HomeAlicia R

Alicia R

February 3, 2014May 1, 2016 MaryO

I owe my life to Mary’s site. I diagnosed myself, learned a ton, and had support from the beginning through a difficult recovery!

(On Facebook)

⭐️ Top PIcks on the Message Boards updated February 20, 2021
Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
📰 Increased Mortality Risk in Patients With Primary and Secondary Adrenal Insufficiency
A retrospective cohort study was performed to compare mortality risk and causes of death in adrenal insufficiency with an individually-matched reference population. Researchers examined 6,821 patients with adrenal insufficiency (primary, 2052; secondary, 3948) and 6,7564 individually-matched controls (primary, 20366; secondary, 39134). It was shown that in a […]
📰 Successful Cushing’s Surgery Leads to Better Bone Density
Biomarkers in a majority of Cushing’s syndrome patients with surgically induced disease remission showed a high rate of bone turnover and greater bone mineral density one and two years later, a study reports. Before treatment, these patients were found to have greater bone degradation and poorer bone formation, as can be common to disease-related bone disord […]
💙 MaryO/COVID Vaccine 1
Quick takeaway: I have adrenal insufficiency (one adrenal was removed with my kidney due to cancer, steroid-dependent (post-Cushing's Disease), growth hormone insufficiency, panhypopituitary. I had some issues after my first COVID-19 injection (Moderna) but not too bad. My second injection will be March 15.
$$$ Attention Cushing's Patients ~ Patient Advisory Board $$$
Virtual Patient Panel for Cushing's Syndrome Patients. Patients that are accepted will be compensated for their participation.
📰 New study identifies the main genetic causes of autoimmune Addison's disease
Scientists from the University of Bergen (Norway) and Karolinska Institutet (Sweden) have discovered the genes involved in autoimmune Addison's disease, a condition where the body's immune systems destroys the adrenal cortex leading to a life-threatening hormonal deficiency of cortisol and aldosterone.
❓Can You Help? Possible Recurrence
I thought I had moved on from this terrible disease. .. I have had two unsuccessful put surguries, a bla 2x (due to ectopic adrenal tissue) and fear I may be having a recurrence.
✍️ Comment on Liberty, Undiagnosed Bi0
This sounds SO much like me! Especially the pms/pmdd
📰 Thyroid dysfunction highly prevalent in Cushing’s syndrome
Central hypothyroidism is prevalent in about 1 in 2 adults with Cushing’s syndrome, and thyroid function can be restored after curative surgery for most patients, according to study findings.
📰 Treatment for Rare Cancer May Help Cushing’s Patients
Oral osilodrostat (Isturisa) normalized cortisol levels in Cushing's disease patients who were ineligible for or not cured with pituitary surgery, according to the phase III LINC 3 trial.

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