✏️ It’s Time to Sign Up for the Cushing’s Awareness Challenge 2019

I plan to do the Cushing’s Awareness Challenge again. Last year’s info is here:  https://cushieblogger.com/2018/03/11/time-to-sign-up-for-the-cushings-awareness-challenge-2018/

The original page is getting very slow loading, so I’ve moved my own posts to this newer blog.

As always, anyone who wants to join me can share their blog URL with me and I’ll add it to the links on the right side, so whenever a new post comes up, it will show up automatically.

If the blogs are on WordPress, I try to reblog them all to get even more exposure on the blog, on Twitter and on Facebook at Cushings Help Organization, Inc.  If you have photos, and you give me permission, I’ll add them to the Pinterest page for Cushing’s Help.


The Cushing’s Awareness Challenge is almost upon us again!
Do you blog? Want to get started?
Since April 8 is Cushing’s Awareness Day, several people got their heads together to create the Eighth Annual Cushing’s Awareness Blogging Challenge.
All you have to do is blog about something Cushing’s related for the 30 days of April.
There will also be a logo for your blog to show you’ve participated.
Please let me know the URL to your blog in the comments area of this post, on the Facebook page, in one of the Cushing’s Help Facebook Groups, on the message boards or an email  and I will list it on CushieBloggers (  http://cushie-blogger.blogspot.com/ )
The more people who participate, the more the word will get out about Cushing’s.
Suggested topics – or add your own!
  • In what ways have Cushing’s made you a better person?
  • What have you learned about the medical community since you have become sick?
  • If you had one chance to speak to an endocrinologist association meeting, what would you tell them about Cushing’s patients?
  • What would you tell the friends and family of another Cushing’s patient in order to garner more emotional support for your friend? challenge with Cushing’s? How have you overcome challenges? Stuff like that.
  • I have Cushing’s Disease….(personal synopsis)
  • How I found out I have Cushing’s
  • What is Cushing’s Disease/Syndrome? (Personal variation, i.e. adrenal or pituitary or ectopic, etc.)
  • My challenges with Cushing’s
  • Overcoming challenges with Cushing’s (could include any challenges)
  • If I could speak to an endocrinologist organization, I would tell them….
  • What would I tell others trying to be diagnosed?
  • What would I tell families of those who are sick with Cushing’s?
  • Treatments I’ve gone through to try to be cured/treatments I may have to go through to be cured.
  • What will happen if I’m not cured?
  • I write about my health because…
  • 10 Things I Couldn’t Live Without.
  • My Dream Day.
  • What I learned the hard way
  • Miracle Cure. (Write a news-style article on a miracle cure. What’s the cure? How do you get the cure? Be sure to include a disclaimer)
  • Give yourself, your condition, or your health focus a mascot. Is it a real person? Fictional? Mythical being? Describe them. Bonus points if you provide a visual!
  • 5 Challenges & 5 Small Victories.
  • The First Time I…
  • Make a word cloud or tree with a list of words that come to mind when you think about your blog, health, or interests. Use a thesaurus to make it branch more.
  • How much money have you spent on Cushing’s, or, How did Cushing’s impact your life financially?
  • Why do you think Cushing’s may not be as rare as doctors believe?
  • What is your theory about what causes Cushing’s?
  • How has Cushing’s altered the trajectory of your life? What would you have done? Who would you have been
  • What three things has Cushing’s stolen from you? What do you miss the most? What can you do in your Cushing’s life to still achieve any of those goals?
  • What new goals did Cushing’s bring to you?
  • How do you cope?
  • What do you do to improve your quality of life as you fight Cushing’s?
  • How Cushing’s affects children and their families
  • Your thoughts…?
maryo colorful zebra

💉 Dr. Ali Krisht receives 2019 Herbert Olivecrona Award

A possible Helpful Doctor.  Anyone have any feedback?

 

Little Rock-based Arkansas Neuroscience Institute Co-founder and Director Ali Krisht, MD, received the 2019 Herbert Olivecrona Award for his neurosurgery work, Arkansas Money & Politics reports.

