Month: July 2019

đź‘Ą Ohio State Pituitary Patient Symposium 2019

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Ohio State Pituitary Patient Symposium 2019

 

 

**REGISTER NOW!**

Saturday, Sept 14, 2019

7:30am – 4:00pm

Please join the Pituitary Network Association and The Ohio State University for a Pituitary Patient Symposium featuring a series of pituitary and hormonal patient education sessions presented by some of the top physicians of pituitary and hormonal medicine. The symposium faculty will share the most up-to-date information and be available to answer your most pressing questions.

Keynote Speaker: Maria Fleseriu, MD FACE

**We are offering a limited number of registration only scholarships. Register today to claim your scholarship!**

Please email carol@pituitary.org to register!

*This registration is for the Patient Symposium only. The Ohio State University is offering a CME Course separate from our Symposium. For information on the CME course go to ccme.osu.edu
OSU Pituitary Symposium Agenda
Saturday, Sept. 14, 2019
Patient and Family Track
Gabbe Conference Room – James L045

 

7:30 AM Registration and Breakfast
8:00 AM Welcoming Remarks and Introductions: The OSU Skull Base and Pituitary Team
8:05 AM Trans-sphenoidal Approach: What to Expect? Post-Operative Complications
Richard Carrau, MD Professor Department of Otolaryngology OSUCCC – James
8:30 AM Radiation Therapy? Difference Between Modalities and Possible Risks
Dukagjin M Blakaj, MD, PhD
OSUCCC – James
9:00 AM What Are The Challenges Our Patients Face, and How Can We Help?
Kami Perdue, PA-C
OSUCCC – James
9:30 AM Round Table Q & A
9:45 AM Mid-Morning Break and Visit Vendors
10:00 AM Acromegaly: Why it Takes That Long to Diagnose? What are the Options?
Lawrence Kirschner, MD, PhD  Professor Division of Endocrinology, Diabetes, and Metabolism
OSUCCC – James
10:30 AM Growth Hormone Deficiency: Beyond Growth
Rohan Henry, MD Pediatric Endocrinologist
Nationwide Children’s Hospital
11:00 AM Hypopituitarism: Pitfalls and Recommendations
Maria Fleseriu, MD, FACE
Oregon Health and Science University – Keynote Speaker
11:30 AM Round Table Q & A
11:45 AM Lunch Break and Patient’s Journey
12:45 PM Pituitary Trivia
Luma Ghalib, MD Assistant Professor – Clinical Division of Endocrinology, Diabetes, and Metabolism
OSUCCC – James
Brian Lee, RN OSUCCC – James
1:15 PM Surgical Approach: What to Expect
Daniel Prevedello, MD Professor and Chair, Department of Neurological Surgery
OSUCCC – James
1:45 PM Visual Complications of Pituitary/Sellar Lesion? Predictors of Outcome
Abbe Craven, MD Assistant Professor – Clinical Department of Ophthalmology
OSUCCC – James
2:15 PM Round Table Q & A
2:30 PM Mid-Afternoon Break and Visit Vendors
2:45 PM Recovering from Trans-sphenoidal Surgery, Challenges for the Patient and their Families
Traci Douglass, RN
OSUCCC – James
3:15 PM Pituitary Network Association: Cushing’s Disease: Psychological Research and Clinical Implications
Jessica Diller Kovler, AM, MA, PhD
PNA Board Member
3:45 PM Closing Remarks
4: 00 PM Adjourn

đź“ž Webinar: Approaches for Pituitary Surgery

MaryO Helpful Doctors, Interviews, Meetings and Conferences , , , , , , , , ,

Dr. Theodore Friedman hosts Gautam Mehta, MD for a fascinating webinar on Approaches for Pituitary Surgery

Dr. Mehta is a neurosurgeon specializing in pituitary surgery at the House Clinic in Los Angeles. He was trained by Ian McCutcheon, MD and Ed Oldfield, MD

Topics to be discussed include:
• How does Dr. Friedman diagnose Cushing’s Disease
• How does Dr. Friedman determine who goes to surgery?
• What type of patients need surgery besides those with Cushing’s Disease?
• How do the neurosurgeon and the Endocrinologist work together?
• How does the neurosurgeon read pituitary MRIs?
• What types of surgical approaches are used for pituitary surgery?
• How long does surgery take and how long will a patient be in the hospital?
• What are the risks of pituitary surgery and how can they be minimized?

Sunday • August 4 • 6 PM PDT

Click here to start your meeting.

or
https://axisconciergemeetings.webex.com/axisconciergemeetings/j.php?MTID=ma1d8d5ef99605e305980e2f7cdfdb7bd
OR
Join by phone: (855) 797-9485
Meeting Number (Access Code): 807 028 597 Your phone/computer will be muted on entry.
Slides will be available on the day of the talk at slides 
There will be plenty of time for questions using the chat button. Meeting Password: hormones
For more information, email us at mail@goodhormonehealth.com

❣️Happy 19th Birthday Cushing’s Help!

