👥 Ohio State Pituitary Patient Symposium 2019

Ohio State Pituitary Patient Symposium 2019

 

 

**REGISTER NOW!**

Saturday, Sept 14, 2019

7:30am – 4:00pm

Please join the Pituitary Network Association and The Ohio State University for a Pituitary Patient Symposium featuring a series of pituitary and hormonal patient education sessions presented by some of the top physicians of pituitary and hormonal medicine. The symposium faculty will share the most up-to-date information and be available to answer your most pressing questions.

Keynote Speaker: Maria Fleseriu, MD FACE

**We are offering a limited number of registration only scholarships. Register today to claim your scholarship!**

Please email carol@pituitary.org to register!

*This registration is for the Patient Symposium only. The Ohio State University is offering a CME Course separate from our Symposium. For information on the CME course go to ccme.osu.edu
OSU Pituitary Symposium Agenda
Saturday, Sept. 14, 2019
Patient and Family Track
Gabbe Conference Room – James L045

 

7:30 AM Registration and Breakfast
8:00 AM Welcoming Remarks and Introductions: The OSU Skull Base and Pituitary Team
8:05 AM Trans-sphenoidal Approach: What to Expect? Post-Operative Complications
Richard Carrau, MD Professor Department of Otolaryngology OSUCCC – James
8:30 AM Radiation Therapy? Difference Between Modalities and Possible Risks
Dukagjin M Blakaj, MD, PhD
OSUCCC – James
9:00 AM What Are The Challenges Our Patients Face, and How Can We Help?
Kami Perdue, PA-C
OSUCCC – James
9:30 AM Round Table Q & A
9:45 AM Mid-Morning Break and Visit Vendors
10:00 AM Acromegaly: Why it Takes That Long to Diagnose? What are the Options?
Lawrence Kirschner, MD, PhD  Professor Division of Endocrinology, Diabetes, and Metabolism
OSUCCC – James
10:30 AM Growth Hormone Deficiency: Beyond Growth
Rohan Henry, MD Pediatric Endocrinologist
Nationwide Children’s Hospital
11:00 AM Hypopituitarism: Pitfalls and Recommendations
Maria Fleseriu, MD, FACE
Oregon Health and Science University – Keynote Speaker
11:30 AM Round Table Q & A
11:45 AM Lunch Break and Patient’s Journey
12:45 PM Pituitary Trivia
Luma Ghalib, MD Assistant Professor – Clinical Division of Endocrinology, Diabetes, and Metabolism
OSUCCC – James
Brian Lee, RN OSUCCC – James
1:15 PM Surgical Approach: What to Expect
Daniel Prevedello, MD Professor and Chair, Department of Neurological Surgery
OSUCCC – James
1:45 PM Visual Complications of Pituitary/Sellar Lesion? Predictors of Outcome
Abbe Craven, MD Assistant Professor – Clinical Department of Ophthalmology
OSUCCC – James
2:15 PM Round Table Q & A
2:30 PM Mid-Afternoon Break and Visit Vendors
2:45 PM Recovering from Trans-sphenoidal Surgery, Challenges for the Patient and their Families
Traci Douglass, RN
OSUCCC – James
3:15 PM Pituitary Network Association: Cushing’s Disease: Psychological Research and Clinical Implications
Jessica Diller Kovler, AM, MA, PhD
PNA Board Member
3:45 PM Closing Remarks
4: 00 PM Adjourn

📞 Webinar: Approaches for Pituitary Surgery

Dr. Theodore Friedman hosts Gautam Mehta, MD for a fascinating webinar on Approaches for Pituitary Surgery

Dr. Mehta is a neurosurgeon specializing in pituitary surgery at the House Clinic in Los Angeles. He was trained by Ian McCutcheon, MD and Ed Oldfield, MD

Topics to be discussed include:
• How does Dr. Friedman diagnose Cushing’s Disease
• How does Dr. Friedman determine who goes to surgery?
• What type of patients need surgery besides those with Cushing’s Disease?
• How do the neurosurgeon and the Endocrinologist work together?
• How does the neurosurgeon read pituitary MRIs?
• What types of surgical approaches are used for pituitary surgery?
• How long does surgery take and how long will a patient be in the hospital?
• What are the risks of pituitary surgery and how can they be minimized?

