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Crystal

June 12, 2017 MaryO

Please help me if you can. I really enjoy and am grateful for this group. I’ve learned so much and I now know I’m not alone with this disease. Thank you for your time.

From my email.

⭐️ Top PIcks on the Message Boards updated March 6, 2021
Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
💉 Helpful Neurourgeon: Pennsylvania
Walter Jean, MD, has joined Lehigh Valley Health Network (LVHN) and will serve as Chief of Neurosurgery. Jean is a board-certified neurosurgeon with expertise in complex intracranial surgery. He is known world-wide for his expertise in complex brain surgery. With nearly 20 years’ experience in both open and endoscopic skull base surgery, Jean has several cli […]
🖤 In Memory of Erica Michelle “GaGa” Meno, March 6, 2015
Erica was a fellow Cushing’s Disease survivor. She had been through pituitary surgery, radiation, and a BLA in an effort to receive her cure.
📰 Cushing’s Found to Cause ‘Persistent Mental Health Problems’ in Patients
For years before and after their diagnosis, people with Cushing’s disease use more psychotropic medications — those that affect mood, thoughts, or perception — for mental health problems than their healthy peers, a study in Sweden found. Notably, patients experiencing long-term disease remission still showed higher use of antidepressants and sleeping pills t […]
📞 eSummet: Quality of Life of Pituitary Patients March 19-20, 2021
We seek to empower and improve the Quality of Life of Pituitary Patients, by sharing knowledge and inform you about treatment choices.
📰 New Drug Application for RECORLEV® (levoketoconazole) for the Treatment of Endogenous Cushing’s Syndrome
Nearly 40 Percent of Prescription-Treated Endogenous Cushing’s Syndrome Patients in the U.S. Are Not Well-Controlled, Underscoring Need for New, Safe and Effective Pharmaceutical Options to Help Regulate Cortisol Levels.
🖤 Comment added to In Memory: Liz Raftery, March 2012
This breaks my heart. Liz was so young. She was finally so hopeful after way too long. We have to do something to change this. People especially doctors have to know what we go through. Mary is one person and look at all she has done to raise awareness. We are so many. There has to be something we all can do….
🖤 In Memory: Liz Raftery, March 2012
We sadly learned that Liz died in March 2012 at the age of 45. She was an active member of the Cushing’s Help Message Boards. She had a photo gallery there. The photo below is from that gallery. Liz in 2002The image at left is from 2002. Liz wrote in her bio: Hello, I’m from Hampton, just outside London. Same old story – at least 6 years of various illnesses […]
📰 COVID-19 and Cushing's syndrome: recommendations for a special population with endogenous glucocorticoid excess
Over the past few months, COVID-19, the pandemic disease caused by severe acute respiratory syndrome coronavirus 2, has been associated with a high rate of infection and lethality, especially in patients with comorbidities such as obesity, hypertension, diabetes, and immunodeficiency syndromes. These cardiometabolic and immune impairments are common comorbid […]
✍️ For Rare Disease Day: MaryO, Pituitary/Kidney Cancer Bio
As one can imagine, it hasn’t been all happiness and light. Most of my journey has been documented here and on the message boards – and elsewhere around the web.

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