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Crystal

June 12, 2017 MaryO

Please help me if you can. I really enjoy and am grateful for this group. I’ve learned so much and I now know I’m not alone with this disease. Thank you for your time.

From my email.

🖤 In Memory: Kassey Whiterock, June 30, 2016
Kassey passed away on June 30, 2016. Her sister said she died in her sleep. She was in the hospital due to a crisis on June 21st. Kassey was only 20 years old.
🖤 In Memory: Kalyn Allen, June 28, 2017
Kalyn was only 41 when she died on June 28, 2017. She had recently had pituitary surgery.
🏞 Cushing's MemberMap
2 new Cushie added to the Cushing's MemberMap
✍️ Kim Jones (KimVJ), Pituitary Bio
Kim is from Wisconsin. She was recently diagnosed with Cushing’s after about three years of testing. This is in addition to a diagnosis of Lipedema a little over a year ago.
⭐️ Top Picks on the Message Boards updated June 25, 2022
Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
📰 Concurrent Mutations of Germline GPR101 and Somatic USP8 in a Pediatric Giant Pituitary ACTH Adenoma
Cushing’s disease (CD) is rare in pediatric patients. It is characterized by elevated plasma adrenocorticotropic hormone (ACTH) from pituitary adenomas, with damage to multiple systems and development. In recent years, genetic studies have shed light on the etiology and several mutations have been identified in patients with CD. A girl presented at the age of […]
🖤 In Memory: Kate Myers, June 23, 2014
Kate (Fairley on the Cushing's Help message boards) was only 46 when she died on June 23, 2014.
📰 Results Reinforce Efficacy of Recordati’s Isturisa in Cushing’s Disease
Isturisa is a cortisol synthesis inhibitor indicated for the treatment of adult patients with Cushing’s disease for whom pituitary surgery is not an option or has not been curative.
🖤 In Memory of Samantha Cohn ~ June 19, 2014
Juilliard graduate Samantha Cohn, 34, crawled out a window in her 16th-floor apartment at West 71st Street and Broadway and jumped at 10:10 a.m. Her mother told investigators she had been diagnosed with Cushing’s syndrome, police sources said.
🖤 In Memory of Diana Crosley ~ June 18, 2014
Diana Lynn Alexander Crosley, age 58, of Sidney, passed away peacefully on Wednesday, June 18, 2014, at 10:10 p.m. at her residence surrounded by her loving family. She was a long-time Cushie who'd had a BLA at the NIH in 2002.

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