6 Days to Go!

Only 6 days until the Cushing’s Awareness Challenge 2017 begins.  At night, when I’m supposed to be sleeping, ideas for posts keep swarming through my head.  Sometimes, they form into fully-written posts.  Then, when I wake up, the posts are gone.

I plan to follow the suggestions to some extent and have a few ideas of my own.  Over the years, I’ve posted lots on several blogs but I don’t know if I can get 30 days of Cushing’s stuff together…again!  This is the sixth year of the Cushing’s Awareness Challenge.

The list of bloggers is on the right side and is constantly updated as new URLs come in.

If you want to join us, its not too late.  Directions and suggestions for posts can be found here: http://cushie-blogger.blogspot.com/2015/03/cushings-awareness-challenge-2015.html

If you have ideas for what you’d like to read about (Cushing’s related, of course), please feel free to put it in the comments area.

Webinar: Growth Hormone Replacement: Not Just for Kids?

Thu, Mar 23, 2017 12:00 PM – 1:00 PM EDT

Presented by:

Susan L Samson MD PhD FRCPC FACE
Associate Professor, Department of Medicine
Medical Director, Pituitary Center at Baylor St. Luke’s Medical Center

Learning Objectives: At the end of the session the learner will be able to:

1) Discuss the testing approaches for confirmation of growth hormone deficiency in adult patients with pituitary disease
2) Understand the far reaching effects of growth hormone throughout the body
3) Describe the potential benefits and adverse effects of growth hormone replacement therapy in appropriate patients

Presenter Bio:

Susan L. Samson MD PhD FRCPC FACE is an Associate Professor of Medicine and Neurosurgery at Baylor College of Medicine in Houston, Texas. She is originally from Canada and completed her medical degree at Queen’s University (Kingston, Ontario) and Internal Medicine training in her hometown of Calgary, Alberta. She moved to Baylor for Endocrinology fellowship training and then joined the faculty. She is the Medical Director of the Pituitary Center at Baylor St. Luke’s Medical Center where she is part of a multidisciplinary team – with Dr. Daniel Yoshor (Neurosurgery) and Dr. Mas Takashima (Otolaryngology)- who are committed to excellence in surgical and clinical outcomes for pituitary patients. She currently serves on the board of directors of the American Association of Clinical Endocrinologists and is a member of the Neuroendocrine and Pituitary Scientific committee. She also is involved in training future endocrinologists as the Endocrinology fellowship program director. Dr. Samson has a basic science lab and has also been involved as a site principal investigator for pharmaceutical clinical trials of therapies for pituitary disorders. She has been awarded the Fulbright and Jaworski L.L.P. Faculty Excellence Award for Teaching and Evaluation as well as the Rising Star award at Baylor College of Medicine. Her major clinical interest is pituitary disorders including pituitary adenomas, hypopituitarism, Cushing’s disease and Acromegaly.

Register at https://attendee.gotowebinar.com/register/6691253214341976066?utm_source=newsletter_232&utm_medium=email&utm_campaign=webinar-announcement-growth-hormone-replacement-not-just-for-kids

Time to Sign Up for the Cushing’s Awareness Challenge 2017

I plan to do the Cushing’s Awareness Challenge again. Last year’s info is here: http://cushie-blogger.blogspot.com/2016/03/fifth-annual-cushings-awareness.html

That page is getting very slow loading, so I’ve moved my own posts to this newer blog.

As always, anyone who wants to join me can share their blog URL with me and I’ll add it to the links on the right side, so whenever a new post comes up, it will show up automatically.

If the blogs are on WordPress, I try to reblog them all to get even more exposure on the blog, on Twitter and on Facebook at Cushings Help Organization, Inc

The Cushing’s Awareness Challenge is almost upon us again!
Do you blog? Want to get started?
Since April 8 is Cushing’s Awareness Day, several people got their heads together to create the Sixth Annual Cushing’s Awareness Blogging Challenge.
All you have to do is blog about something Cushing’s related for the 30 days of April.
There will also be a logo for your blog to show you’ve participated.
Please let me know the URL to your blog in the comments area of this post, on the Facebook page, in one of the Facebook Groups, on the message boards or an email  and I will list it on CushieBloggers ( http://cushie-blogger.blogspot.com/)
The more people who participate, the more the word will get out about Cushing’s.
Suggested topics – or add your own!
  • In what ways have Cushing’s made you a better person?
  • What have you learned about the medical community since you have become sick?
  • If you had one chance to speak to an endocrinologist association meeting, what would you tell them about Cushing’s patients?
  • What would you tell the friends and family of another Cushing’s patient in order to garner more emotional support for your friend? challenge with Cushing’s? How have you overcome challenges? Stuff like that.
  • I have Cushing’s Disease….(personal synopsis)
  • How I found out I have Cushing’s
  • What is Cushing’s Disease/Syndrome? (Personal variation, i.e. adrenal or pituitary or ectopic, etc.)
  • My challenges with Cushing’s
  • Overcoming challenges with Cushing’s (could include any challenges)
  • If I could speak to an endocrinologist organization, I would tell them….
  • What would I tell others trying to be diagnosed?
  • What would I tell families of those who are sick with Cushing’s?
  • Treatments I’ve gone through to try to be cured/treatments I may have to go through to be cured.
  • What will happen if I’m not cured?
  • I write about my health because…
  • 10 Things I Couldn’t Live Without.
  • My Dream Day.
  • What I learned the hard way
  • Miracle Cure. (Write a news-style article on a miracle cure. What’s the cure? How do you get the cure? Be sure to include a disclaimer)
  • Give yourself, your condition, or your health focus a mascot. Is it a real person? Fictional? Mythical being? Describe them. Bonus points if you provide a visual!
  • 5 Challenges & 5 Small Victories.
  • The First Time I…
  • Make a word cloud or tree with a list of words that come to mind when you think about your blog, health, or interests. Use a thesaurus to make it branch more.
  • How much money have you spent on Cushing’s, or, How did Cushing’s impact your life financially?
  • Why do you think Cushing’s may not be as rare as doctors believe?
  • What is your theory about what causes Cushing’s?
  • How has Cushing’s altered the trajectory of your life? What would you have done? Who would you have been
  • What three things has Cushing’s stolen from you? What do you miss the most? What can you do in your Cushing’s life to still achieve any of those goals?
  • What new goals did Cushing’s bring to you?
  • How do you cope?
  • What do you do to improve your quality of life as you fight Cushing’s?
  • How Cushing’s affects children and their families
  • Your thoughts…?
maryo colorful zebra