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😎 Letter to Cushies

November 14, 2023November 10, 2023 MaryO Cushing’s Help, Golden Oldie, message boards BLA, Golden Oldie, success story

Originally posted on Facebook November 14, 2017:

To all my Cushie friends who are still dealing with this horrible disease, keep fighting, don’t ever give up, you will get better. I told a very close friend of mine the other day, if I had the power I would heal everyone you today. Cushing’s is a horrible disease, and unless you have been through it there is no way anyone could ever understand it.

After a year and a half since my BLA and I am the healthiest, happiest person I have been in a very long time. I am working out with a personal trainer once a week because I am determined to regain the strength I lost due to having Cushing’s for six very long years. I have a long way to go and it is not going to happen overnight but it will happen.

I live each day to the absolute fullest and enjoy every minute of every day, I am so grateful to have made it through to the other side, not without some emotional and physical scars, but I made it none the less.

I think about and pray for all of you every day because without your knowledge and support I don’t know that I would have made it.

To those of you who are still on the boards please feel free to share this post and my story to everyone there. I am sorry I don’t go on the boards any more, but as I said I didn’t make through without some emotional scars.

I love you all, god bless and be good to yourself always.

Books: We Are Not Alone: Learning to Live with Chronic Illness

November 14, 2023November 10, 2023 MaryO books, message boards book, We Are Not Alone: Learning to Live with Chronic Illness

A twilight zone moment – I just started rereading this book again last night and this post from November 10, 2008 appeared on Facebook:

I still have a few extra copies to give away to message board members, if anyone is interested. If you want to get it on amazon, it’s at https://amzn.to/47tbkL4

✍️ MaryO – 18 Years Cancer-Free!
Today is the Eighteenth Anniversary of my kidney cancer surgery. These eighteen years have been bonus years for me. For my cancer stage, the 5-year survival rate was 81% and I’ve made it more than three times that long – so far.
🖤 In Memory of Melinda Smith ~ May 9, 2014
Sadly, we lost another Cushing’s patient on Friday, May 9, 2014. Melinda was a member of the Cushing’s Help message boards since Jun 24, 2007. She was only 25 and left behind a young son and many loving family members.
🖤 In Memory of Gregory J. Bart Jr. ~ May 7, 2016
He died of a presumed heart attack. September 19, 2015 he said ''I was diagnosed hypertensive way back when I was 20. The condition remained for years, and became more acute with my cushings pit tumor. I still have high blood pressure, partially teated with three meds. I'll have to consult my doc and see […]
🖤 In Memory of Patti ~ May 2, 2002
From the Message Boards: ” I loved her, she was a great friend. She died of adrenal cortical carcinoma.”
📰 Investigational Cushing’s Syndrome Medication Reduces BP, Glucose in Open-Label Trial
Relacorilant was deemed well tolerated in the trial. The most common adverse events were nausea, edema, back and extremity pain and fatigue, all of which were mild or moderate in nature and are consistent with symptoms people experience after surgery or the start of therapy to treat hypercortisolism.
🖤 In Memory of Kathryn McBride 'Bridie' Miller ~ May 1, 2007
'My name is Caroline and I dont post often but have met a few of you guys and read the board regularly, it has definitely been a godsend to cushies everywhere. The reason I am writing tonight is I have just received devastating information about a dear friend of mine, and a woman some of […]
🦓 Comment added to Day 30, Cushing’s Awareness Challenge
For this year, anyone remember Karnac from Johnny Carson? I hold in my hand...? And the cued audience starts cheering, seemingly delighted that this is the last question?
🦓 Day 30, Cushing’s Awareness Challenge
Today is the final day of the Cushing’s Awareness Challenge and I wanted to leave you with this word of advice… To that end, I’m saving some of what I know for future blog posts, maybe even another Cushing’s Awareness Challenge next year.
🦓 Day 29, Cushing’s Awareness Challenge
In 1983 I came across a little article in the Ladies Home Journal which said: “If you have these symptoms…” I found the row with my symptoms and the answer read “…ask your doctor about Cushing’s”.
🦓 Day 28: Cushing’s Awareness Challenge
I had found out that I had my kidney cancer on Friday, April 28, 2006 and my surgery on May 9, 2006. I was supposed to go on a Cushie Cruise to Bermuda on May 14, 2006. My surgeon said that there was no way I could go on that cruise and I could not […]