🦓 Day 14, Cushing’s Awareness Challenge 2022

April 14, 2022April 11, 2022 MaryO Cushing's Awareness Challenge, Cushing's Awareness Challenge 2022 child, children, Clomid, Cornell, Cushing's Awareness Challenge 2022, Cushing’s, dad, drugs, familial, fertility, Grandmother, MaryO, math, Michael, miscarriage, Nana, NIH, PhD, pregnant, Using Tree Automata to Investigate Intuitionistic Propositional Logic, will

Way back when we first got married, my husband thought we might have a big family with a lot of kids. He was from a family of 6 siblings, so that’s what he was accustomed to. I am an only child so I wasn’t sure about having so many.

I needn’t have worried.

In January 1974 I had a miscarriage. I was devastated. My father revealed that my mother had also had a miscarriage. I had no idea.

At some point later I tried fertility drugs. Clomid and another drug. One or both drugs made me very angry/depressed/bitchy (one dwarf I left off the image) Little did I know that these meds were a waste of time.

Eventually, I did get pregnant and our wonderful son, Michael was born. It wasn’t until he was seven that I was finally, actually diagnosed with Cushing’s.

When I had my early Cushing’s symptoms, I thought I was pregnant again but it was not to be.

I’ll never forget the fall when he was in second grade. He was leaving for school and I said goodbye to him. I knew I was going into NIH that day for at least 6 weeks and my future was very iffy. The night before, I had signed my will – just in case. He just turned and headed off with his friends…and I felt a little betrayed.

Michael wrote this paper on Cushing’s when he was in the 7th grade. From the quality of the pages, he typed this on typing paper – no computers yet!

Click on each page to enlarge.

When Michael started having headache issues in middle school, I had him tested for Cushing’s. I had no idea yet if it could be familial but I wasn’t taking any chances. It turned out that my father had also had some unnamed endocrine issues. Hmmm…

I survived my time and surgery at NIH and Michael grew up to be a wonderful young man, if an only child. 🙂

After I survived kidney cancer (Day Twelve, Cushing’s Awareness Challenge 2015) Michael and I went zip-lining – a goal of mine after surviving that surgery. This photo was taken in a treetop restaurant in Belize.

For the mathematically inclined, this is his blog. Xor’s Hammer. I understand none of it. He also has a page of Math and Music, which I also don’t understand.

I know it doesn’t fit into a Cushing’s awareness post but just because I’m a very proud mama – Michael got a PhD in math from Cornell and his thesis was Using Tree Automata to Investigate Intuitionistic Propositional Logic

Michael explains How do we know the quintic is unsolvable?

And, from his wedding:

And, as of March 7, 2021:

🦓 Day 14, Cushing’s Awareness Challenge 2020

April 14, 2020April 14, 2020 MaryO Cushing's Awareness Challenge child, children, Clomid, Cornell, Cushing’s, Cushing’s Awareness Challenge 2020, dad, drugs, familial, fertility, MaryO, math, Michael, miscarriage, NIH, PhD, pregnant, Using Tree Automata to Investigate Intuitionistic Propositional Logic, will

I needn’t have worried.

In January 1974 I had a miscarriage. I was devastated. My father revealed that my mother had also had a miscarriage. I had no idea.

Eventually, I did get pregnant and our wonderful son, Michael was born. It wasn’t until he was seven that I was finally, actually diagnosed with Cushing’s.

When I had my early Cushing’s symptoms, I thought I was pregnant again but it was not to be.

Michael wrote this paper on Cushing’s when he was in the 7th grade. From the quality of the pages, he typed this on typing paper – no computers yet!

Click on each page to enlarge.

I survived my time and surgery at NIH and Michael grew up to be a wonderful young man, if an only child. 🙂

For the mathematically inclined, this is his blog. Xor’s Hammer. I understand none of it. He also has a page of Math and Music, which I also don’t understand.

Michael explains How do we know the quintic is unsolvable?