What you should know:

1. Dr. Krisht earned the honor — sometimes known as the Nobel Prize for neurosurgery — for his cerebrovascular, pituitary and skull base tumor surgery work.

2. He will receive the honor at the Scandinavian Neurosurgical Society meeting, May 19-20 in Stockholm, Sweden, where he will also deliver the conference’s Olivecrona lecture.

3. Dr. Krisht is a renowned neurosurgeon. He earned his medical degree from Beirut, Lebanon-based American University of Beirut and completed a residency at Atlanta-based Emory University.

4. He is Contemporary Neurosurgery’s chief editor and served as Pituitary Disorders: Comprehensive Management’s main editor.

5. Dr. Krisht has written 20 book chapters and 50 peer-reviewed manuscripts. He has delivered more than 170 lectures and has directed more than 40 workshops and hands-on courses.

🎬 Video: How the Body Works: The Adrenal Cortex and Medulla

The adrenal glands sitting above the kidneys are richly supplied with blood and with sympathetic nerve endings. Block sections show the blood supply and cellular arrangement of the adrenals.

Two different regions are distinguishable–the cortex, controlled by the pituitary hormone ACTH, produces hormones which maintain body chemistry, and the medulla, which secretes adrenaline and noradrenaline to increase body activity.

 

❓Do You Use Mario Badescu Skin Care Products?

Thirty-one former customers have filed suit in New Jersey State Court against Mario Badescu, Inc., a skincare company based out of Edison, New Jersey, and Mario Badescu Skin Care, Inc., a skincare salon in New York.

The plaintiffs allege that they were injured by potent and undisclosed steroids in two of Mario Badescu’s face creams, Control Cream, and Healing Cream, which were marketed as products that contained only “botanical” active ingredients that were safe for daily use. The complaint alleges that contrary to what Mario Badescu told the public, Control Cream and Healing Cream contained two steroids: hydrocortisone and triamcinolone acetonide. The complaint also alleges that Mario Badescu’s products contained higher than prescription-strength doses of triamcinolone acetonide. Both steroids pose serious health risks to both the skin and the body’s adrenal system.

The plaintiffs were unaware of the steroids in Mario Badescu’s products and used the products on their faces, usually daily, for as long as fourteen years. Many of the plaintiffs allege that they unwittingly became addicted to the steroids such that even a day without use of the Products caused severe and painful withdrawal reactions. Moreover, many of the plaintiffs allege that they suffered from steroid-related ailments while using Control Cream or Healing Cream, including cataracts, glaucoma, mood disorders, heart issues, elevated cortisol levels, adrenal system suppression and Cushing’s Syndrome. Plaintiffs allege that because they did not know they were using steroids at the time, they were unable to inform their physicians about the true source of their injuries and were repeatedly misdiagnosed by their medical providers.

“Mario Badescu secretly added an addictive prescription steroid to its cosmetic face creams, then told its customers that the creams were safe for daily use,” Plaintiffs’ counsel, Gary E. Mason said. “Our clients suffered devastating injuries as a result of this deception,” Mason added.

The plaintiffs are represented by John C. Whitfield, Gary E. Mason, Esfand Nafisi, and Caroline Ramsey Taylor of Whitfield Bryson & Mason LLP, and Michael Galpern, Andrew Bell and Janet Walsh of Locks Law Firm, LLC. For more information about the lawsuit, contact the firm by phone at (202)640-1167.

The name of the case is Restaino et al. v. Mario Badescu, Inc. et al., No. MID-L-5830-14 (N.J. Super. Ct. Law Div., filed Sept. 25, 2014).

See us on WTVH/WEHT Evansville! “Tristate Law Firm Takes On Major Cosmetics Company

🎬 Video: Cushing Disease & ACTH-Secreting Pituitary Tumors

Irina Bancos, M.D., an endocrinologist at Mayo Clinic in Rochester, Minnesota, and Jamie J. Van Gompel, M.D., a neurosurgeon at Mayo Clinic’s campus in Minnesota, discuss Mayo’s multidisciplinary approach to adrenocorticotropic hormone (ACTH)-secreting pituitary tumors. Pituitary tumors are common and often don’t cause problems. But some pituitary tumors produce the hormone ACTH, which stimulates the production of another hormone (cortisol). Overproduction of cortisol can result in Cushing syndrome, with signs and symptoms such as weight gain, skin changes and fatigue. Cushing syndrome is rare but can cause significant long-term health problems.

