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Crystal

June 12, 2017 MaryO

Please help me if you can. I really enjoy and am grateful for this group. I’ve learned so much and I now know I’m not alone with this disease. Thank you for your time.

From my email.

🦓 Day 15: Cushing’s Awareness Challenge 2018
After I was finished with the Cushing's long diagnostic process, surgery and several post-op visits to NIH, I was asked to give the scripture reading at my church. The man who preached the sermon that week was the survivor of a horrific accident where he and his family were hit by a van while waiting at an airport.
🎤 Interview Archive: Jenn, Steroid Induced (Iatrogenic) Cushing’s patient
Jenn (StaceyJenn) was diagnosed with adrenal insufficiency, hypothyroidism, and a host of other ailments in 2001 (candidiasis, intestinal permeability, 22 latent food allergies). Once diagnosed, she was on specially formulated hydrocortisone for 7 years as she was allergic to the fillers in the meds....
🦓 Day 14: Cushing’s Awareness Challenge 2018
So, these are only seven of the many, many symptoms of Cushing's. I had those above – and I often felt like I looked like one of those little bearded dwarves. Cushing's affects every part of the body. It’s not like when I had kidney cancer and only the kidney was affected.
🎬 About the Hypothalamus-Pituitary- Adrenal Axis (HPA Axis)
This is a video is on the HPA Axis.
✍️ Comment added to Rachelle L (Rachelle), Mother-in-Law of Pituitary Patient
Dr. John Lee was a doctor who wrote extensively about progesterone therapy for women in menopause. This is one of his books on amazon: https://amzn.to/2JJ1JWw Here’s a lecture on the HPA Axis...
✍️ Comment added to Rachelle L (Rachelle), Mother-in-Law of Pituitary Patient
...I do have many of the symptoms of hypothyroidism, including feeling cold all the time. I know I have high testosterone levels, as they have been tested and shown as high, and I have some of the affects of that, too, like increased facial hair and chest hair and deepening of the voice.
🎤 Interview Archive with Monica and Crystal, Pituitary Buddies
Monica was diagnosed with Cyclical Cushing’s. She had pituitary surgery in November 2006. An 8mm encapsulated pituitary tumor was removed. Since there was no post-op crash, she also had a BLA in December 2006.
🦓 Day 13: Cushing’s Awareness Challenge 2018
So, where did all this blue and yellow come from, anyway? The answer is so easy and without any thought that it will amaze you! In July of 2000, I was talking with my dear friend Alice, who ran a wonderful menopause site, Power Surge. We wondering why there weren’t many support groups online (OR off!) for Cushing's and I wondered if I could start one my […]
📰 Fluorescent Metabolite Might Help Surgeons Remove Pituitary Tumors
The resection of microadenomas — small, benign tumors in the pituitary gland underlying Cushing’s disease — could be aided by a fluorescent marker that is naturally produced by the tumor, a new study shows.
✍️ Comment added to Ren, Undiagnosed Bio
...My dermatologist took one look at me and suggested it was Cushing’s then immediately referred me to an endocrinologist. I have been lucky to have good doctors along the way. I’ve had my pituitary and adrenal glands removed as well as radiation treatment and participated in a drug study. Today I struggle mostly with fatigue, weak muscles, headaches and anx […]

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