And, from his wedding:

🎤 Archived Interview: Leslie, Pituitary Cushing’s Survivor

April 23, 2019April 22, 2019 MaryO Interviews, Meetings and Conferences dermatologist, diagnosed, Dr William Malarky, Dr. Chandler, elbows, endocrinologist, Gamma Knife radiation, Interview, knuckles, neck, Ohio State University, pituitary gland, pregnant, stretch marks, tired, tumor, University Of Michigan, weakness, weight

Leslie had pituitary tumors removed twice at the University Of Michigan. After her second surgery, she gave birth to her second baby. She has had another recurrence and has had Gamma Knife Radiation April 3, 2008.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/22/interview-with-jackie-samsmon-jordan (The title appears incorrect due to last minute guest changes.)

🦓 Day 13: Cushing’s Awareness Challenge 2019

April 13, 2019April 13, 2019 MaryO Cushing's Awareness Challenge child, children, Clomid, Cornell, Cushing's Awareness Challenge 2018, Cushing's Awareness Challenge 2019, Cushing’s, dad, drugs, familial, fertility, MaryO, math, Math Meetup, Michael, miscarriage, NIH, PhD, pregnant, Using Tree Automata to Investigate Intuitionistic Propositional Logic, Wall Street, will

I needn’t have worried.

In January 1974 I had a miscarriage. I was devastated. My father revealed that my mother had also had a miscarriage. I had no idea.

At some point after this, I tried fertility drugs. Clomid and another drug. One or both drugs made me very angry/depressed/bitchy (one dwarf I left off the image) Little did I know that these meds were a waste of time.

Eventually, I did get pregnant and our wonderful son, Michael was born. It wasn’t until he was seven that I was finally, actually diagnosed with Cushing’s.

When I had my early Cushing’s symptoms, I thought I was pregnant again but it was not to be.

I’ll never forget the autumn when he was in second grade. He was leaving for school and I said goodbye to him. I knew I was going into NIH that day for at least 6 weeks and my future was very iffy. The night before, I had signed my will – just in case. He just turned and headed off with his friends…and I felt a little betrayed.

Michael wrote this paper on Cushing’s when he was in the 7th grade. From the quality of the pages, he typed this on typing paper – no computers yet!

Click on each page to enlarge.

I survived my time and surgery at NIH and Michael grew up to be a wonderful young man, if an only child. 🙂

For the mathematically inclined, this is his blog. Xor’s Hammer. I understand none of it. He also has a page of Math and Music, which I also don’t understand.

These days, he’s working on Wall Street, running a Math Meetup, still playing the piano… Speaking of piano, he met his lovely wife through their mutual piano teacher! From the October wedding…

🎬 Video: Growth Hormone Supplementation May Contribute To Successful Pregnancy For Women With Hypopituitarism

April 2, 2019April 2, 2019 MaryO Uncategorized Dr. Maria Fleseriu, growth hormone, hypopituitarism, OHSU, Pituitary, pregnant, Video

In this video exclusive, Maria Fleseriu, MD, professor of neurological surgery and professor of medicine in the division of endocrinology, diabetes and clinical nutrition in the School of Medicine at Oregon Health & Science University and director of the OHSU Northwest Pituitary Center, discusses management of hypopituitarism during pregnancy and an upcoming study of effects of growth hormone supplementation.

Successful in vitro fertilization and even natural pregnancy are possible for women with hypopituitarism, according to Fleseriu.

“Our job as endocrinologists is to make sure that we’re focusing on replacing all the pituitary hormones at the right level,” she said.

Fleseriu outlines considerations for assessing hormone levels and determining which should be supplemented — before, during and after pregnancy — for a healthy delivery and healthy baby. GH may be one of these, she said, despite its off-label use.

