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Betseebee

December 15, 2016 MaryO

I am thankful for you and this site too! I love reading success stories. Do you happen to know if scarring that results in adrenal insufficiency is common in the years after pit surgery? I wish you all the best.

~ from the message boards

📞 Pituitary Support Meeting
From group leader Sharmyn McGraw: Hi All, I hope you can join us on Zoom this Saturday, Nov. 14, 2020 starting at 9:00 a.m. (PST). For those that can't make it, I will record the meeting and post it later on our Facebook page. I look forward to seeing you!
⭐️ Top PIcks on the Message Boards updated November 7, 2020
Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
✍️ Comment on Kelsey G (kelcann44), Undiagnosed Bio
I have been struggling for years with blood and urine tests coming back just under the threshold for a definitive diagnosis of Cushings. And when I ask for a repeat test I get hit with questions like “what makes you think you have cushings?” when the original idea came from a rheumatologist. Very frustrating!
📞 Cushing's Disease Study
We have an opportunity for you to take part in a Cushing's Disease study (IPS_4636) for Patients. Our project number for this study is IPS_4636.
📰 Earwax may reveal how stressed you are
A new method of collecting and analyzing earwax for levels of the stress hormone cortisol may be a simple and cheap way to track the mental health of people with depression and anxiety. Cortisol is a crucial hormone that spikes when a person is stressed and declines when they're relaxed. In the short-term, the hormone is responsible for the "fight […]
‼️ Message Board Upgrade (and new features!) November 7, 2020
It's going to look a little different but please let me know if anything is not working properly.
🖤 In Memory: Erin Lee Rechel Pugh
Erin was from Canton, Ohio and several other Cushies met her at local meetings. She was 35 when she died.
🖤 In Memory of Stacy Ollenberger ~ November 4, 2015
Stacy had two pituitary surgeries, radiation and an adrenalectomy. She died of an adrenal crisis on November 4, 2015.
✍️ MaryO: Adapted From 40 Days of Thankfulness
I am thankful, believe it or not, that I had Cushing’s. Mind you, I wouldn’t want to have it now, although diagnoses and surgeries seem “easier” now. Having Cushing’s taught me a lot, including how to stick up for myself, how to read medical books to learn more about my disease, how to do web design, how to navigate NIH. It taught me patience, how to make ph […]
✍️ MaryO, 33rd Pituitary Surgery Anniversary
Today is the anniversary of MaryO's pituitary surgery at NIH in 1987. Today is the 33rd anniversary of my pituitary surgery at NIH. As one can imagine, it hasn’t been all happiness and light. Most of my journey has been documented here and on the message boards – and elsewhere around the web.

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