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It’s unbelievable but the idea for Cushing’s Help and Support arrived 19 years ago late last night. I was talking with my dear friend Alice, who ran a wonderful menopause site called Power Surge, wondering why there weren’t many support groups online (OR off!) for Cushing’s and I wondered if I could start one myself and we decided that I could.

Thanks to a now-defunct Microsoft program called FrontPage, the first one-page “website” (http://www.cushings-help.com) first went “live” July 21, 2000 and the message boards September 30, 2000.

All our Cushing’s-related sites:

 

❣️We’re nearly 19!

MaryO Uncategorized , , , , , , , ,

happybirthday-2015

It’s unbelievable but the idea for Cushing’s Help and Support arrived 19 years ago tonight.  That’s a long time for anything online.

I was talking with my dear friend Alice, who ran a wonderful menopause site called Power Surge, wondering why there weren’t many support groups online (OR off!) for Cushing’s and I wondered if I could start one myself and we decided that I could.

The first website (http://www.cushings-help.com) first went “live” July 21, 2000 and the message boards September 30, 2000. Hopefully, with these sites, I’m making some helpful differences in someone else’s life!

The message boards are still active and we have a Cushing’s Awareness Day Forum, podcasts, phone support and much more.

Whenever one of the members of the boards gets into NIH, I try to go to visit them there. Other board members participate in the “Cushie Helper” program where they support others with one-on-one support, doctor/hospital visits, transportation issues and more.

Of course, we now have a Facebook page and 2 groups.  Both are secret, so if you want to join, please email or PM me for an invitation.

Other sites in the Cushing’s Help “Family”

 

maryo colorful zebra

🎬 Video: Taylor Davis Spreads Awareness about Cushing’s Disease

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FLORENCE, SC (WBTW) – 21-year-old Taylor Davis, spent nearly three years battling a mysterious illness called Cushing’s Disease.

“I could barely walk to class anymore. I was in pain. I gained like 70 pounds, despite extreme dieting and exercising,” said Davis.

When Davis enrolled into her spring semester classes at USC, she started experiencing several symptoms.

“I noticed my grades started to take a fall and I was like ok something is seriously wrong here because I’ve never had trouble in school and I could stay up studying all night long and not remember anything the next day,” said Davis.

Davis went from doctor to doctor, but no one could figure out what was wrong with her.

“I thought I was going crazy. Every doctor would say keep trying to diet and exercise and we’ll get you on some medication for your depression and your anxiety,” said Davis.

After dropping out of USC and spending time in the emergency room, a Cushing’s Disease Facebook group led her to a research doctor in California.

“Around October is when the doctor officially diagnosed me and within a month I had my brain surgery scheduled,” said Davis.

Fast forward a couple months later, Davis is thankful to share her experiences on social media and help others going through the same disease.

“I post about it all the time and by using the hashtags for Cushing’s disease, I probably get three to four messages a day from people all over the world. I’ve had people message me in Spanish and I have to use google translate to try and help them,” said Davis.

From https://www.wbtw.com/news/a-woman-in-the-pee-dee-spreads-awareness-on-mysterious-disease/

🎬 Video: Pituitary tumors: Mayo Clinic Radio

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This interview originally aired July 6, 2019.  Dr. William Young Jr., a Mayo Clinic endocrinologist, discussed pituitary gland tumors.

The pituitary gland is a hormone-producing gland at the base of the brain. Sometimes known as the “master gland,” the pituitary gland produces and regulates hormones that help the body function. Pituitary tumors are abnormal growths that develop in your pituitary gland.

Some pituitary tumors result in too many of the hormones that regulate important functions of your body. Some pituitary tumors can cause your pituitary gland to produce lower levels of hormones. Most pituitary tumors are noncancerous (benign) growths that remain in your pituitary gland or surrounding tissues, and don’t spread to other parts of your body. There are various options for treating pituitary tumors, including removing the tumor, controlling its growth and managing your hormone levels with medications. Your health care provider also may recommend a wait-and-see approach.

đź“žTheodore Friedman Webinar on Treatments for Insomnia

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Dr. Theodore Friedman hosts Jay Khorsandi, DDS and Barbara Burggraaff, MD from Snore Experts for an important webinar on insomnia

Topics to be discussed include:
• What are the causes of insomnia?
• How do hormone imbalances lead to insomnia?
• What lifestyle changes can you do to help with insomnia?
• What supplements are helpful for insomnia?
• What medicines are helpful for insomnia?

Sunday • June 2nd • 6 PM PST

Click here on start your meeting.or
https://axisconciergemeetings.webex.com/axisconciergemeetings/j.php?MTID=m2f7d9547a80ec47e43869517ef006f34
OR
Join by phone: (855) 797-9485

Meeting Number (Access Code): 807 924 444
Meeting Password: hormones

Your phone/computer will be muted on entry. There will be plenty of time for questions using the chat button.

For more information, email us at mail@goodhormonehealth.com