Treatment for Cushing syndrome caused by a pituitary tumor generally involves surgery to remove the tumor. Radiation therapy and occasionally adrenal surgery may be needed to treat Cushing syndrome caused by ACTH-secreting pituitary tumors. Mayo Clinic has experience with this rare condition.

📞 Webinar: Does Extent of Resection Matter in Pituitary Surgery?

 

Presented By

Jamie J. Van Gompel, MD, FAANS
Associate Professor in Neurosurgery and Otorhinolaryngology
Program Director, Vice Chair of Education, Department of Neurologic Surgery
Associate Program Director, Neurosurgical Skull Base Oncology Fellowship
Program Director, International Neurosurgery Fellowship
Mayo Clinic – Rochester, MN

and

Garret W. Choby, MD
Rhinologist
Endoscopic Skull Base Surgeon
Mayo Clinic – Rochester, MN

Register here

 

After registering you will receive a confirmation email containing information about joining the webinar.

If you have any questions or suggestions please feel free to contact webinar@pituitary.org

DATE: Wednesday, March 13, 2019
TIME: 2:00 PM – 3:00 PM Pacific Daylight Time, 4:00 PM – 5:00 PM Central Daylight Time, 5:00 PM – 6:00 PM EDT

Webinar Description

Does Extent of Resection Matter in Pituitary Surgery and Postoperative Nasal Care

Presenter Bios

Jamie J. Van Gompel MD(Honors), BS(Honors) is an Associate professor in neurosurgery and Otolaryngology specializing in endoscopic/open skull base at the Mayo Clinic in Rochester, Minnesota, USA. He completed his undergraduate and medical school training at the University of Wisconsin at Madison. He has worked at the NIH as well as completed a Howard Hughes Fellowship studying neuroendocrine tumors. His neurosurgical training was undertaken at the Mayo Clinic and he went on to complete a complex cranial fellowship under the tutelage of Dr. Harry van Loveren at the University of South Florida. Currently, He is the Education Vice Chair, Program Director of the Neurosurgery Program and Associate Program Director of the Skull Base Oncology program. Further manages a busy skull base oncology and pituitary practice in addition to performing research with Active NIH U and R funding. He has authored over 150 publications of which over 30 are pertinent to pituitary pathologies and endoscopic surgery.

Garret W. Choby, M.D., is a fellowship-trained rhinologist and endoscopic skull base surgeon practicing at the Mayo Clinic in Rochester, MN. He completed his residency training at the University of Pittsburgh and his fellowship training at Stanford University. Dr. Choby works closely with his neurosurgical partners to treat a variety of pituitary and cranial base tumors. His primary research interests include improving oncologic and quality of life outcomes for patients undergoing endonasal tumor resection and tailoring individualized treatment for patients with chronic rhinosinusitis.

💉 Helpful Doctors: California

 

Sheryl added her Helpful Doctor, Theodore Friedman, to the Cushing’s MemberMap

How would you rate your Helpful Doctor? 5/5
Your Doctor’s Name Theodore Friedman
Your Doctor’s Address 1125 S. Beverly Drive Suite 730
City: Los Angeles,
State / Province: CA
Postal / Zip Code: 90035
Phone (310) 335-0327
Email mail@goodhormonehealth.com
What are your Doctor’s Specialties? Endocrinologist, Cushing’s, Growth Hormone Deficiency, Hypopituitary, adrenal, thyroid, fatigue
Hospital Charles Drew
Website http://goodhormonehealth.com
Patient Comments: “I am a Dr Friedman patient, he is wonderful.”
” I was deteriorating so rapidly that I decided to go to LA and see Dr. Friedman. Best decision of my life.”

From other patients: https://cushingsbios.com/tag/dr-theodore-friedman/

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