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Phil B

July 29, 2016 MaryO

As I researched “Cushing’s disease” I happened across a support group website ( Cushing’s-Help.com) and began a quest. (Thank you MaryO for this wonderful resource and support!)

From Facebook

🖤 In Memory: Shianne Lombard-Treman, March 28, 2018
Shianne was a Cushing's Survivor who had just published a book, Be Your Own Doctor She was 41.
⭐️ Top Picks on the Message Boards updated March 28, 2023
Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
🖤 In Memory: Deloreese Daniels Owens, March 16, 2002
Deloreese Daniels Owens, daughter of “Touched by an Angel” star Della Reese, was found dead at her Los Angeles-area home at the age of 41. The cause of death was not disclosed, but Owens suffered from a pituitary dysfunction that made her prone to infections.
🖤 In Memory: Marie Richardson, March 2009
I do not know the exact date that Marie died in March, 2009. Contributory factors in Mrs Richardson's death had been Cushing's disease, a very rare condition involving a hormone disorder, and bronchial pneumonia.
🖤 Remembering Sue Koziol (SuziQ)
When I opened up my phone this morning, I saw the reminder that this is the anniversary of Sue's passing. She was such a good friend to so many here and so many Cushies worldwide. It's been another year. Not a day goes by that I don't miss Sue.
🥼Bee’s Knees: TKR, Finally!
After going through the Medical Clearances again, 5 days of antiseptic showers (plus another one this morning), drinking what seems like gallons of Gatorade (I couldn’t have the hospital-offered strawberry Ensure), my surgery is scheduled for 12:30 pm today.
‼️ Message Board Upgrade (and new features!) Coming this Weekend
This is our March maintenance release.
🎬 Video: Happy Girl tells her Story So Far
I am currently struggling to get a Cushing's Diagnosis. I have all the symptoms, the weight gain, the striae, the fatigue, muscle issues, Buffalo hump, it all matches up, but my salivary cortisol tests and the UFC I took also came back normal (It did not test for 17-OHS). My doctor's keep telling me it's […]
🖤 In Memory of Erica Michelle “GaGa” Meno, March 6, 2015
Erica was a fellow Cushing’s Disease survivor. She had been through pituitary surgery, radiation, and a BLA in an effort to receive her cure.
📰 Cushing’s Syndrome in the Elderly: Data from the European Registry on Cushing’s Syndrome
Evaluate whether age-related differences exist in clinical characteristics, diagnostic approach and management strategies in patients with Cushing’s syndrome included in the European Registry on Cushing’s Syndrome (ERCUSYN).

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