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Phil B

July 29, 2016 MaryO

As I researched “Cushing’s disease” I happened across a support group website ( Cushing’s-Help.com) and began a quest. (Thank you MaryO for this wonderful resource and support!)

From Facebook

👥 Pituitary Tumor Support Group
Please consider joining us for #Pituitary Tumor Support Group on Saturday October 7th, 2023 at 9am to discuss Current and Emerging Medical Therapies in Pituitary Tumor Treatment by Dr. Mahalakshi Honasage, #Endocrinologist, and Dr. Jack Rock, #Neurosurgery.
‼️ Message Board Upgrade Coming this Weekend
This is our September maintenance release. Key changes include: New Spam Prevention Features Introducing Community Hive
ℹ️ Cushing's Basics: Testing: Inferior Petrosal Sinus Sampling
Video, personal stories and "official information". The MRI still showed nothing, so they did a Petrosal Sinus Sampling Test. That scared me more than the prospect of surgery. (This test carries the risk of stroke and uncontrollable bleeding from the incision points.) Catheters were fed from my groin area to my pituitary gland and dye […]
📰 Rare Challenges in Diagnosing Cushing’s Syndrome and Primary Aldosteronism: A Case Report of a Female With a Negative Workup
Cushing’s syndrome with concurrent primary aldosteronism (PA) is a rare presentation, and establishing an early diagnosis is imperative to preventing morbidity and long-term sequelae. The diagnosis is established by sequential lab work, showing an elevated cortisol and aldosterone level.
ℹ️ Basics: Cushing's Syndrome vs. Cushing's Disease
Any condition that causes the adrenal gland to produce excessive cortisol results in the disorder Cushing's syndrome. Cushing syndrome is characterized by facial and torso obesity, high blood pressure, stretch marks on the belly, weakness, osteoporosis, and facial hair growth in females.
📰 Unique Gene Expression Signature in Periadrenal Adipose Tissue Identifies a High Blood Pressure Group in Patients With Cushing Syndrome
Cushing syndrome (CS) is a rare disease caused by excess cortisol levels with high cardiovascular morbidity and mortality. Hypertension in CS promotes hypercortisolism-associated cardiovascular events.
👥 Register for Johns Hopkins Pituitary Day October 7, 2023!
October 7 @ 9:00 am – 1:00 pm The annual Pituitary Patient Education Day is a free event that features presentations from Johns Hopkins pituitary experts.
🖤 In Memory: Kandace Bankston ‘Kandy’ Kline, September 9, 2007
Kandy Klein long-time member of the message boards passed away September 9, 2007.
ℹ️ Cushing's Basics: Testing: 24 Hour Urine Tests (UFC)
Twenty-four Hour Urine: The doctor will give you a gallon collection jug, usually with boric acid in it. The instructions are usually printed on the side. Generally, you urinate first thing in the morning, as usual. after that, you collect the rest of the urine for the next 24 hours in the jug. The directions […]
📰 Long-Term Efficacy and Safety of Osilodrostat in Patients with Cushing’s Disease
Osilodrostat provided long-term control of cortisol secretion that was associated with sustained improvements in clinical signs and physical manifestations of hypercortisolism. Osilodrostat is an effective long-term treatment for patients with Cushing’s disease.

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