🦓 Day 5: Cushing’s Awareness Challenge

April 5, 2026April 6, 2026 MaryO Cushing's Awareness Challenge blood tests, CT scan, Cushing’s, diagnosis, MaryO, MRI, NIH, Petrosal Sinus Sampling, test

The above is the official Cushing’s path to a diagnosis but here’s how it seems to be in real life:

Egads! I remember the naive, simple days when I thought I’d give them a tube or two of blood and they’d tell me I had Cushing’s for sure.

Who knew that diagnosing Cushing’s would be years of testing, weeks of collecting every drop of urine, countless blood tests, many CT and MRI scans…

Then going to NIH, repeating all the above over 6 weeks inpatient plus an IPSS test, an apheresis (this was experimental at NIH) and speciality blood tests…

The path to a Cushing’s diagnosis is a long and arduous one but you have to stick with it if you believe you have this Syndrome.

What Do You Think? Only One Urine Test for Cushing’s?

February 6, 2024February 4, 2024 MaryO What do you think? 24-hour urinary free cortisol, blood tests, cortisol, CT scan, diagnosis, MRI, obesity, urine test

I sure had way more than one urine test, and lots of blood and more but that was a long time ago. What are your thoughts on this?

Warning sign: Being very overweight can be a sign of Cushing’s syndrome, a hormonal disorder that is often caused by tumors of the pituitary gland. Image:

Being very overweight, having a moon face and a bull neck are signs of Cushing’s syndrome. It is caused by an excess of the hormone cortisol. Researchers from Giessen and Munich have taken advantage of this to make diagnosis easier.

A special form of obesity, Cushing’s syndrome, is now easier to diagnose. Researchers at the University of Giessen and the Ludwig Maximilian University of Munich have shown that this metabolic disease can be detected using a urine test.

Typically, people with Cushing’s syndrome are very overweight, have a noticeably round face and a bull neck. This is caused by an excess of the stress hormone cortisol, which belongs to the steroid group. The researchers examined urine from Cushing’s patients at the Munich University Hospital using gas chromatography and mass spectrometry. This made it possible to determine the hormone status that is characteristic of the disease. The urine test is simple and provides quick results. So far, several blood samples and sometimes even a hospital stay have been necessary to detect the syndrome.

From https://www.breakinglatest.news/health/cushings-syndrome-can-be-detected-with-a-urine-test/

🦓 Day 6: Cushing’s Awareness Challenge 2022

April 6, 2022April 2, 2022 MaryO Cushing's Awareness Challenge, Cushing's Awareness Challenge blood tests, CT scan, Cushing's Awareness Challenge 2022, Cushing’s, diagnosis, MaryO, MRI, NIH, Petrosal Sinus Sampling, test

The above is the official Cushing’s path to a diagnosis but here’s how it seems to be in real life:

Egads! I remember the naive, simple days when I thought I’d give them a tube or two of blood and they’d tell me I had Cushing’s for sure.

Who knew that diagnosing Cushing’s would be years of testing, weeks of collecting every drop of urine, countless blood tests, many CT and MRI scans…

Then going to NIH, repeating all the above over 6 weeks inpatient plus an IPSS test, apheresis (this was experimental at NIH) and specialty blood tests…

The path to a Cushing’s diagnosis is a long and arduous one but you have to stick with it if you believe you have this Syndrome.

🦓 Day 6: Cushing’s Awareness Challenge 2020

April 6, 2020April 12, 2020 MaryO Cushing's Awareness Challenge blood tests, CT scan, Cushing’s, diagnosis, MaryO, MRI, NIH, Petrosal Sinus Sampling, test

The above is the official Cushing’s path to a diagnosis but here’s how it seems to be in real life:

Egads! I remember the naive, simple days when I thought I’d give them a tube or two of blood and they’d tell me I had Cushing’s for sure.

