Karen (Rooon55), February 21, 2008. Karen’s disease started when she was a little girl (7) and she finally got a diagnosis in 2005. She had cycling Cushing’s, Thyroid disease, GH deficiency, and Auto immune Alopecia. She believes she is cured after two Pituitary surgeries.
A doctor didn’t advise Vermont’s Karen Nolan (Rooon on the boards) that she might be one of the scant 3.5 per million people diagnosed annually with Cushing’s disease – another Cushing’s patient did.
Uh, Oh – I’m nearly a day late (and a dollar short?)…and I’m not yet sure what today’s topic will be. I seem swamped by everything lately, waking up tired, napping, going to bed tired, waking up in the middle of the night, starting all over again…and I’m travelling this weekend, which makes everything more hectic and tiring.
It’s been like this since I was being diagnosed with Cushing’s in the mid-1980’s. You’d think things would be improved in the last 30 years. But, no.
My mind wants things to have improved, so I’ve taken on more challenges, and my DH has provided some for me (see one of my other blogs, MaryOMedical).
Thank goodness, I have only part-time jobs (5 0f them!), that I can mostly do from home. I don’t know how anyone post-Cushing’s could manage a full-time job!
I can see this post morphing into the topic “My Dream Day“…
I’d wake up refreshed and really awake at about 7:00AM and take the dog out for a brisk run.
Get home about 8:00AM and start on my website work.
Later in the morning, I’d get some bills paid – and there would be enough money to do so!
After lunch, out with the dog again, then practice the piano some, read a bit, finish up the website work, teach a few piano students, work on my church jobs, then dinner.
After dinner, check email, out with the dog, maybe handbell or choir practice, a bit of TV, then bed about 10PM
Nothing fancy but NO NAPS. Work would be getting done, time for hobbies, the dog, 3 healthy meals.
Just a normal life that so many take for granted. Or, do they?