HomeKaren N

Karen N

September 30, 2018September 30, 2018 MaryO

I have been a proud member for around 12 of those years!

~ In response to a Facebook post on the Birthday of the Message Boards

✍️ New Bio Form
We have a new form to add your own bio.
🏞 New Cushie added to the Cushing's MemberMap
Katie is from Barrington, RI. She has Cushing's Disease and recommended her doctor, Brooke Swearingen
📞 Livestream for Rare Disease Congressional Caucus Briefing December 4th
For those who can not make it to Washington, DC December 4 there will be a livestream will be available for the Rare Disease Congressional Caucus briefing.
📰 Laura, In The Media
Cushing's has appeared several times in the media. Jayne Kerns encouraged Zastrow to check out a Cushing's Web site, which Zastrow did. Every symptom listed matched her condition. Her doctor ran some tests, and the results confirmed Zastrow had Cushing's, a hormonal disorder often brought on by a tumor.
📞 Webinar: Surgical Strategies in the Treatment of Pituitary Tumors
Learning Objectives: To understand the role of surgery in the treatment of pituitary tumors To understand the advantages and disadvantages of different surgical approaches in the treatment of pituitary tumors To understand the risks and benefits associated with different surgical strategies
✍️ Mak M, Pituitary Bio
Mak is from California She has been having a really rough couple years with a multitude of symptoms. A 6mm microadenoma was found on my pituitary gland
📞 Webinar: Dr. Theodore Friedman on the Macrilen Stimulation Test for Growth Hormone Deficiency
Dr. Theodore Friedman’s next webinar will be on the Macrilen Stimulation Test for Growth Hormone Deficiency: Sunday, December 9, 2018, 6-7 PM PST. He will discuss the new Macrilen stimulation test and compare it to the glucagon stimulation. If you may have growth hormone deficiency, you do not want to miss this webinar.
✍️ Louise, Adrenal Bio
Louise from Washington She has ACTH independent bilateral adrenal hyperplasia.
📰 Mutations in Two Genes, USP48 and BRAF, Linked to Cushing’s Disease
Mutations in USP48 and BRAF genes contribute to the overproduction of adrenocorticotropin (ACTH) hormone by the pituitary gland and consequent development of Cushing’s disease, a study shows, linking these genes to the disease for a first time. The study, “Identification of recurrent USP48 and BRAF mutations in Cushing’s disease,” published in the journal Na […]
❓Comment added to Can You Help?
I believe Cushings can be improved through taking out starches in our diet. I have blood work and 24 HR urine results that need to be looked at by researchers because my endocrinologist is not helpful. When he looked at the results of bloodwork he said I had a Cushings recurrence. Then after a second 24 HR urine it came back not a recurrence with almost norm […]

%d bloggers like this:

M	T	W	T	F	S	S
« Nov
					1	2
3	4	5	6	7	8	9
10	11	12	13	14	15	16
17	18	19	20	21	22	23
24	25	26	27	28	29	30
31

Share this:

Like this:

Related