Interviews, Meetings and Conferences

đź“ž Webinar: The Art of Parenting While Sick

MaryO Interviews, Meetings and Conferences , , ,

Are you a parent with adrenal insufficiency?

If you’ve ever struggled with how to talk to your child about adrenal insufficiency, you’re not alone. In this free webinar with Hilary Hodge, she will discuss:

  1. What adrenal insufficiency is and how you manage it
  2. What an adrenal crisis is and what to do if you have one
  3. Household guidelines that can help you manage your condition, and more.

Thursday 27 March 2025: 7-8pm (UK Time.  3pm Eastern)

 Register now 

This webinar is perfect for parents who would love to have age-appropriate strategies and scripts in their back pocket for whenever they need to talk about their condition with their child.

There will be time for a Q&A at the end where you can bring any questions you may have.

This webinar is offered by ​​​​​​​Hilary Hodge, who has adrenal insufficiency herself, hear more about how to talk to children about adrenal insufficiency and how you manage it; how to explain what an adrenal crisis is and what they should do if you have one; how to set household guidelines to help you manage your condition, and more.

Register here: https://www.addisonsdisease.org.uk/Event/the-art-of-parenting-while-sick

📅 Adrenal Insufficiency United’s Lunch & Learn

MaryO Interviews, Meetings and Conferences , , ,

Adrenal Insufficiency United’s Lunch & Learn Events are one day mini-conferences located in different cities in the USA. We find great local speakers to lead sessions and give presentations about issues affecting those with adrenal insufficiency. These one day events will be packed full of opportunities giving attendees more chances to ask questions, share their own experiences and network with fellow members of the community.

Portland Oregon

Where: Portland Oregon: Oregon Health Science University Conference Center: located on the on Waterfront @ 3410 S Bond Ave, Portland, OR 97239

When: Tuesday March 25th  9:30 a.m – 3:30  p.m.

Costs: Early Bird Registration $10 per person. Starting March 1st, registration will be $25 per person.

Parking: OHSU offers on-site parking for $18. Carpooling is encouraged.

Child Care: Since this event is during Spring Break AIU is considering offering child care for pre-school – elementary aged children. Please indicate your interest when you sign up.

Optional Outing: AIU has secured a limited number of tickets to the Portland Trailblazers Game on Tuesday night. We’d love for you to join us. Tickets are $17 per person.

Schedule & Topics

We are still finalizing our schedule so some changes may occur. 

9:30 a.m. Check in and networking

10:00 a.m. – 11:30 a.m.  Session on Adrenal Insufficiency presented by Chris Yedinak, M.N., F.N.P, D.N.P.

11:30 a.m. – 12:30 p.m.  Lunch Provided:

  • Take your lunch and join in a conversation with one of our presenters or with a new group of friends!

12:30 p.m. – 3:30 p.m.      Afternoon Break Out Group Proposed Topic: You’ll be able to attend at least two, possibly three.

  • Jason Dunn RN, CSRN will provide injection training.
  • Jason will also  lead a discussion on managing adrenal insufficiency and how to best advocate for yourself while working with your health care provider.
  • Learning to identifying pre-crisis and adrenal crisis
  • Chris will lead a group for those with secondary and tertiary adrenal insufficiency
  • Chris will have an additional break out group for an open ended Q & A discussion.
  • A child life specialist from Dorenbecher Children’s Hospital will discuss strategies and tips to help children process the emotions that come with their chronic condition.
  • A pediatric specialist in endocrinology will discuss issues specific to children with adrenal insufficiency.
  • An OHSU clinical trial coordinator will share current clinical trials and how you can be involved in current and/or future trials.

Sign up to attend at https://form.jotform.com/AIUnited/portland-LL

📞 Webinar on How to Stay Alive Without Adrenals (BLA and Addison’s)

MaryO Helpful Doctors, Interviews, Meetings and Conferences , , , , ,

YOU’RE INVITED! GoodHormoneHealth Webinaron How to Stay Alive (and flourish) if have no adrenals (BLA and Addison’s)-in memory of Dr. Friedman’s patients who passed away from adrenal insufficiency 

Dr. Theodore Friedman (The Wiz) will be giving an updated webinar on how to flourish if you have adrenal insufficiency.

Topics to be discussed include:

  • How do you optimally replace adrenal hormones?
  • What laboratory tests are needed to monitor replacement?
  • When and how do you stress dose?
  • What do you if you are having surgery?
  • What do you if you are hospitalized?
  • What about subcut cortisol versus cortisol pumps?
  • There will be an opportunity for patients to share their experience on Facebook

Sunday • January 19• 6 PM PST
Via Zoom Click here to join the meeting or
https://us02web.zoom.us/j/4209687343?pwd=amw4UzJLRDhBRXk1cS9ITU02V1pEQT09
passcode 111116
OR
+16699006833,,4209687343#,,,,*111116#
Slides and updated information sheet will be available before the webinar and recording after the meeting at slides
OR
Join on Facebook Live – https://www.facebook.com/goodhormonehealth at 6 PM

đź“ž Webinar Announcement: Compounded Tirzepatide vs Semaglutide

MaryO Five Star, Helpful Doctors, Interviews, Meetings and Conferences , , , ,

YOU’RE INVITED! 

Dr. Theodore Friedman (The Wiz) will be giving an updated webinar on compounded weight loss medicines.

Topics to be discussed include:

What is the difference between Tirzepatide and Semaglutide?

