❣️ We Are Nearly 20!

July 20, 2020July 16, 2020 MaryO Uncategorized Alice, Alice Stamm (Dearest), birthday, Cushing’s Help, cushings-help.com, FrontPage, message boards, Microsoft, Power Surge

It’s unbelievable but the idea for Cushing’s Help and Support arrived 20 years ago tonight. That’s a long time for anything online.

I was talking with my dear friend Alice, who ran a wonderful menopause site called Power Surge, wondering why there weren’t many support groups online (OR off!) for Cushing’s and I wondered if I could start one myself and we decided that I could.

The first website (http://www.cushings-help.com) first went “live” July 21, 2000 and the message boards September 30, 2000. Hopefully, with these sites, I’m making some helpful differences in someone else’s life!

The message boards are still active and we have a Cushing’s Awareness Day Forum, podcasts, phone support and much more.

Whenever one of the members of the boards gets into NIH, I try to go to visit them there. Other board members participate in the “Cushie Helper” program where they support others with one-on-one support, doctor/hospital visits, transportation issues and more.

Of course, we now have a Facebook page and 2 groups. Both are secret, so if you want to join, please email or PM me for an invitation.

Other sites in the Cushing’s Help “Family”

📞 Webinar: Growth Hormone Deficiency, PCOS or Cushing’s: How do You Tell Them Apart?

July 20, 2020July 20, 2020 MaryO Helpful Doctors, Interviews, Meetings and Conferences California, Cushing’s, Dr. Theodore Friedman, endocrinologist, Growth Hormone Deficiency, PCOS

Dr. Theodore Friedman (The Wiz) will host a webinar on Growth Hormone Deficiency, PCOS or Cushing’s: How do You Tell Them Apart?

Dr. Friedman will discuss topics including:

Signs and Symptoms of Cushing’s Syndrome
Testing for Cushing’s
Signs and Symptoms of Growth Hormone Deficiency
Testing for Growth Hormone Deficiency
Signs and Symptoms of PCOS
Testing for PCOS
How do you tell them apart?

Sunday • August 2 • 6 PM PDT
Click here on start your meeting or
https://axisconciergemeetings.webex.com/axisconciergemeetings/j.php?MTID=m4eda0c468071bd2daf33e6189aca3489
OR
Join by phone: (855) 797-9485

Meeting Number (Access Code): 133 727 0164 Your phone/computer will be muted on entry.
Slides will be available on the day of the talk here
There will be plenty of time for questions using the chat button. Meeting Password: pcos
For more information, email us at mail@goodhormonehealth.com

👥 Pituitary Tumor Support Group
Please consider joining us for #Pituitary Tumor Support Group on Saturday October 7th, 2023 at 9am to discuss Current and Emerging Medical Therapies in Pituitary Tumor Treatment by Dr. Mahalakshi Honasage, #Endocrinologist, and Dr. Jack Rock, #Neurosurgery.
‼️ Message Board Upgrade Coming this Weekend
This is our September maintenance release. Key changes include: New Spam Prevention Features Introducing Community Hive
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📰 Rare Challenges in Diagnosing Cushing’s Syndrome and Primary Aldosteronism: A Case Report of a Female With a Negative Workup
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ℹ️ Basics: Cushing's Syndrome vs. Cushing's Disease
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👥 Register for Johns Hopkins Pituitary Day October 7, 2023!
October 7 @ 9:00 am – 1:00 pm The annual Pituitary Patient Education Day is a free event that features presentations from Johns Hopkins pituitary experts.
🖤 In Memory: Kandace Bankston ‘Kandy’ Kline, September 9, 2007
Kandy Klein long-time member of the message boards passed away September 9, 2007.
ℹ️ Cushing's Basics: Testing: 24 Hour Urine Tests (UFC)
Twenty-four Hour Urine: The doctor will give you a gallon collection jug, usually with boric acid in it. The instructions are usually printed on the side. Generally, you urinate first thing in the morning, as usual. after that, you collect the rest of the urine for the next 24 hours in the jug. The directions […]
📰 Long-Term Efficacy and Safety of Osilodrostat in Patients with Cushing’s Disease
Osilodrostat provided long-term control of cortisol secretion that was associated with sustained improvements in clinical signs and physical manifestations of hypercortisolism. Osilodrostat is an effective long-term treatment for patients with Cushing’s disease.

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