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❓What do YOU Think?

MaryO Cushing's Awareness Challenge , , , , , , , , , , , , ,

 

Do you think allergies are worse post-op?

I posted on Facebook that I’ve learned the hard way that I had an allergic reaction to blackberries. I’ve known about my strawberry allergy for decades and have avoided them mostly successfully. Apparently, they’re both in the same class of allergens 🙁

These blackberries were in an ice cream. And it was a good ice cream. Drat!

I have a lot more steroids to take for a few days. Oh, joy! And, another wean at the end.

Someone responded: “The further we get from Cushings, the more allergies surface. So glad you got help. Scary stuff!

I said: “I guess it’s because we don’t have so much cortisone already running in our bodies.”

Someone else asked: “Is that true? I seem to be allergic to pollen amd mold now?“
And I responded: “I don’t know but it makes sense now that I think of it. I’m definitely allergic to more things than I was Before Cushing’s“
After my second knee surgery in 2025, I developed a terrible itchy rash which spread to both legs and abdomen but the cause was never discovered. Pain block? Glue? Stitches? Medications? Bandages? The implants themselves?
I sent photos to the surgeon every other day.  He finally got approval from my endo – Dr. Roberto Salvatori – to tale a Medrol Dose pack.  The concern was steroid overdose.  I was also taking Benadryl and slathering on hydrocortisone cream.  It turns out that amazon sells 1-pound tubs of the stuff.  Much easier than those tiny tubes.

 

So, in my informal poll – what do you think?  Are your allergies worse or are you having new ones after Cushing’s?

🔵 New on the Message Boards ~ July 22, 2017

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A quick summary of some of this week’s activity on the Cushing’s Help message boards.

A new member posted Another Hump Pic

More discussion about post-op cortisol and weaning in Nicole, Undiagnosed Bio

Save the Date info for a Conference on Adrenal Insufficiency

Form over fashion may save your life! Yes, You Need a Medical Alert Bracelet!

Our newest Newbie has been cleared for surgery in August!

A new member wonders about A Small Hump Maybe?

The Boards Have Been Upgraded Again.  There are 3 skin choices at the bottom, including the default, if you want to try another look.

You can post directly to Facebook and/or Twitter, if you choose.  People who are not logged into the boards will not be able to see what you post on them.

This new upgrade brought us some icons in the bottom right of each post where you can “rate” the information – but only in a positive way.   They slide out from the little heart-looking image and are fairly self-explanatory.

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I just added a new icon to the list.  Although it’s small, it’s to welcome new members.

 

There’s other stuff happening but you’ll just have to read the boards to find out what!

(Please note that I’m sharing these from the Cushings-Help.com message boards. You must be a logged-in member of that board to read them. Log in or register at http://cushings.invisionzone.com )

Please join us!

 

🔵 New on the Message Boards ~ July 15, 2017

MaryO Uncategorized , , , , , , , , , , , , , , ,

 

A quick summary of some of this week’s activity on the Cushing’s Help message boards.

A new question about the cost vs benefits of growth hormone under the topic Growth Hormone

A newbie who is not yet diagnosed but has Bi lateral adrenal tumors

Information about Webinar: Coping With the Ups and Downs of Pituitary Disorders

A new Image Gallery, A Dancer’s 40 lbs Weight Gain in under 2 years + symptoms

The first picture shows me in peak performance shape weighing about 105 lbs standing at 5’4″ contrasted with how I look now at about 147 lbs with swollen legs&arms, puffy red face, fat above the collar bone and on the neck, and lots of weight gain in the butt/thigh area. It really looks like I don’t have a neck anymore.

Following are photos of how my face has steadily changed every few months. Notice how I used to have a very defined heart-shaped face with a pointy chin, and now have a round face with jowls and numerous neck lines/rolls that extend past my collar bone.

The question was asked: Has anyone stayed in a hospital for multiple days of inpatient testing?

A new member from Nottingham, UK was told she had cyclical edema, then PCOS which all turned out to be Cushing’s.

 

There’s other stuff happening but you’ll just have to read the boards to find out what!

(Please note that I’m sharing these from the Cushings-Help.com message boards. You must be a logged-in member of that board to read them. Log in or register at http://cushings.invisionzone.com )

Please join us!