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Betseebee

December 15, 2016 MaryO

I am thankful for you and this site too! I love reading success stories. Do you happen to know if scarring that results in adrenal insufficiency is common in the years after pit surgery? I wish you all the best.

~ from the message boards

📰 7 Things Your Hair Reveals About Your Health
Brittle hair is one of the symptoms of Cushing’s syndrome, which is a rare condition caused by excess cortisol, the main hormone body stress. But, there are many other, more obvious symptoms of Cushing’s syndrome, including high blood pressure, fatigue, and back pain. Treatment for Cushing’s syndrome may involve changing the dose of medication that […]
📰 Lung Neuroendocrine Tumors With Cushing Syndrome Not Biologically Aggressive
Neuroendocrine pulmonary tumors in people with Cushing syndrome (CS) are associated with increased nodal metastasis, higher recurrence, and lower disease-free survival compared with quiescent bronchopulmonary tumors, according to results from an observational case series published in JAMA Network Open. Researchers said their study shows these tumors are not biologically aggressive and underlying carcinoid biology may not […]
❓Can *you* Help?
Hi there, I (22F, 140 pounds) just got the results from my 24 hr ufc and was hoping someone could take a look at them for me and possibly clear some things up as it'll be a while until I see my endocrinologist. I know that hypoglycemia is not typical of Cushing's, I was actually […]
ℹ️ Basics: Post-Op BLA
I'm going to try to keep all of my post-op BLA updates in this thread. I am hoping it will eventually show positive progression and be a realistic and inspirational thread for others. Today I am two weeks post-op BLA. So far, no scares. I am on 30/20/20 of hydrocortisone and weaning by 10 mg […]
⭐️ Top Picks on the Message Boards updated January 13, 2022
Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
📰 Pediatric Adrenal Insufficiency: Challenges and Solutions
However, children that experience low cortisol concentrations and symptoms of cortisol insufficiency can take advantage using a modified release hydrocortisone formulation. The acute adrenal crisis is a life-threatening condition in all ages, treatment is effective if administered promptly, and it must not be delayed for any reason.
📰 Frequently Asked Questions in Patients With Adrenal Insufficiency in the Time of COVID-19
Adrenal insufficiency (AI) is a life-threatening disorder, with increased morbidity and mortality, especially in case of an acute illness that can increase the requirement of cortisol. A novel infectious disease, termed Coronavirus Disease 2019 (COVID-19), appeared in 2020.
📰 Unique Cell in Rare Tumor Tied to Ectopic Cushing’s
Ectopic Cushing’s syndrome due to ectopic ACTH&CRH-secreting by pheochromocytoma is extremely rare and can be fatal if not properly diagnosed. It remains unclear whether a unique cell type is responsible for multiple hormones secreting.
👥 Join us for a Virtual RDLA Regional Meet and Greet Session!
This is a fun opportunity for the rare disease community in each region and state to get together before Rare Disease Week to foster community and camaraderie. Whether you are new or a veteran of the rare disease community, there will be something for everyone. We want to take time to get together socially before the excitement […]
📰 Korlym: Failure to Show a Reasonable Expectation of Success Dooms Obviousness Allegations
[t]he degree of change in exposure of mifepristone when co-administered with strong CYP3A inhibitors is unknown” and “may present a safety risk.” The concern was that without the required study the patients with Cushing’s syndrome that take strong inhibitors may be unable to use mifepristone.

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