$$$ Attention Cushing’s Patients ~ Patient Advisory Board $$$

Cushing’s Syndrome Patient Advisory Board: Patient Qualifier

Virtual Patient Panel for Cushing’s Syndrome Patients
Patients that are accepted will be compensated for their participation.

Q1: Are you a U.S. Citizen and at least 18-years or older?

Q2: Have you been diagnosed with Cushing’s Disease (CD) or endogenous Cushing’s syndrome (CS)?

Q3: Did your doctor find a tumor on your Pituitary Gland?

Q4: You must currently be taking a prescription medication to treat your Cushing’s. The medication must include ONE of the following:

  • ketoconazole
  • ISTURISA® (osilodrostat)
  • KORLYM® (mifepristone)
  • SIGNIFOR® (pasireotide), OR SIGNIFOR® -LAR (pasireotide).

Q5: You must have been on your current medication for at least 1-month (ISTURISA-only), and all other Cushing’s medications for ≥3-months.

If you answered all the questions YES and are taking a prescription medication to treat your Cushing’s, please contact:
KIRSTEN YORK, Vice President of Discovery, at ENTRADA.

🔵 New on the Message Boards ~ July 29, 2017

 

A quick summary of some of this week’s activity on the Cushing’s Help message boards.

 

The Guest Questions have returned on a trial basis.  At the moment, new guest questions are not moderated.  Guests may ask for information and (hopefully!) board members will answer.

There is one question so far on How to search the boards?

A New Introduction at Jasmine, Possible Cushie, Stressed Beyond Belief!

More on an insurance issue in Dr F Update

Just for fun, I’ve added other images to Announcements, Questions About How These Boards Work? and Introduce Yourself to help newcomers find their way.

Information about A Phase III Study of Osilodrostat to Treat Cushing’s Disease

A long-time board member reports that she is Cured! No Surgery 🙂

The ups and downs of Blood Pressure

There’s other stuff happening but you’ll just have to read the boards to find out what!

(Please note that I’m sharing these from the Cushings-Help.com message boards. You must be a logged-in member of that board to read them. Log in or register at http://cushings.invisionzone.com )

Please join us!