Year: 2018

✍️ New Bio Form!

MaryO Can You Help? , , , , , , , , , , , ,

We have a new form to add your own bio!

Try it out below…

 

 

Thank you for submitting your bio – sometimes it takes a day or so to get them formatted for the website and listed on the pages where new bios are listed.

If you are planning to check the button that reads “Would you like to be considered for an interview? (Yes or No)” please be sure to read the Interview Page for information on how these interviews work.

Please do not ask people to email you answers to your questions. Your question is probably of interest to other Cushing’s patients and has already been asked and answered on the Message Boards.

Occasionally, people may comment on your bio. To read your bio and any comments, please look here for the date you submitted yours and click on the link.

Please post any questions for which you need answers on the message boards.

 

🎤 Interview Info

MaryO Can You Help?, Interviews, Meetings and Conferences , , , ,

Cushing’s Podcast Interview Information

Scheduled Interviews

If you want to be interviewed, please chose “Yes” on the form below.

A time will be arranged for your interview. On that day, please call the guest call-in number about 5-10 minutes before the interview is scheduled.

You can chat informally with the MaryO before the chat begins. You will hear the BlogTalk lady say “BlogTalkRadio” and there will be some Cushing’s theme music followed by your introduction and welcome. The first question will be asked.

Talk normally, just like you’re on the phone chatting with friends.

Archived audio is available through BlogTalkRadio or through iTunes Podcasts

This player will play either the last recorded show or, if the show is currently occurring, you can hear the live show.

Listen to CushingsHelp on internet talk radio

Subscribe to the CushingsHelp podcasts on iTunes

Think of our podcast as a radio show on Cushing’s. The show consists of many “episodes”. You can listen on your computer, or your iPods, completely free of charge.

To listen, you will need to “subscribe” to the podcast feed using a “podcatcher” application such as iTunes. After you subscribe, each time you launch iTunes, it will automatically check if new episodes are available and if yes, it will download the most recent episode to your computer for you to hear. Then you can sync your iPod with iTunes to get the show onto your iPod for listening on the go.

For help in subscribing to podcasts with iTunes, you can use this tutorial from Apple or if you’re iTunes savvy, you can subscribe now!

To be interviewed, please be sure to include your name, email address and check the box that says “Would you like to be considered for a phone interview?”

 

‼️Another Day, Another Board Upgrade

MaryO Uncategorized , , ,

 

Another message board upgrade happening right now. I’m not sure how long it will take (or what cosmetic changes need to be done afterwards.

If you see any other issues I should be watching for – and maybe correct later – please let me know.

Patience, please!

FWIW – I see we have the Twitter and Facebook share boxes back. Even if you share from the boards, people on these other services will not be able to see anything other than the beginning snippet unless they are board members and they log in.

 

❣️Many Thanks!

MaryO Uncategorized , , , , ,

 

 

Many thanks to everyone who is making a difference and helping Cushing’s Help stay afloat for another year!

Your donation helped pay for the message boards, the main website, the Cushie Wiki and several blogs.

 

 

📞 Theodore Friedman Webinar on Nuances of Diagnosing and Treating Hypothyroidism

MaryO Interviews, Meetings and Conferences , , , , , , ,

TOPICS TO BE DISCUSSED INCLUDE:

 

  • HOW IMPORTANT IS THE TPO ANTIBODY IN THE DIAGNOSIS OF HYPOTHYROIDISM?

  • WHAT DOES IT MEAN TO HAVE HASHIMOTO’S?

  • WHICH THYROID MEDICINE IS THE BEST?

  • WHAT IS THE DIFFERENCE BETWEEN DESICCATED THYROID AND SYNTHETIC THYROID HORMONES?

  • WHAT ABOUT TAKING ONLY T3?

  • IS RT3 IMPORTANT?

  • IS DIET IMPORTANT IN PATIENTS WITH HYPOTHYROIDISM?

