HomePosts tagged 'study'

Human Growth Hormone Study

May 11, 2022May 9, 2022 MaryO Interviews, Meetings and Conferences hGH, human growth hormone, Human Growth Hormone Deficiency, research, study

Research opportunity for Human Growth Hormone Deficiency caregivers of adolescent patients. This is a 75 min web-assisted phone interview, and the compensation is $125.

Please sign up at the link below to receive an email invite to the survey.

https://rarepatientvoice.com/CushingsHelp/

＄Growth Hormone Study Opportunity

March 24, 2021March 26, 2021 MaryO Interviews, Meetings and Conferences, What do you think? Growth Hormone Deficiency, RareVoice, study

Here’s your chance to make your voice heard on Growth Hormone Issues.

Anyone interested would sign up with Rare Patient Voice using the CushingsHelp referral Link. You would then get an email invite to the actual study.

Study Opportunity for Idiopathic Short Stature (ISS) Caregivers

This is a 30 min online survey and Compensation is $50

Please sign up at the link below for more information or to see if you qualify

https://rarepatientvoice.com/CushingsHelp/

👥 Pituitary Tumor Support Group
Please consider joining us for #Pituitary Tumor Support Group on Saturday October 7th, 2023 at 9am to discuss Current and Emerging Medical Therapies in Pituitary Tumor Treatment by Dr. Mahalakshi Honasage, #Endocrinologist, and Dr. Jack Rock, #Neurosurgery.
‼️ Message Board Upgrade Coming this Weekend
This is our September maintenance release. Key changes include: New Spam Prevention Features Introducing Community Hive
ℹ️ Cushing's Basics: Testing: Inferior Petrosal Sinus Sampling
Video, personal stories and "official information". The MRI still showed nothing, so they did a Petrosal Sinus Sampling Test. That scared me more than the prospect of surgery. (This test carries the risk of stroke and uncontrollable bleeding from the incision points.) Catheters were fed from my groin area to my pituitary gland and dye […]
📰 Rare Challenges in Diagnosing Cushing’s Syndrome and Primary Aldosteronism: A Case Report of a Female With a Negative Workup
Cushing’s syndrome with concurrent primary aldosteronism (PA) is a rare presentation, and establishing an early diagnosis is imperative to preventing morbidity and long-term sequelae. The diagnosis is established by sequential lab work, showing an elevated cortisol and aldosterone level.
ℹ️ Basics: Cushing's Syndrome vs. Cushing's Disease
Any condition that causes the adrenal gland to produce excessive cortisol results in the disorder Cushing's syndrome. Cushing syndrome is characterized by facial and torso obesity, high blood pressure, stretch marks on the belly, weakness, osteoporosis, and facial hair growth in females.
📰 Unique Gene Expression Signature in Periadrenal Adipose Tissue Identifies a High Blood Pressure Group in Patients With Cushing Syndrome
Cushing syndrome (CS) is a rare disease caused by excess cortisol levels with high cardiovascular morbidity and mortality. Hypertension in CS promotes hypercortisolism-associated cardiovascular events.
👥 Register for Johns Hopkins Pituitary Day October 7, 2023!
October 7 @ 9:00 am – 1:00 pm The annual Pituitary Patient Education Day is a free event that features presentations from Johns Hopkins pituitary experts.
🖤 In Memory: Kandace Bankston ‘Kandy’ Kline, September 9, 2007
Kandy Klein long-time member of the message boards passed away September 9, 2007.
ℹ️ Cushing's Basics: Testing: 24 Hour Urine Tests (UFC)
Twenty-four Hour Urine: The doctor will give you a gallon collection jug, usually with boric acid in it. The instructions are usually printed on the side. Generally, you urinate first thing in the morning, as usual. after that, you collect the rest of the urine for the next 24 hours in the jug. The directions […]
📰 Long-Term Efficacy and Safety of Osilodrostat in Patients with Cushing’s Disease
Osilodrostat provided long-term control of cortisol secretion that was associated with sustained improvements in clinical signs and physical manifestations of hypercortisolism. Osilodrostat is an effective long-term treatment for patients with Cushing’s disease.

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Human Growth Hormone Study

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＄Growth Hormone Study Opportunity

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