You have provided an invaluable service to many, many people with Cushing’s and other Cushing’s-like diseases and syndromes. I have a very dear friend I met on the Boards. I’m sorry you have had to use your own money to maintain the site, but in it’s time, it has made a huge difference in the lives of many people. It has always been an open Board, where one can go to find information, but you are right in stating that many fb pages have been created for people with Cushing’s, Addison’s and what have you. Often, you have to be “referred” or “invited” in order to enter those sites, though.
You have been a pioneer in this field and you created an avenue for people to find information, when it was often withheld by the medical profession as proprietary. Thank you so much for all you have done.
Susan from the Seattle area
From the Cushing’s Help message boards