 

SUNDAY • JULY 29TH • 6 PM PST

 

Click here to join the meeting or
https://axisconciergemeetings.webex.com/axisconciergemeetings/j.php?MTID=m2b7d2348ee2683a5022761e3e5945087
OR
Join by phone: (855) 797-9485
Meeting Number (Access Code): 287 970 949, Meeting Password: hormone

Your phone/computer will be muted on entry. There will be plenty of time for questions using the chat button.
For more information, email us at mail@goodhormonehealth.com.

📞 Webinar: Cushing’s Disease: Recent Advances in Medical Therapy

MaryO Interviews, Meetings and Conferences , , , ,

Presented by

Eliza Geer, MD
Medical director, Multidisciplinary Pituitary & Skull Base Tumor Center
Associate Attending, Endocrine Service
Memorial Sloan Kettering Cancer Center

After registering you will receive a confirmation email with details about joining the webinar.

Contact us at webinar@pituitary.org with any questions or suggestions.

Date: Wednesday, July 18, 2018
Time: 10:00 AM – 11:00 AM Pacific Daylight Time 1:00 PM – 2:00 PM Eastern Daylight Time

Webinar Description:

Learning Objectives:

Review Cushing’s disease treatment guidelines

Evaluate currently available medical therapies for Cushing’s disease

Discuss new therapies in clinical trials

Presenter Bio:

Dr. Geer is an endocrinologist who specializes in caring for people with pituitary and neuroendocrine diseases. She is the Medical Director of Memorial Sloan Kettering’s Multidisciplinary Pituitary & Skull Base Tumor Center, located at Memorial Hospital in Manhattan. Their multidisciplinary pituitary team provides personalized surgical and medical treatment for people with pituitary and skull base tumors, including prolactinomas, growth-hormone secreting adenomas (acromegaly), and Cushing’s disease. Their overall goal is to improve and advance the care of people with these conditions.

Dr. Geer’s research interests focus on achieving a better understanding of how and why pituitary tumors develop, and characterizing long-term outcomes in patients with Cushing’s disease. She has conducted a number of studies investigating body composition, adipose tissue regulation, and appetite in patients with Cushing’s disease, and she is involved in clinical trials investigating new medical therapies for patients with Cushing’s and acromegaly.

Dr. Geer completed her internship and residency at the NewYork-Presbyterian Hospital/Columbia Medical Center. She was a fellow in endocrinology and metabolism at the Icahn School of Medicine/Mount Sinai Medical Center, after which she was a member of the faculty for ten years. She is currently an associate professor of medicine and an active member of the Endocrine Society, the Pituitary Society, the Pituitary Network Association and the American Association of Clinical Endocrinologists.

💊 Top Doctors Receiving Payments From Corcept, makers of Korlym

MaryO What do you think? , , ,

 

Top Doctors Receiving Payments From this Company

Totals listed account for all payments from August 2013 to December 2016.

DOCTOR PAYMENTS
PEJMAN COHAN

Endocrinology, Diabetes & Metabolism

BEVERLY HILLS, CA

 $116K
RICHARD AUCHUS

Internal Medicine

ANN ARBOR, MI

 $50,682
TODD FRIEZE

Endocrinology, Diabetes & Metabolism

BILOXI, MS

 $40,012
ALAN COHEN

Endocrinology, Diabetes & Metabolism

MEMPHIS, TN

 $38,156
AMIR HAMRAHIAN

Endocrinology, Diabetes & Metabolism

CLEVELAND, OH

 $36,287
KIMBERLEY BOURNE

Endocrinology, Diabetes & Metabolism

ORLANDO, FL

 $35,485
JAMES FINDLING

Endocrinology, Diabetes & Metabolism

MENOMONEE FALLS, WI

 $31,486
TY CARROLL

Endocrinology, Diabetes & Metabolism

MENOMONEE FALLS, WI

 $28,499
KEVIN YUEN

Endocrinology, Diabetes & Metabolism

SEATTLE, WA

 $27,553
JOHN PARKER

Endocrinology, Diabetes & Metabolism

WILMINGTON, NC

 $21,878

Top Teaching Hospitals Receiving Payments From this Company

Totals listed account for all payments from August 2013 to December 2016.

