ūü¶ď Day 20: Cushing‚Äôs Awareness Challenge 2019

 

This is a tough one. ¬†Sometimes I’m in “why me” mode. ¬†Why Cushing’s? ¬†Why cancer? ¬†Why¬†knee pain that doesn’t let up?¬† Why my DH has ongoing health issues?¬† Unfortunately, there’s not a thing I can do about any of it. ¬†Cushing’s, who knows the risk factors? ¬†For kidney cancer I found out the risk factors and nearly none apply to me. So why?¬†But why not? ¬†No particular reason why I should be exempt from anything.

Since there’s nothing to be done with the exception of trying to do things that could harm my remaining kidney, I have to try to make the best of things. ¬†This is my life. ¬†It could be better but it could be way worse.

One of the Challenge topics was to write about “My Dream Day” so here’s mine…

I’d wake up on my own – no snooze alarms – at about 8 am, sun streaming through the window. ¬†I’d be well rested and not have had any nightmares or death-dreams the night before. ¬†I wouldn’t have had any issues sleeping due to my hernia. ¬†I’d be able to hop out of bed without my knees hurting or giving way on me, or my tendonitis/deteriorating¬†thumb join throbbing. I’d forget that my DH has cancer and that my mom broke her pelvis last year – in 2 places. I remember my son and his new wife are home for a visit but I let them sleep in for a while.

I’d get out for a bike ride or a brisk walk, come home, head for the hot tub then shower. ¬†I’d practice the piano for a bit, then go out to lunch with friends, taking Michael with me. ¬†While we’re out, the maid will come in and clean the house.

After lunch, maybe a little technology shopping/buying.  Then the group of us go to one of our homes for piano duets, trios, 2-piano music.

When we get home, it’s immaculately clean and I find that the Prize Patrol has visited and left a substantial check.

We would take Mimi for a long walk through the woods, where we would come across a Little Free Library so my Mom could check out the books.

I had wisely left something for dinner in the Instant Pot so dinner is ready. ¬†After dinner, I check online and find no urgent email, no work that needs to be done, no bills that need to be paid, no blog challenge posts to write…

Then, I’d get a text from Alice

 

I wake up from My Dream Day and realize that this is so far from my real life, so I re-read The Best Day of My Life and am happy that I’m not dealing with anything worse.

 

 

ūü¶ď Day 13: Cushing‚Äôs Awareness Challenge 2019

 

Way back when we first got married, my husband thought we might have a big family with a lot of kids. ¬†He was from a family of 6 siblings, so that’s what he was accustomed to. ¬†I am an only child so I wasn’t sure about having so many.

I needn’t have worried.

In January 1974 I had a miscarriage.  I was devastated. My father revealed that my mother had also had a miscarriage.  I had no idea.

At some point after this, I tried fertility drugs.  Clomid and another drug.  One or both drugs made me very angry/depressed/bitchy (one dwarf I left off the image)  Little did I know that these meds were a waste of time.

Eventually, ¬†I did get pregnant and our wonderful son, Michael was born. ¬†It wasn’t until he was seven that I was finally, actually diagnosed with Cushing’s.

When I had my early Cushing’s symptoms, I thought I was pregnant again but it was not to be.

I’ll never forget the autumn when he was in second grade. ¬†He was leaving for school and I said goodbye to him. ¬†I knew I was going into NIH that day for at least 6 weeks and my future was very iffy. ¬†The night before, I had signed my will – just in case. ¬†He just turned and headed off with his friends…and I felt a little betrayed.

Michael¬†wrote this paper on Cushing’s when he was in the 7th grade. From the quality of the pages, he typed this on typing paper – no computers yet!

Click on each page to enlarge.

