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Susan F

September 30, 2017 MaryO

Countless lives supported and saved by MaryO and the community and knowledge bank she created. Forever in her debt.

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🦓 Day 15, Cushing’s Awareness Challenge 2021
Today’s Cushing’s Awareness Challenge post is about kidney cancer (renal cell carcinoma). You might wonder how in the world this is related to Cushing’s. I think it is, either directly or indirectly.
⭐️ Top PIcks on the Message Boards updated April 15, 2021
Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
🖤 Cushing Death Rate 'Unacceptable,' Triple That of General Population
Excess mortality among people with endogenous Cushing syndrome (CS) has declined in the past 20 years yet remains three times higher than in the general population, new research finds. Among more than 90,000 individuals with endogenous CS, the overall proportion of mortality ― defined as the ratio of the number of deaths from CS divided by the total number o […]
🦓 Day 14, Cushing’s Awareness Challenge 2021
Way back when we first got married, my husband thought we might have a big family with a lot of kids. He was from a family of 6 siblings, so that’s what he was accustomed to. I am an only child so I wasn’t sure about having so many. I needn’t have worried...
🎤 Archived Interview with Jayne, Ectopic Cushing’s Patient
Mary O’Connor (MaryO) hosted an interview with Jayne, a Cushing’s patient who had pituitary surgeries and a bilateral adrenalectomy before finding the true source of her ectopic Cushing’s.
📞 Webinar: Updates on Treating Hypothyroidism
On Sunday, April 25 Dr. Theodore Friedman will host a webinar on Hypothyroidism and treatment options.
🦓 Day 13, Cushing’s Awareness Challenge 2021
Cushing’s Conventions have always been special times for me – we learn a lot, get to meet other Cushies, even get referrals to endos! As early as 2001 (or before) my pituitary function was dropping. My former endo tested annually but did nothing to help me with the symptoms.
🦓 Day 12, Cushing’s Awareness Challenge 2021
As luck would have it, NIH (National Institutes of Health, Bethesda, Maryland) was doing a clinical trial of Cushing’s. I live in the same area as NIH so it was not too inconvenient but very scary at first to think of being tested there. At that time I only had a choice of NIH, Mayo Clinic and a place in Quebec to do this then-rare pituitary surgery called a […]
🎤 Archived Interview: Cushing’s Diagnosis and Symptoms, part 2
Listen as Robin Smith (staticnrg) and Mary O’Connor (MaryO) co-host Cushing’s message board members calling in to talk about their fight for diagnosis and treatment. The show will be opened with a brief explanation of what Cushing’s is and what the symptoms are.
🦓 Day 11, Cushing’s Awareness Challenge 2021
Blue and Yellow – we have those colors on ribbons, websites, T-shirts, Cushing’s Awareness Challenge logos and even cars.

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