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Sybil F

October 1, 2018 MaryO

You saved my life!!!

~ In response to a Facebook post on the Birthday of the Message Boards

‼️ Message Board Upgrade Done
Among other things, we now have Introducing Courses Courses is a new, lightweight learning platform designed to help you provide a new learning experience for your members. Courses are perfect for requiring your community to read and understand documentation and to deliver training and lessons to your community.
‼️ Solu-Cortef® Shortage
Pfizer has been experiencing a supply issue for our life saving drug Solu-Cortef® and many in our community have been unable to find it. According to Pfizer they will soon be back to "normal" production rates. (projected end of June) However, we understand that some of you are still unable to fill your prescriptions and […]
✍️ Follow HappyGirl's BLA Journey
May 28th will be 3 months post bla. Still heading in the right direction weight wise! Woot! My highest cushie weight was 312 on my lil 5 ft 6 frame.
‼️ Message Board Upgrade (and new features!) Coming this Weekend
Version 4.7.10 of Invision Community is now available This is our May maintenance release. Key changes include: Introducing Courses Giving you control with Email Bounce Management
✍️ Comment added to Deborah S, Undiagnosed Bio
I have exactly the same problem, diagnosed with pots but think it’s cushings – did you ever get an outcome?
🖤 In Memory of Melinda Smith ~ May 9, 2014
Sadly, we lost another Cushing’s patient on Friday, May 9, 2014. Melinda was a member of the Cushing’s Help message boards since Jun 24, 2007. She was only 25 and left behind a young son and many loving family members.
🖤 In Memory of Gregory J. Bart Jr. ~ May 7, 2016
He died of a presumed heart attack. September 19, 2015 he said ''I was diagnosed hypertensive way back when I was 20. The condition remained for years, and became more acute with my cushings pit tumor. I still have high blood pressure, partially teated with three meds. I'll have to consult my doc and see […]
🖤 In Memory of Patti ~ May 2, 2002
From the Message Boards: ” I loved her, she was a great friend. She died of adrenal cortical carcinoma.”
🖤 In Memory of Kathryn McBride 'Bridie' Miller ~ May 1, 2007
'My name is Caroline and I dont post often but have met a few of you guys and read the board regularly, it has definitely been a godsend to cushies everywhere. The reason I am writing tonight is I have just received devastating information about a dear friend of mine, and a woman some of […]
⁉️ Myths and Facts about Cushing’s: Even Though You Are Chronically Ill, You Should Have The Same Amount Of Energy Every Day…
Christine Miserandino uses the spoon theory to answer the question, “What does it feel like to be sick?” The spoons serve as a symbol for resources available and energy spent to get through every moment of every day.

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