When Michael started having headache issues in middle school, I had him tested for Cushing’s. ¬†I had no idea yet if it could be familial but I wasn’t taking any chances. ¬†It turned out that my father had also had some unnamed endocrine issues. ¬†Hmmm…

I survived my time and surgery at NIH and Michael grew up to be a wonderful young man, if an only child. ¬†ūüôā

After I survived kidney cancer (Day Twelve, Cushing’s Awareness Challenge 2015) Michael and I went zip-lining Рa goal of mine after surviving that surgery.  This photo was taken in a treetop restaurant in Belize.

For the mathematically inclined, this is his blog. ¬†Xor’s Hammer. ¬†I understand none of it. ¬†He also has a page of Math and Music, which I also don’t understand.

I know it doesn’t fit into a Cushing’s awareness post but just because I’m a very proud mama – Michael got a PhD in math from Cornell and his thesis was¬†Using Tree Automata to Investigate Intuitionistic Propositional Logic

These days, he’s working on Wall Street, running a Math Meetup, still playing the piano…¬† Speaking of piano, he met his lovely wife through their mutual piano teacher!¬† From the October wedding…

 

proud-mom

ūü¶ď Day 20: Cushing‚Äôs Awareness Challenge 2018

 

This is a tough one. ¬†Sometimes I’m in “why me” mode. ¬†Why Cushing’s? ¬†Why cancer? ¬†Why¬†knee pain that doesn’t let up?Unfortunately, there’s not a thing I can do about any of it. ¬†Cushing’s, who knows the risk factors? ¬†For kidney cancer I found out the risk factors and nearly none apply to me. So why?¬†But why not? ¬†No particular reason why I should be exempt from anything.

Since there’s nothing to be done with the exception of trying to do things that could harm my remaining kidney, I have to try to make the best of things. ¬†This is my life. ¬†It could be better but it could be way worse.

One of the Challenge topics was to write about “My Dream Day” so here’s mine…

I’d wake up on my own – no snooze alarms – at about 8 am, sun streaming through the window. ¬†I’d be well rested and not have had any nightmares or death-dreams the night before. ¬†I wouldn’t have had any issues sleeping due to my hernia. ¬†I’d be able to hop out of bed without my knees hurting or giving way on me, or my tendonitis/deteriorating¬†thumb join throbbing. I’d forget that my DH has cancer and that my mom recently broke her pelvis – in 2 places. I remember my son and his new wife are home for a visit but I let them sleep in for a while.

I’d get out for a bike ride or a brisk walk, come home, head for the hot tub then shower. ¬†I’d practice the piano for a bit, then go out to lunch with friends, taking Michael with me. ¬†While we’re out, the maid will come in and clean the house.

After lunch, maybe a little technology shopping/buying.  Then the group of us go to one of our homes for piano duets, trios, 2-piano music.

When we get home, it’s immaculately clean and I find that the Prize Patrol has visited and left a substantial check.

We would take Mimi for a long walk through the woods, where we would come across a Little Free Library so my Mom could check out the books.

I had wisely left something for dinner in the Instant Pot so dinner is ready. ¬†After dinner, I check online and find no urgent email, no work that needs to be done, no bills that need to be paid, no blog challenge posts to write…

Then, I’d get a text from Alice

 

I wake up from My Dream Day and realize that this is so far from my real life, so I re-read The Best Day of My Life and am happy that I’m not dealing with anything worse.

 

ūü¶ď Day 12: Cushing‚Äôs Awareness Challenge 2018

 

Way back when we first got married, my husband thought we might have a big family with a lot of kids. ¬†He was from a family of 6 siblings, so that’s what he was accustomed to. ¬†I am an only child so I wasn’t sure about having so many.

I needn’t have worried.

In January 1974 I had a miscarriage.  I was devastated. My father revealed that my mother had also had a miscarriage.  I had no idea.

At some point after this, I tried fertility drugs.  Clomid and another drug.  One or both drugs made me very angry/depressed/bitchy (one dwarf I left off the image)  Little did I know that these meds were a waste of time.

Eventually, ¬†I did get pregnant and our wonderful son, Michael was born. ¬†It wasn’t until he was seven that I was finally, actually diagnosed with Cushing’s.

