Can someone please offer help, ive been suffering for a year and just got blood results today with a high cortisol reading. My doctor said that my contraceptive pill could have caused this, however, I am not on the regular pill but on the POP progesteron only pill.
Is anyone aware of if this raises cortisol levels the same way the regular combined pill does?
Any help would be so very much appreciated!
Please respond here, on the message boards, or in the original post.
Thanks!
If you can help, please respond here or on the Message Boards. Thanks!
I believe I need legal assistance related to i humane treatment by city and/or county officials. I can explain further, if need be, once I find out if it’s even possible to get help. And I certainly cannot afford to pay an attorney, since my income is SSD (Disability), which is low and fixed, which has been the case since Cushing’s reared it’s remorseless, destructive head in 2008. Is there any legal assistance fund set up for Cushing’s patients?
I think I have Cushing’s I have about 10 symptoms…my cortisol levels came out high with a 24 hour urine hormone panel but my endocrinologist did not even mention it. At the time when I had the test done, (March 2020)I had no idea what cortisol was. I just figured and trusted my endocrinologist would prescribe me with whatever hormones and or treatment I needed and would have me take whatever tests he order. Anyhow, in a range from 1-10 for bedtime cortisol, my result was 27! Cortisol metabolites, range from 1160-2183, my result was 5370!!!
The only reason I started to do more research on cortisol is because just a few weeks ago I started experiencing severe chest pain from the moment I wake up and any little thing stresses me out and gives me anxiety and I feel like I’m gonna have a heart attack any moment! So I looked back at my paperwork and noticed these really elevated cortisol levels. But my endocrinologist never mention them… Why? This is how I found this disease, I have so many symptoms of Cushing’s disease, And it is not a result of exogenous stuff causing cortisol levels to rise. I don’t take any medication whatsoever and was not taking any medication at that time or for the past year. All I have taken for the past year is what he prescribed, thyroid medication and progesterone. Someone please tell me if these levels are of concern from your perspective.
Please respond here or on the message boards.
Thanks!
I “acquired” this from another site and changed the names to protect the innocent…
As you know many of us Cushies have had or have an addiction to Googling.
I suggest anyone who feels compelled to google symptoms go to the message boards to ask for support instead of typing these or any words such as “buffalo hump” in the google search engine. When this is done all roads lead to one thing…… You Eat Too Much!; You’re Depressed!
So, anyone who is about to hit enter on their computer which feeds their Google addiction…. go to the message boards to ask for help. One of the other Cushies who have achieved “Google sobriety” will help you down of the ledge.
1. Admit for now that you are powerless over your urge to Google.
2. Believe that a power greater than you (that would be other Cushies) can help you off that ledge
3. Decide to turn your “fingers” over to a higher power as you understand it.
4. Make a searching and fearless inventory of what you hope to gain from googling.
5. Admit to yourself and to another human being the exact nature of your addiction to Google.
6. Allow other Cushies to assist you when you are so scared you are thinking about googling symptoms.
7. Humbly ask for Xanax, Klonopin or Cortef in order to calm yourself from googling symptoms
8. Make a list of all the diseases you think you have or have had and survived and have a burning ceremony and then…. take a nap.
9. Cite all Google sites you have searched diseases on and delete them from your favorites/history.
10. When you start thinking….STOP….. do something else, like take an inventory of your test results.
11. Seek through prayer and/or meditation to improve your thought process. Do not travel to “OMG’ or “What if” land (this is a serious suggestion).
12. Having had a spiritual awakening as a result of these steps, carry this message to all your Cushie friends and anyone else you know who has a Google addiction.
13. Now I know there isn’t a 13th step, however, if you have noticed you are drinking too much wine or taking too many pills, please remember there are other 12 step programs for that, lol…
So, what about it – what are *your* suggestions to cure Google Addiction?
Hi I recently became aware of my possible buffalo hump after xrays of my neck were normal except for a fat pad at the base of my neck.
After reading of some of the symptoms of Cushings it was a light bulb moment with so many symptoms being similar to what I’m going through.
I have extra fat in my sternal notch as well, looking at these pictures do I have a moon face, etc.
I’m waiting for the results of my 24 hour urine test.
Thought I would ask to see what you all thought. Thanks for your help.
This potential Cushie has posted several photos here.
Please respond here, on the message boards, or in the original post.
Thanks!
A guest on the Cushing’s Help message boards asked:
I’ve been searching every possible alternative explanation. I really hoped I just had a Lipoma but GP was pretty confident no.
I’ve gained about 40lbs in the past year, I bruise easily and I have a Buffalo Hump. Cycle is regular, my mood is good, well ya know pandemic, home schooling, owning a business … Lol I don’t think I’m suffering any unusual stress or anxiety though. I am anxious over the time it’s taking to get any info.
I had blood drawn and an upcoming sono, date TBD, but don’t see my GP for 5 wks!
Can I get blood results over ph and skip right to Endocrinologist if Cortisol is high? Any input of speeding this along?
Anyone else with only a few symptoms?
Thanks!
Can you help Ellie out? Please respond here or on the Message boards.
Thanks!
Donna Asked:
Can someone please help me? Over the past few years I have gained over 40 lbs, suffer from extreme fatigue, muscle cramps, headaches, just to name a few. I also have a hump between my shoulders. I have gone to see my primary care physician and asked about Cushing’s syndrome and she said that there’s just no way I could have this because it is so rare. I asked for a referral to see a endocrinologist and she finally agreed. After doing some research on this debilitating disease, I am convinced that I am it’s next victim. I am so scared. What can I expect from this endo appointment?
Please respond here or on the message boards at http://cushings.invisionzone.com/topic/54455-please-help/?page=0#comment-474250
This question came up on the message boards today: Anyone ever used a Rife Machine on Cushings syndrome?
My response:
I don’t think so – this is the first I have heard of a Rife Machine so I looked it up and found this info:
Anyone else? Have you heard of this for Cushing’s?
Frantbri, are you going to try it? If so, please keep us posted!
It would be great if something like this worked.
Every morning, I go onto the message boards and ban the spammers who seem to operate only at night. This one was particularly amusing since he posted the same basic messages about 3 hours apart.
In that 3 hours, he managed to change his IP address (upper right corner), his birthplace and his school plus a few other minor details.
Unfortunately, both posts were in response to the same topic so they appeared right after one another LOL
Hi wondered if anyone could help me out – been suffering with these symptoms lately and wondered if cortisol could be the issue
– Thinning legs
– Fat building in the trunk (abdomen and chest)
– Seemingly more fat under my chin
– Excessive fatigue even after a nights sleep
– Weak muscles – mainly back /arms and shoulders
– muscle wasting
– Feeling very low and anxious
Thanks in advance,
Can you help JT out? Please respond here or on the Message boards.
Thanks!