Who knew that diagnosing Cushing’s would be years of testing, weeks of collecting every drop of urine, countless blood tests, many CT and MRI scans…

Then going to NIH, repeating all the above over 6 weeks inpatient plus an IPSS test, apheresis (this was experimental at NIH) and specialty blood tests…

The path to a Cushing’s diagnosis is a long and arduous one but you have to stick with it if you believe you have this Syndrome.

🎤 Archived Interview: Jackie (samsmom) and Jordan

April 23, 2019April 20, 2019 MaryO Interviews, Meetings and Conferences adrenal, atrophy, bilateral adrenalectomy, BLA, blood, bruising, CT scan, cyclical, Discovery Health TV, Diseases Doctors Miss, Dr. Constantine Stratakis, endocrinologist, epidural, gene, gene mutation, hereditary, hyperplasia, Interview, laparoscopic

Jackie (samsmom) & Jordan: Cushing’s in young people, the fight to diagnose, the amazing gift of a GOOD endocrinologist. Jackie has appeared on Discovery Health discussing her fight for a cure for her younger daughter, as well. Later, the gene responsible for Sam’s illness was found. Her father carried the gene as did her two sisters. Jordan, Jackie’s oldest daughter, has recently had her adrenals removed.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/15/interview-with-jackie-samsmon-jordan

🦓 Day 10: Cushing’s Awareness Challenge 2019

April 10, 2019April 9, 2019 MaryO Cushing's Awareness Challenge blood tests, CT scan, Cushing’s, diagnosis, MaryO, MRI, NIH, Petrosal Sinus Sampling, test

The above is the official Cushing’s path to a diagnosis but here’s how it seems to be in real life:

Egads! I remember the naive, simple days when I thought I’d give them a tube or two of blood and they’d tell me I had Cushing’s for sure.

Who knew that diagnosing Cushing’s would be years of testing, weeks of collecting every drop of urine, countless blood tests, many CT and MRI scans…

Then going to NIH, repeating all the above over 6 weeks inpatient plus an IPSS test, an apheresis (this was experimental at NIH) and specialty blood tests…

The path to a Cushing’s diagnosis is a long and arduous one but you have to stick with it if you believe you have this Syndrome.

🎤 Archived Interview with Jackie (samsmom) and Jordan

April 20, 2018April 23, 2018 MaryO Interviews, Meetings and Conferences adrenal, atrophy, bilateral adrenalectomy, BLA, blood, bruising, CT scan, cyclical, Discovery Health TV, Diseases Doctors Miss, Dr. Constantine Stratakis, endocrinologist, epidural, gene, gene mutation, hereditary, hyperplasia, Interview, laparoscopic

Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/15/interview-with-jackie-samsmon-jordan

🦓 Day 9: Cushing’s Awareness Challenge 2018

April 9, 2018April 7, 2018 MaryO Cushing's Awareness Challenge blood tests, CT scan, Cushing’s, diagnosis, MaryO, MRI, NIH, Petrosal Sinus Sampling, test

The above is the official Cushing’s path to a diagnosis but here’s how it seems to be in real life:

Egads! I remember the naive, simple days when I thought I’d give them a tube or two of blood and they’d tell me I had Cushing’s for sure.

Who knew that diagnosing Cushing’s would be years of testing, weeks of collecting every drop of urine, countless blood tests, many CT and MRI scans…

Then going to NIH, repeating all the above over 6 weeks inpatient plus an IPSS test, an apheresis (this was experimental at NIH) and specialty blood tests…

The path to a Cushing’s diagnosis is a long and arduous one but you have to stick with it if you believe you have this Syndrome.

Interview with Jackie (samsmom) & Jordan

April 20, 2017April 19, 2017 MaryO Interviews, Meetings and Conferences adrenal, atrophy, bilateral adrenalectomy, BLA, blood, bruising, CT scan, cyclical, Discovery Health TV, Diseases Doctors Miss, Dr. Constantine Stratakis, endocrinologist, epidural, gene, gene mutation, hereditary, hyperplasia, Interview, laparoscopic

Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/15/interview-with-jackie-samsmon-jordan

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