When I had my early Cushing’s symptoms, I thought I was pregnant again but it was not to be.

I’ll never forget the autumn when he was in second grade. ¬†He was leaving for school and I said goodbye to him. ¬†I knew I was going into NIH that day for at least 6 weeks and my future was very iffy. ¬†The night before, I had signed my will – just in case. ¬†He just turned and headed off with his friends…and I felt a little betrayed.

Michael¬†wrote this paper on Cushing’s when he was in the 7th grade. From the quality of the pages, he typed this on typing paper – no computers yet!

Click on each page to enlarge.

When Michael started having headache issues in middle school, I had him tested for Cushing’s. ¬†I had no idea yet if it could be familial but I wasn’t taking any chances. ¬†It turned out that my father had also had some unnamed endocrine issues. ¬†Hmmm…

I survived my time and surgery at NIH and Michael grew up to be a wonderful young man, if an only child. ¬†ūüôā

After I survived kidney cancer (Day Twelve, Cushing’s Awareness Challenge 2015) Michael and I went zip-lining Рa goal of mine after surviving that surgery.  This photo was taken in a treetop restaurant in Belize.

For the mathematically inclined, this is his blog. ¬†Xor’s Hammer. ¬†I understand none of it. ¬†He also has a page of Math and Music, which I also don’t understand.

I know it doesn’t fit into a Cushing’s awareness post but just because I’m a very proud mama – Michael got a PhD in math from Cornell and his thesis was¬†Using Tree Automata to Investigate Intuitionistic Propositional Logic

These days, he’s working on Wall Street, running a Math Meetup, still playing the piano…

 

proud-mom

Day 17: Cushing‚Äôs Awareness Challenge 2017

 

This is a tough one. ¬†Sometimes I’m in “why me” mode. ¬†Why Cushing’s? ¬†Why cancer? ¬†Why¬†knee pain that doesn’t let up?Unfortunately, there’s not a thing I can do about any of it. ¬†Cushing’s, who knows the risk factors? ¬†For kidney cancer I found out the risk factors and nearly none apply to me. So why?¬†But why not? ¬†No particular reason why I should be exempt from anything.

Since there’s nothing to be done with the exception of trying to do things that could harm my remaining kidney, I have to try to make the best of things. ¬†This is my life. ¬†It could be better but it could be way worse.

One of the Challenge topics was to write about “My Dream Day” so here’s mine…

I’d wake up on my own – no snooze alarms – at about 8 am, sun streaming through the window. ¬†I’d be well rested and not have had any nightmares or death-dreams the night before. ¬†I wouldn’t have had any issues sleeping due to my newly-diagnosed hernia. ¬†I’d be able to hop out of bed without my knees hurting or giving way on me. I remember my son is home for a visit but I let him sleep in for a while.

I’d get out for a bike ride or a brisk walk, come home, head for the hot tub then shower. ¬†I’d practice the piano for a bit, then go out to lunch with friends, taking Michael with me. ¬†While we’re out, the maid will come in and clean the house.

After lunch, maybe a little technology shopping/buying.  Then the group of us go to one of our homes for piano duets, trios, 2-piano music.

When we get home, it’s immaculately clean and I find that the Prize Patrol has visited and left a substantial check.

We would take Mimi for a long walk through the woods, where we would come across a Little Free Library so my Mom could check out the books.

I had wisely left something for dinner in the Ninja¬†so dinner is ready. ¬†After dinner, I check online and find no urgent email, no work that needs to be done, no bills that need to be paid, no blog challenge posts to write…

Then, I’d get a text from Alice

 

I wake up from My Dream Day and realize that this is so far from my real life, so I re-read The Best Day of My Life and am happy that I’m not dealing with anything worse.

Day 11: Cushing‚Äôs Awareness Challenge 2017

 

Way back when we first got married, my husband thought we might have a big family with a lot of kids. ¬†He was from a family of 6 siblings, so that’s what he was accustomed to. ¬†I am an only child so I wasn’t sure about having so many.

