HomeAlicia R

Alicia R

February 3, 2014May 1, 2016 MaryO

I owe my life to Mary’s site. I diagnosed myself, learned a ton, and had support from the beginning through a difficult recovery!

(On Facebook)

⭐️ Top Picks on the Message Boards updated October 16, 2021
Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
📰 Identified: the gene behind an unusual form of Cushing’s Syndrome
A team of scientists in Montreal and Paris has succeeded in identifying the gene responsible for the development of a food-dependent form of Cushing’s Syndrome, a rare disease affecting both adrenal glands. In their study published in The Lancet Diabetes & Endocrinology, Dr. Isabelle Bourdeau and Dr. Peter Kamenicky identify in the gene KDM1A the mutatio […]
ℹ️ Cushing's Basics: Testing: 24 Hour Urine Tests (UFC)
Twenty-four Hour Urine: The doctor will give you a gallon collection jug, usually with boric acid in it. The instructions are usually printed on the side. Generally, you urinate first thing in the morning, as usual. after that, you collect the rest of the urine for the next 24 hours in the jug. The directions usually tell you to refrigerate the jug.
👕Cushing's TShirts! You're Right - It's All in my Head
From Board Member HappyGirl - So honored that our wonderful vendor Squishy Faces offered to make this shirt for Cushing’s Awareness! It is a unisex fit for these. As some of you may know, I have a tumor in my pituitary that is causing Cushing’s Disease. I am getting brain surgery Oct 13th 2021! This is one of the worst and hardest illnesses to diagnose. For […]
‼️ Message Board Upgrade (and new features!) Today
It's going to look a little different but please let me know if anything is not working properly.
💉 Did You Get The Pfizer Vaccine? You May Need the Booster
COVID-19 Vaccine booster shots are available for the following Pfizer-BioNTech vaccine recipients who completed their initial series at least 6 months ago and are: Obese or diabetic.
ℹ️ Cushing's Basics: Testing: Inferior Petrosal Sinus Sampling
Video, personal stories and "official information". The MRI still showed nothing, so they did a Petrosal Sinus Sampling Test. That scared me more than the prospect of surgery. (This test carries the risk of stroke and uncontrollable bleeding from the incision points.) Catheters were fed from my groin area to my pituitary gland and dye was injected. […]
🖤 In Memory: Martha, October 14, 2008
Upon getting the pre-op work ready for her IPSS, Martha had another abnormal EKG and she was sent for a chemically induced stress test. During the stress test, she said she became very, very sleepy and the nurse asked if she was ok. A few days after the test she became very dizzy and briefly passed out in the kitchen but refused to go to the hospital. She wa […]
❓ Were You a Patient at Beth Israel Medical Center in New York?
Neurologist Accused of Sexual Assault A neurologist at Beth Israel Medical Center in New York has been accused of repeatedly sexually assaulting patients over the course of a decade, but was still able to secure three jobs in three states until surrendering his license in 2017, a new lawsuit with multiple plaintiffs revealed.
🖤 In Memory: Bonny Hamm, October 12, 2009
She was only 45 at the time of her death October 12, 2009. I’ve known far too many Cushies who have died far too young from this disease. Bonny wrote July 1, 2009 I was sick with ALL the symptoms (about 30-40) for 5 years. Finally got correctly diagonosed and had my left Adrenal Gland and its tumour removed in June 2007. The recovery was long and hellish. Th […]

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