Sunday • August 4 • 6 PM PDT

Click here to start your meeting.

or
https://axisconciergemeetings.webex.com/axisconciergemeetings/j.php?MTID=ma1d8d5ef99605e305980e2f7cdfdb7bd
OR
Join by phone: (855) 797-9485
Meeting Number (Access Code): 807 028 597 Your phone/computer will be muted on entry.
Slides will be available on the day of the talk at slides 
There will be plenty of time for questions using the chat button. Meeting Password: hormones
For more information, email us at mail@goodhormonehealth.com

❣️Happy 19th Birthday Cushing’s Help!

It’s unbelievable but the idea for Cushing’s Help and Support arrived 19 years ago late last night. I was talking with my dear friend Alice, who ran a wonderful menopause site called Power Surge, wondering why there weren’t many support groups online (OR off!) for Cushing’s and I wondered if I could start one myself and we decided that I could.

Thanks to a now-defunct Microsoft program called FrontPage, the first one-page “website” (http://www.cushings-help.com) first went “live” July 21, 2000 and the message boards September 30, 2000.

All our Cushing’s-related sites:

 

❣️We’re nearly 19!

happybirthday-2015

It’s unbelievable but the idea for Cushing’s Help and Support arrived 19 years ago tonight.  That’s a long time for anything online.

I was talking with my dear friend Alice, who ran a wonderful menopause site called Power Surge, wondering why there weren’t many support groups online (OR off!) for Cushing’s and I wondered if I could start one myself and we decided that I could.

The first website (http://www.cushings-help.com) first went “live” July 21, 2000 and the message boards September 30, 2000. Hopefully, with these sites, I’m making some helpful differences in someone else’s life!

The message boards are still active and we have a Cushing’s Awareness Day Forum, podcasts, phone support and much more.

Whenever one of the members of the boards gets into NIH, I try to go to visit them there. Other board members participate in the “Cushie Helper” program where they support others with one-on-one support, doctor/hospital visits, transportation issues and more.

Of course, we now have a Facebook page and 2 groups.  Both are secret, so if you want to join, please email or PM me for an invitation.

Other sites in the Cushing’s Help “Family”

 

maryo colorful zebra

❓Can You Help?

Guest Question from the message boards: Low TSH, Low FT4, buffalo hump and many other symptoms

I have been struggling with progressive symptoms of extreme fatigue, muscle weakness, increased anxiety and depression, rage, acne, weight gain, and sweating just doing small tasks over the last 3 to 4 years. I also have a very hard time controlling my body temperature. I get really cold, turn the heat up, get really hot, turn the heat down, over and over throughout the day. (I’m 36 years old) If I’m sitting I’m freezing. If I’m up moving I’m on fire and sweating. Just such dramatic ends of the spectrum. Anyway, for a long time my GP was only checking my TSH. (Hypothyroidism runs strong in my family). My TSH has always been on the low end of normal. I was feeling so awful, I insisted they were missing something and asked them to check my FT4. That has also always ran at the lower end of normal. They treat me with Levothyroxine to try to increase my FT4, but in doing so, cause my TSH to go even lower. I googled what it meant to have a Low TSH with a low FT4 and it said it could be hypothyroidism caused by a pituitary tumor. I then came across Cushing’s which started showing pictures of the classic “buffalo hump” and my jaw hit the floor.

About a month ago, I caught myself in profile in my mirror and was completely taken aback by my appearance. My husband and I aren’t sure how long my neck has looked this way. Either way I was just wondering what others thoughts were. My GP has ordered some kind of cortisol test thus far that I’ll go for tomorrow. I would also like an MRI of my pituitary and possibly adrenals. I’m just tired of sleeping my life away and have been searching for answers for so long. Please let me know what you think of the hump.

Are there other causes for this appearance? Thanks

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📞Theodore Friedman Webinar on Treatments for Insomnia

Dr. Theodore Friedman hosts Jay Khorsandi, DDS and Barbara Burggraaff, MD from Snore Experts for an important webinar on insomnia

Topics to be discussed include:
• What are the causes of insomnia?
• How do hormone imbalances lead to insomnia?
• What lifestyle changes can you do to help with insomnia?
• What supplements are helpful for insomnia?
• What medicines are helpful for insomnia?

Sunday • June 2nd • 6 PM PST

Click here on start your meeting.or
https://axisconciergemeetings.webex.com/axisconciergemeetings/j.php?MTID=m2f7d9547a80ec47e43869517ef006f34
OR
Join by phone: (855) 797-9485

Meeting Number (Access Code): 807 924 444
Meeting Password: hormones

Your phone/computer will be muted on entry. There will be plenty of time for questions using the chat button.

For more information, email us at mail@goodhormonehealth.com