//players.brightcove.net/1866680400001/rkYwSIqIx_default/index.html?videoId=6019299784001

🎤 Archived Interview with Leslie, Pituitary Cushing’s survivor

April 22, 2018April 23, 2018 MaryO Interviews, Meetings and Conferences dermatologist, diagnosed, Dr William Malarky, Dr. Chandler, elbows, endocrinologist, Gamma Knife radiation, Interview, knuckles, neck, Ohio State University, pituitary gland, pregnant, stretch marks, tired, tumor, University Of Michigan, weakness, weight

Leslie had pituitary tumors removed twice at the University Of Michigan. After her second surgery she gave birth to her second baby. She has had another recurrence and has had Gamma Knife Radiation April 3, 2008.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/22/interview-with-jackie-samsmon-jordan (The title appears incorrect due to last minute guest changes.)

🦓 Day 12: Cushing’s Awareness Challenge 2018

April 12, 2018April 11, 2018 MaryO Cushing's Awareness Challenge child, children, Clomid, Cornell, Cushing's Awareness Challenge 2018, Cushing’s, dad, drugs, familial, fertility, MaryO, math, Math Meetup, Michael, miscarriage, NIH, PhD, pregnant, Using Tree Automata to Investigate Intuitionistic Propositional Logic, Wall Street, will

I needn’t have worried.

In January 1974 I had a miscarriage. I was devastated. My father revealed that my mother had also had a miscarriage. I had no idea.

Eventually, I did get pregnant and our wonderful son, Michael was born. It wasn’t until he was seven that I was finally, actually diagnosed with Cushing’s.

When I had my early Cushing’s symptoms, I thought I was pregnant again but it was not to be.

Michael wrote this paper on Cushing’s when he was in the 7th grade. From the quality of the pages, he typed this on typing paper – no computers yet!

Click on each page to enlarge.

I survived my time and surgery at NIH and Michael grew up to be a wonderful young man, if an only child. 🙂

For the mathematically inclined, this is his blog. Xor’s Hammer. I understand none of it. He also has a page of Math and Music, which I also don’t understand.

These days, he’s working on Wall Street, running a Math Meetup, still playing the piano…

Interview with Leslie, pituitary Cushing’s survivor

April 21, 2017 MaryO Interviews, Meetings and Conferences dermatologist, diagnosed, Dr William Malarky, Dr. Chandler, elbows, endocrinologist, Gamma Knife radiation, Interview, knuckles, neck, Ohio State University, pituitary gland, pregnant, stretch marks, tired, tumor, University Of Michigan, weakness, weight

Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/22/interview-with-jackie-samsmon-jordan

Day 11: Cushing’s Awareness Challenge 2017

April 11, 2017April 13, 2017 MaryO Uncategorized child, children, Clomid, Cornell, Cushing's Awareness Challenge 2017, Cushing’s, dad, drugs, familial, fertility, MaryO, math, Math Meetup, Michael, miscarriage, NIH, PhD, pregnant, Using Tree Automata to Investigate Intuitionistic Propositional Logic, Wall Street, will

I needn’t have worried.

In January, 1974 I had a miscarriage. I was devastated. My father revealed that my mother had also had a miscarriage. I had no idea.

At some point after this I tried fertility drugs. Clomid and another drug. One or both drugs made me very angry/depressed/bitchy (one dwarf I left off the image) Little did I know that these meds were a waste of time.

Eventually, I did get pregnant and our wonderful son, Michael was born. It wasn’t until he was seven that I was finally, actually diagnosed with Cushing’s.

When I had my early Cushing’s symptoms, I thought I was pregnant again but it was not to be.

Michael wrote this paper on Cushing’s when he was in the 7th grade. From the quality of the pages, he typed this on typing paper – no computers yet!

Click on each page to enlarge.

I survived my time and surgery at NIH and Michael grew up to be a wonderful young man, if an only child. 🙂

For the mathematically inclined, this is his blog. Xor’s Hammer. I understand none of it. He also has a page of Math and Music, which I also don’t understand.

These days, he’s working on Wall Street, running a Math Meetup, still playing the piano…

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🦓 Day 14, Cushing’s Awareness Challenge 2022

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