  • Are compounded medications safe?
  • Will they be discontinued?
  • What are the side effects?
  • How do they work with diet and exercise?
  • Why is Dr. Friedman recommending compounded medications?
  • How do you work with Dr. Friedman’s office to get the compounded medications?
  • There will be an opportunity for patients to share their experience on Facebook

Sunday • November 17• 6 PM PST
Via Zoom Click here to join the meeting or
https://us02web.zoom.us/j/4209687343?pwd=amw4UzJLRDhBRXk1cS9ITU02V1pEQT09
passcode 111116
OR
+16699006833,,4209687343#,,,,*111116#
Slides will be available before the webinar and recording after the meeting at slides

Join Us for the 13th Pituitary Patient Education Day

MaryO Helpful Doctors, Interviews, Meetings and Conferences, Maryland , , , , , , , ,

WHEN: SATURDAY NOVEMBER 2ND 2024

WHERE: The Johns Hopkins Hospital Chevy Chase Conference Center, Zayed Tower 1800 Orleans St. Baltimore MD 21287.

The annual Pituitary Patient Education Day is a free event that features presentations from Johns Hopkins pituitary experts.

To RSVP, please email pituitaryday@jhmi.edu. Space is limited. Each person can bring up to one guest. If you RSVP yes but you cannot make it, please inform us as soon as possible by email, so that the slot can be offered to someone else.

List of presentations will be posted when finalized. Topics covered last year include:

1800 Orleans Street, Zayed 2117
Baltimore, Maryland 21287United States

410-955-5000

For updates:

https://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/pituitary_center/index.html#pituitaryday

Webinar Announcement: Unlocking The Cavernous Sinus – Applications Of Advanced Surgical Anatomy For Management Of Invasive Pituitary Tumors

MaryO Interviews, Meetings and Conferences ,
Presented by:
Presented By: Dr. Almeida of Mayo Clinic
Wednesday July 10, 2024
10:00 AM – 11:00 AM  EDT
Learning Objectives: TBD

Webinar June 16! Compounded Weight Loss Medicines

MaryO Cushing's Awareness Challenge, Interviews, Meetings and Conferences , , , , ,

YOU’RE INVITED! 
GoodHormoneHealth Webinar on compounded Semaglutide/Tirzepatide (brand names Ozempic and Mounjaro) for patients with endocrine problems

Dr. Theodore Friedman (The Wiz) will be giving a webinar on compounded weight loss medicines.

Topics to be discussed include:

  • Who should go on weight-loss medications?
  • Which weight-loss medications are available?
  • What are the side effects?
  • How do they work with diet and exercise?
  • Why is Dr. Friedman recommending compounded medications?
  • How do you work with Dr. Friedman’s office to get the compounded medications?
  • There will be an opportunity for patients to share their experience on Facebook

Sunday • June 16• 6 PM PDT
Via Zoom Click here to join the meeting or
https://us02web.zoom.us/j/4209687343?pwd=amw4UzJLRDhBRXk1cS9ITU02V1pEQT09
passcode 111116
OR
+16699006833,,4209687343#,,,,*111116#
Slides will be available before the webinar and recording after the meeting at slides
OR
Join on Facebook Live – https://www.facebook.com/goodhormonehealth at 6 PM

Webinar: Visual Recovery After Pituitary Surgery

MaryO Interviews, Meetings and Conferences , , , ,

I’m sorry I can’t find more info on this –

Webinar Announcement: Visual Recovery After Pituitary Surgery

 

Presented by:
Dr. James Chandler

 

Friday April 26, 2024
9:30 AM – 10:30 AM  PST
Learning Objectives: TBD

 

🎤 Archived Interview with Mary O’Connor aka MaryO, Cushings-Help.com founder

MaryO Cushing's Awareness Challenge, Interviews, Meetings and Conferences , ,

As part of this year’s Cushing’s Awareness Challenge, I’ve decided to share our Interview Series again since there was lots of great info in there.

The series is still going on, so if you’d like to be a part of this, just let me know.  You can fill out this form and check off that you want to do an interview – Add Your Bio

There are currently 89 interviews in our series.  This is the first one:

Interview with Mary O’Connor (MaryO), founder of Cushings-Help.com and 20-year pituitary Cushing’s Survivor. Robin (staticnrg) hosted.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/01/03/mary-oconnor-aka-maryo-cushings-helpcom-founder

Some of the comments:

This is the first podcast I have listened to. How wonderful to hear your voices! Thank you Mary for sharing your story and for Robin for being the perfect host. This is a wonderful way of hearing about many of our journies with this awful disease – just brilliant!

Great topic……more awareness is needed as I’m convinced this is under-diagnoised vs. uncommon!!

The information age and innovative thinking meets new medical needs

Great show. informative and potentially life saving

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Dr. Theodore Friedman Will Be Giving a Brief Update on Growth Hormone Replacement

MaryO Five Star, Helpful Doctors, Interviews, Meetings and Conferences , , , ,

Dr. Theodore Friedman will be giving a brief update on growth hormone replacement, then answer your questions about endocrine issues.
He can not give specific medical advice and this does not replace making an appointment, but he can answer your questions on any endocrine topic including:
  • Cushing’s disease
  • Adrenal insufficiency/Addison’s
  • Hypothyroidism/Hashimoto’s
  • Graves’ Disease
  • Menopause
  • PCOS
  • Growth hormone deficiency
  • Hypopituitarism

For both existing and potential patients.

Sunday • January 21, 2024  • 6 PM PST

Please join using the links below
https://www.facebook.com/goodhormonehealth/  or Via Zoom Click to join the meeting
meeting ID 420 968 7343, passcode 111116
Slides will be available on the day of the talk here.

For more information, email us at mail@goodhormonehealth.com