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Interview with FerolV, pituitary survivor

April 19, 2017April 18, 2017 MaryO Interviews, Meetings and Conferences ACTH, adenoma, cortisol, diabetes, Discovery Health, endocrinologist, hair loss, hirsuitism, hypertension, Loestrin, nausea, night sweats, OBGYN, Pituitary, prolactin, scar tissue, skeletal soft tissue, steroids, surgery, wean, weight

Ferol started noticing irregular symptoms in her late 20’s, but more developed since 2001, and rapidly more chronic as time went by. Finally, at her March 2005 physical, she had enough symptoms listed for her GP to start getting the connection to Cushing’s.

She was immediately referred to Dr. Adam Spitz, endocrinologist, with a battery of tests confirmed the initial diagnosis. Her pituitary surgery was performed 09-30-05. She has lost 30+ pounds after reaching a high of 190 prior to surgery.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/08/interview-with-ferolv-pituitary-survivor

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Day 19: Cushing’s Awareness Challenge 2017

April 19, 2017April 18, 2017 MaryO Uncategorized awareness, choir, Cushie Crusader, Cushing's Awareness Challenge 2017, Cushing’s, handbell, MaryO, message boards, piano student, SuziQ

Cushie Crusader, that’s me…and many others. I think we all have an opportunity to be Cushie Crusaders every time we tell others about our illness, share our story on or offline, post about our struggles – and triumphs – on the message boards, write blog posts in this Cushing’s Awareness Challenge…

I have brochures printed up that I’ll sometimes give to people who look like they might need the info. My husband carries business cards since he’s getting pretty good at recognizing Cushies. Robin made a great information card that anyone can print our and share with others.

When we have prayer time in my handbell practice or choir rehearsals I try to mention issues that are going on in the Cushing’s community. People are slowly but steadily learning about Cushing’s week by week.

A piano student mentioned that a person in a group she is in has Cushing’s, a non-Cushie friend mentioned last week that she had gone with a friend of hers to an endo appointment to discuss Cushing’s.

Get out there and talk about Cushing’s. Let people know that it’s not just for dogs and horses (and sometimes ferrets)!

After you’ve been diagnosed, don’t just forget all about Cushing’s – stick around the boards and help others who are just getting started.

Here’s something I had made for Sue with SuperSue embroidered on the back.

Picture your name instead:

👥 Pituitary Tumor Support Group
Please consider joining us for #Pituitary Tumor Support Group on Saturday October 7th, 2023 at 9am to discuss Current and Emerging Medical Therapies in Pituitary Tumor Treatment by Dr. Mahalakshi Honasage, #Endocrinologist, and Dr. Jack Rock, #Neurosurgery.
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📰 Rare Challenges in Diagnosing Cushing’s Syndrome and Primary Aldosteronism: A Case Report of a Female With a Negative Workup
Cushing’s syndrome with concurrent primary aldosteronism (PA) is a rare presentation, and establishing an early diagnosis is imperative to preventing morbidity and long-term sequelae. The diagnosis is established by sequential lab work, showing an elevated cortisol and aldosterone level.
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Any condition that causes the adrenal gland to produce excessive cortisol results in the disorder Cushing's syndrome. Cushing syndrome is characterized by facial and torso obesity, high blood pressure, stretch marks on the belly, weakness, osteoporosis, and facial hair growth in females.
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👥 Register for Johns Hopkins Pituitary Day October 7, 2023!
October 7 @ 9:00 am – 1:00 pm The annual Pituitary Patient Education Day is a free event that features presentations from Johns Hopkins pituitary experts.
🖤 In Memory: Kandace Bankston ‘Kandy’ Kline, September 9, 2007
Kandy Klein long-time member of the message boards passed away September 9, 2007.
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Twenty-four Hour Urine: The doctor will give you a gallon collection jug, usually with boric acid in it. The instructions are usually printed on the side. Generally, you urinate first thing in the morning, as usual. after that, you collect the rest of the urine for the next 24 hours in the jug. The directions […]
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Osilodrostat provided long-term control of cortisol secretion that was associated with sustained improvements in clinical signs and physical manifestations of hypercortisolism. Osilodrostat is an effective long-term treatment for patients with Cushing’s disease.

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