Month: September 2025

❣️The Message Boards Turn 25 Today! ❣️

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Today  is the birthday, or anniversary, of the Cushing’s Help message boards.  They were started September 30, 2000 (The rest of the site started earlier that year on July 21, 2000)

As of today, we have 73,130 members who have made countless posts.

Find the message boards here: http://cushings.invisionzone.com/

Research Study for Patients Diagnosed with Cushing’s Disease and Their Caregivers

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We’re looking for caregivers to loved ones diagnosed with Cushing’s Disease or patients diagnosed with Cushing’s Disease to participate in a research study.

✅ Who: Patients and caregivers of loved ones

⏳ What: 30-minute Online Survey

💰 Compensation: $60.00

Sign up here: https://rarepatientvoice.com/CushingsHelp/

 

Save the Date: Dueling Endocrinologists Discussing Hypothyroidism Diagnosis and Treatment: Commonalities and Differences

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  • Dr. Friedman will be joined by Brittany Henderson, MD, ECNU for an exciting GoodHormoneHeath Webinar on Dueling Academic-Based Endocrinologists discussing state-of-the-art hypothyroidism diagnosis and treatment: Commonalities and Differences

    Each expert will discuss the following topics:

  • How is mild hypothyroidism diagnosed?
  • Why are full thyroid panels and not just TSH needed?
  • What is the role of rT3?
  • How to optimally use all types of thyroid hormone including NDT
  • Why both conventional and alternative providers have it wrong?
  • They will briefly discuss the proposed ban on desiccated thyroid by the FDA.

Sunday • September 14• 5 PM PDT/ 8 PM EDT
Via Zoom Click here to join the meeting or
https://us06web.zoom.us/j/4209687343?omn=87459672811
OR
16694449171,,4209687343#
Slides and copy of the paper and the press release will be available before the webinar and recording after the meeting at slides
OR
Join on Facebook Live – https://www.facebook.com/goodhormonehealth at 5 PMPDT/ 8 PM EDT

Your phone/computer will be muted on entry. There will be plenty of time for questions using the chat button.

Webinar: “Navigating Adrenal Health”

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Join NADF for the first annual virtual conference for patients and caregivers, “Navigating Adrenal Health”. With talks on topics ranging from research updates to accessing patient resources to EMS standards and expectations, participants can prepare for a wealth of information for patients, caregivers, and clinicians alike.

​Register today – FREE for all!

CALENDAR OF EVENTS
THURSDAY, OCTOBER 2ND

NADF at 40 Years
Paul Margulies, M.D., FACP, FACE
NADF Medical Director

Adrenal Crisis and EMS: Standards and Expectations
Joshua Stilley, M.D.
Emergency Medicine
Chair of the Missouri State Advisory Council on EMS

Recreating Human Adrenal Gland In Dish: Toward Endocrine-Level Reconstruction
Kotaro Sasaki, M.D., Ph.D.
Associate Professor at The University of Pennsylvania
Member, Institute for Regenerative Medicine, University of Pennsylvania

Resources & Tips for Navigating Insurance, Financial, & Legal Issues
Joanna Fawzy Doran, Esq.
CEO, Triage Cancer®

Imaging adrenal adenomas with [68Ga]Ga-PentixaFor
Liza Lindenberg, M.D.
Molecular Imaging Branch
National Cancer Institute

My AI Registry and Emerging Trends in Treatment Strategies
Elizabeth A, Regan, M.D., Ph.D.
Physician-Researcher at National Jewish Health
Principal Investigator, My AI (Adrenal Insufficiency) Registry
 
FRIDAY, OCTOBER 3RD

Adrenal Insufficiency: An Overview
Smita B. Abraham, M.D.
Endocrinology, Diabetes and Metabolism
Montefiore Medical Center

Emergency Preparedness: Solu-Cortef Injections for Adrenal Crisis
AJ Connor BSN, RN, BME
Addison’s disease patient
NADF Pennsylvania Support Group Leader

Everything You Need to Know about Adrenal Insufficiency in Youth in 30 Minutes or Less
Mitchell E. Geffner, M.D.
Professor Emeritus of Pediatrics
Keck School of Medicine of USC
Children’s Hospital Los Angeles
Ron Burkle Chair in the Center for Endocrinology, Diabetes, & Metabolism

Cushing’s talk – details forthcoming

Introduction to Congenital Adrenal Hyperplasia: Daily and Emergency Treatment
Selma Feldman Witchel, M.D.
Professor Emerita University of Pittsburgh
UPMC Children’s Hospital of Pittsburgh

NADF Resources for patients and caregivers
Vanessa O’Rourke
Community Engagement Manager
NADF