Homenighthawk

nighthawk

March 6, 2019 MaryO

This forum is an invaluable resource with a treasure trove of information and I’ll continue to update my case in hopes that it may help others.

On the Message Boards

🦓 Day 25, Cushing’s Awareness Challenge 2020
As I said earlier, I have a history of daily naps of at least 3 hours a day. It cuts into everything and prevents me from doing many things. I have to schedule my life around these naps and it’s awful.
🦓 Day 24, Cushing’s Awareness Challenge 2020
In 1986 I was finally diagnosed with Cushing’s after struggling with doctors and trying to get them to test for about 5 years. I was going to go into the NIH (National Institutes of Health) in Bethesda, MD for final testing and then-experimental pituitary surgery. I was terrified and sure that I wouldn’t survive the surgery.
🦓 Day 23, Cushing’s Awareness Challenge 2020
Cushie Crusader, that’s me…and many others. I think we all have an opportunity to be Cushie Crusaders every time we tell others about our illness, share our story on or offline, post about our struggles – and triumphs – on the message boards, write blog posts in this Cushing’s Awareness Challenge…
🦓 Day 22, Cushing’s Awareness Challenge 2020
This is a tough one. Sometimes I’m in “why me” mode. Why Cushing’s? Why cancer? Unfortunately, there’s not a thing I can do about either. Cushing’s, who knows the risk factors? For kidney cancer I found out the risk factors and nearly none apply to me. So why? But why not? No particular reason why I should be exempt from anything.
🖤 In Memory of Natalie Fay ~ April 21, 2008
Natalie had a BLA in March, 2008. She died April 21, 2008. She was only 42 and had recently had a BLA. I first met Natalie at a local lunch in November of 2001 and have seen her several times since then.
🦓 Day 21, Cushing’s Awareness Challenge 2020
The image above is from our first local meeting, here in Northern VA – note the 6 Cushing St. sign behind us. Natalie was the Cushie in the middle. Today is the anniversary of Natalie’s death. Last month was the anniversary of Sue’s death. I wrote about Janice earlier.
🦓 Day 20, Cushing’s Awareness Challenge 2020
And today, we talk about pink jeeps and ziplines… How in the world did we get here in a Cushing’s Challenge? I’m sliding these in because earlier I linked (possibly!) my growth hormone use as a cause of my cancer – and I took the GH due to Cushing’s issues. Clear? LOL
🦓 Day 19, Cushing’s Awareness Challenge 2020
After I was finished with the Cushing’s long diagnostic process, surgery and several post-op visits to NIH, I was asked to give the scripture reading at my church. The man who preached the sermon that week was the survivor of a horrific accident where he and his family were hit by a van while waiting at an airport.
🦓 Day 18, Cushing’s Awareness Challenge 2020
In case you haven’t guessed it, my cause seems to be Cushing’s Awareness. I never really decided to devote a good portion of my life to Cushing’s, it just fell into my lap, so to speak – or my laptop. I had been going along, raising my son, keeping the home fires burning, trying to forget all about Cushing’s...
🖤 In Memory: Diane
I am not sure of the exact date but this was originally posted April 18, 2008... My name is Amy and my very best friend just passed away from an adrenal crisis. Diane was unaware that she had any adrenal issue.

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