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Crystal

June 12, 2017 MaryO

Please help me if you can. I really enjoy and am grateful for this group. I’ve learned so much and I now know I’m not alone with this disease. Thank you for your time.

From my email.

🖤 In Memory: Kate Myers, June 23, 2014
Kate (Fairley on the Cushing's Help message boards) was only 46 when she died on June 23, 2014.
⭐️ Top PIcks on the Message Boards updated June 22, 2021
Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
📰 Bradley Javorsky, MD, on a New Cortisol Cutoff for Adrenal Insufficiency Diagnosis
With the goal of reducing false positives for adrenal insufficiency (AI), scientists are recommending a new, more precise diagnostic cutoff of 14-15 μg/dL of serum cortisol, rather than the current 18 μg/dL.
❓Can You Help? Connecticut Doctor
I am trying to find a doctor for my mom. She is located in Monroe, CT. Would prefer someone in Fairfield or New Haven county, but I am willing to drive further if necessary.
🖤 In Memory of Diana Crosley ~ June 18, 2014
Diana Lynn Alexander Crosley, age 58, of Sidney, passed away peacefully on Wednesday, June 18, 2014, at 10:10 p.m. at her residence surrounded by her loving family. She was a long-time Cushie who'd had a BLA at the NIH in 2002
📰 Hydrocortisone Autoinjector
The ZENEO autoinjector is a revolutionary delivery system, and this product is a terrific strategic fit with our current adrenal insufficiency business. Patients, advocacy groups, and physicians in the adrenal insufficiency community have repeatedly expressed to us the need for a hydrocortisone autoinjector, so we are excited to be partnering with Crossject […]
💻 Living Rare Living Stronger ~ Nord® Patient and Family Forum June 26-27Th
2021 Living Rare, Living Stronger NORD Patient and Family Forum featuring the Rare Impact Awards The health and well-being of people living with rare diseases, their loved ones and those working to improve their lives continues to remain a top priority for all of us here at NORD. The COVID-19 pandemic brought us new ways to engage with our community and our […]
🖤 In Memory of Sarah Fraik ~ June 13, 2011
Sarah had surgery to remove a tumor from her pituitary gland in the hopes of treating her Cushing's Disease. She died on June 13, 2011 after a brief illness at the age of 28.
✍️ Comment added to Amy (Amybtru), Pituitary/Adrenal Bio
I have been ill for years & years. Was diagnosed Cushing’s Syndrome in 2010 but now I know what I’m looking for I can honestly say I’ve had bouts of it since childhood.
✍️ Amy (Amybtru), Pituitary/Adrenal Bio
Amy is from Michigan. She has a great many symptoms, a pituitary microadenoma, an 8 1/2 mm nodule on the adrenal gland and her left kidney has a some type of cyst on the superior pole.

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