Homenighthawk

nighthawk

March 6, 2019 MaryO

This forum is an invaluable resource with a treasure trove of information and I’ll continue to update my case in hopes that it may help others.

On the Message Boards

❣️The Message Boards Turn 22 Today! ❣️
Today is the birthday, or anniversary, of the boards starting September 30, 2000 (The rest of the site started earlier that year on July 21, 2000) As of today, we have 73,024 members who have made countless posts.
Comment - ❣️The Message Boards Turn 22 Today! ❣️
Comment from LinkedIn: Congratulations Mary! You have helped more lives than you will ever know including mine. I am forever grateful for finding your website 18 years ago when I was finally diagnosed with Cushings Disease after a 2-year search for answers. Thank you 😊
🖤 In Memory: Bettye Jean Douglas, September 28, 2016
Bettye passed away due to complications of Cushing’s disease. Once she was finally diagnosed, a decision was made against surgery and Bettye was put on the cortisol-lowering medication Korlym. Though she had initially gained weight from Cushing’s disease, as many patients do, she rapidly lost weight and was admitted into hospice care soon after.
🖤 In Memory: Joanne Swain
Joanne was known on the boards as raggettyjoanne. Mario VandDermeij announced the passing of his loving wife of 23 years. Joanne Swain VanDermeij at the age of 56. After 2 years and 3 months of fighting the system, Joanne was finally diagnosed March the 14th, 2011, with full blown adrenal Cushing's.
📰 Recordati scores FDA nod for Cushing's disease med—and Novartis castoff—Isturisa
The FDA on Friday approved Recordati's Isturisa (osilodrostat) to treat Cushing's disease—a rare disease in which patients' adrenal glands produce too much cortisol—in those who have undergone a prior pituitary gland surgery or are not eligible for one.
⭐️ Top Picks on the Message Boards updated September 26, 2022
Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
ℹ️ Basics: Diagnostic Procedures in Suspected Adrenocortical Carcinoma
Patients with suspected adrenocortical carcinoma (ACC) may also undergo additional tests to identify excess sex steroids and steroid precursors, mineralocorticoids and glucocorticoids.
📰 TP53 Mutations in Functional Corticotroph Tumors Are Linked to Invasion and Worse Clinical Outcome
Mutations in the two Cushing’s disease mutational hotspots USP8 and USP48 are less frequent in corticotroph macroadenomas and invasive tumors. There is evidence that TP53 mutations are not as rare as previously thought in these tumors.
📰 Osilodrostat normalizes urinary free cortisol in Cushing’s disease for most at 72 weeks
More than 80% of adults with Cushing’s disease receiving osilodrostat had normalized mean urinary free cortisol levels at 72 weeks of treatment, according to findings from the LINC 3 study extension.
ℹ️ Basics: Pseudo-Cushing’s syndrome
Pseudo-Cushing’s syndrome is when symptoms are similar to those of Cushing’s syndrome, but further tests show that the syndrome is not present.

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