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Monica H

July 22, 2016 MaryO

For my friends who fight and fight to treat their rare disease, and then end up with this rare disease as the solution. Thank you Mary O for establishing our wonderful network! 🙂

From Facebook

📰 Cushing’s Syndrome in the Elderly: Data from the European Registry on Cushing’s Syndrome
Evaluate whether age-related differences exist in clinical characteristics, diagnostic approach and management strategies in patients with Cushing’s syndrome included in the European Registry on Cushing’s Syndrome (ERCUSYN).
🥼Bee’s Knees: Pre-TKR, Another Setback?
So, I had the Medical Clearance Revision and it was exactly like the Medical Clearance I did just over 30 days ago. It looks like surgery is a go. Thursday, March 9 at 12:15. There’s extra stuff for me to do to prepare, thanks to Cushing’s, the GH deficiency, the Adrenal Insufficiency, the one kidney, […]
🖤 In Memory: Liz Raftery, March 2012
We sadly learned that Liz died in March 2012 at the age of 45. She was an active member of the Cushing’s Help Message Boards. She had a photo gallery there. The photo below is from that gallery. Liz in 2002The image at left is from 2002. Liz wrote in her bio: Hello, I’m from […]
🦓I t’s Kidney Cancer Awareness Month Again
Kidney Cancer Awareness is very important to me, because I learned I had it in 2006. I’m pretty sure I had it before 2006 but in that year I picked up my husband for a biopsy and took him to an outpatient surgical center. While I was there waiting for the biopsy to be completed, […]
ℹ️ Cushing's Basics: What Is Cortisol And How Is It Affecting My Energy Levels?
You may be experiencing high cortisol levels if you’re holding onto weight in your belly or face or have noticed fat deposits in your shoulder or stretch marks on your stomach. Muscle weakness, blood sugar spikes, high blood pressure and hirsutism (unwanted hair growth) may be other red flags.
💡 Light Up for Rare
The National Organization for Rare Disorders (NORD) asks Americans to plan ahead to participate in the Light Up for Rare campaign to raise awareness of rare diseases. NORD is the U.S. sponsor for Rare Disease Day on Feb. 28. The annual awareness day spotlights approximately 7,000 rare diseases that affect more than 300 million people worldwide. More than 25 million Americans and […]
✍️ For Rare Disease Day: MaryO, Pituitary/Kidney Cancer Bio
As one can imagine, it hasn’t been all happiness and light. Most of my journey has been documented here and on the message boards – and elsewhere around the web.
📅 What I'm Doing for Rare Disease Day
Each and every day since 1987, I tell anyone who will listen about Cushing’s...
📅 Today is Rare Disease Day
Today is Rare Disease Day. Learn all about Cushing's Disease at http://www.cushings-help.com/
⭐️ Top Picks on the Message Boards updated February 27, 2023
Top content from across the message boards, hand-picked by MaryO and the Cushing's community.

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