Math Meetup, still playing the piano…

proud-mom