Record a Video and Receive Rarity the Zebra!

Please help us spread the word to other patients and caregivers about Rare Patient Voice by submitting a short video about your experience with us. Using the Storyvine app, recording a video on your phone is quick, easy, and fun! Videos will be featured on our website, on social media, and in newsletters.

Check out and join the growing group of RPV patients and caregivers who have recorded stories!

Follow these steps to record and submit your own video!

Step 1: Scan with code below with the camera app from your Apple/Android mobile device or click the link below!

Step 2: Download the Storyvine app from the App Store or Google Play

Step 3: Film and upload your video!

To thank you for recording a video, we will send you a Rarity zebra plushie AND enter you in a raffle to win a $100 Amazon gift card. Congratulations to Stacy of South Carolina, our December 1 raffle winner! Our next raffle will be held in early January.