I needn’t have worried.

In January, 1974 I had a miscarriage.  I was devastated. My father revealed that my mother had also had a miscarriage.  I had no idea.

At some point after this I tried fertility drugs.  Clomid and another drug.  One or both drugs made me very angry/depressed/bitchy (one dwarf I left off the image)  Little did I know that these meds were a waste of time.

Eventually, ¬†I did get pregnant and our wonderful son, Michael was born. ¬†It wasn’t until he was seven that I was finally, actually diagnosed with Cushing’s.

When I had my early Cushing’s symptoms, I thought I was pregnant again but it was not to be.

I’ll never forget the autumn when he was in second grade. ¬†He was leaving for school and I said goodbye to him. ¬†I knew I was going into NIH that day for at least 6 weeks and my future was very iffy. ¬†The night before, I had signed my will – just in case. ¬†He just turned and headed off with his friends…and I felt a little betrayed.

Michael¬†wrote this paper on Cushing’s when he was in the 7th grade. From the quality of the pages, he typed this on typing paper – no computers yet!

Click on each page to enlarge.

When Michael started having headache issues in middle school, I had him tested for Cushing’s. ¬†I had no idea yet if it could be familial but I wasn’t taking any chances. ¬†It turned out that my father had also had some unnamed endocrine issues. ¬†Hmmm…

I survived my time and surgery at NIH and Michael grew up to be a wonderful young man, if an only child. ¬†ūüôā

After I survived kidney cancer (Day Twelve, Cushing’s Awareness Challenge 2015) Michael and I went zip-lining Рa goal of mine after surviving that surgery.  This photo was taken in a treetop restaurant in Belize.

For the mathematically inclined, this is his blog. ¬†Xor’s Hammer. ¬†I understand none of it. ¬†He also has a page of Math and Music, which I also don’t understand.

I know it doesn’t fit into a Cushing’s awareness post but just because I’m a very proud mama – Michael got a PhD in math from Cornell and his thesis was¬†Using Tree Automata to Investigate Intuitionistic Propositional Logic

These days, he’s working on Wall Street, running a Math Meetup, still playing the piano…

proud-mom

Day 22, Cushing‚Äôs Awareness Challenge 2016

This is a tough one. ¬†Sometimes I’m in “why me” mode. ¬†Why Cushing’s? ¬†Why cancer? ¬†Unfortunately, there’s not a thing I can do about either. ¬†Cushing’s, who knows the risk factors? ¬†For kidney cancer I found out the risk factors and nearly none apply to me. So why?¬†But why not? ¬†No particular reason why I should be exempt from anything.

Since there’s nothing to be done with the exception of trying to do things that could harm my remaining kidney, I have to try to make the best of things. ¬†This is my life. ¬†It could be better but it could be way worse.

One of the Challenge topics was to write about “My Dream Day” so here’s mine…

I’d wake up on my own – no snooze alarms – at about 8 am, sun streaming through the window. ¬†I’d we well rested and not have had any nightmares the night before. ¬†I remember my son is home for a visit but I let him sleep in for a while.

I’d get out for a bike ride or a brisk walk, come home, head for the hot tub then shower. ¬†I’d practice the piano for a bit, then go out to lunch with friends, taking Michael with me. ¬†While we’re out, the maid will come in and clean the house.

After lunch, maybe a little technology shopping/buying.  Then the group of us go to one of our homes for piano duets, trios, 2-piano music.

When we get home, it’s immaculately clean and I find that the Prize Patrol has visited and left a substantial check.

I had wisely left something for dinner in the Ninja¬†so dinner is ready. ¬†After dinner, I check online and find no urgent email, no work that needs to be done, no bills that need to be paid, no blog challenge posts to write…

I wake up from My Dream Day and realize that this is so far from real life, so I re-read The Best Day of My Life¬† and am happy that I’m not dealing with anything worse.