HOSPITAL PAYMENTS
HOSPITAL OF THE UNIV OF PENNA

PHILA, PA

 $10,000
UNIVERSITY OF LOUISVILLE HOSPITAL

LOUISVILLE, KY

 $5,000
UNIV OF MI HOSPITALS & HLTH CTRS

ANN ARBOR, MI

 $5,000
CEDARS-SINAI MEDICAL CENTER

LOS ANGELES, CA

 $4,550
UNIV OF MISSOURI HEALTH CARE

COLUMBIA, MO

 $3,183
LANGLEY PORTER PSYCHIATRIC HOSPTIAL

SAN FRANCISCO, CA

 $3,000
NATIONAL JEWISH HEALTH

DENVER, CO

 $2,500
TEMPLE UNIVERSITY HOSPITAL

PHILADELPHIA, PA

 $2,000
THE MOUNT SINAI HOSPITAL.

NEW YORK, NY

 $2,000
ADVOCATE LUTHERAN GENERAL HOSPITAL

PARK RIDGE, IL

 $1,700

 

See if your doctor is making money from this drug here:
https://projects.propublica.org/docdollars/company/corcept-therapeutics

📞 Dr. Theodore Friedman Webinar

MaryO Interviews, Meetings and Conferences , , , , ,

Are Sleep Apnea and Snoring the causes of your Weight Gain and Fatigue?

Dr. Theodore Friedman hosts Jay Khorsandi, DDS from Snore Experts for a fascinating webinar on the relationship between Sleep Apnea, Snoring, Weight Gain and Daytime Fatigue.

Topics to be discussed include:
• Why does poor sleep lead to weight gain and fatigue?
• Why are home sleep monitors better than in lab monitors?
• What are the treatments for Sleep Apnea and Snoring?
• Will the treatments lead to weight loss and more energy?
• Dr. Friedman will also add some comments about the endocrine effects of poor sleep.
Sunday • June 24th • 6 PM PST

Click to start webinar at
https://axisconciergemeetings.webex.com/axisconcierg…/j.php…
OR
Join by phone: (855) 797-9485

Meeting Number (Access Code): 287 844 283 Your phone/computer will be muted on entry. There will be plenty of time for questions using the chat button.

Meeting Password: dreams
For more information, email Dr. Friedman at mail@goodhormonehealth.com

📞 Webinar: Oxytocin and Hypopituitarism: A Missing Forgotten Hormone?

MaryO Interviews, Meetings and Conferences , ,

Thursday May 31, 2018 1:00 PM – 2:00 PM EDT

Presented by

Yuval Eisenberg, MD
Assistant Professor of Medicine
University of Illinois, at Chicago (UIC)
Division of Endocrinology, Diabetes and Metabolism

Webinar Description

Learning Objectives:

1) Review the functions of oxytocin in humans
2) Describe areas of active research on oxytocin effects
3) Review the relevant oxytocin and hypopituitarism literature

Presenter Bio

Dr. Yuval Eisenberg is an endocrinologist at the University of Illinois, at Chicago (UIC). Dr. Eisenberg studied Medicine at Rush Medical College in Chicago and then did his internship, residency and fellowship at the University of Illinois at Chicago. He is certified in Internal Medicine and Endocrinology.

Dr. Yuval Eisenberg strives to connect with his patients and provide top quality medical care. He believes strongly that a good patient/doctor relationship is the backbone for successful medical practice. His goal with each visit is to listen, inquire, and educate and to assist you with making important medical decisions. Although his main focus is General Endocrinology, Dr. Eisenberg has a specialized interest in pituitary and adrenal disorders. Dr. Eisenberg’s research interest in the hormone oxytocin and how it might affect patients with pituitary hormone deficiencies (hypopituitarism).

Register at https://register.gotowebinar.com/register/8391851366080015362?utm_source=newsletter_271&utm_medium=email&utm_campaign=webinar-announcement-webinar-oxytocin-and-hypopituitarism-a-missing-forgotten-hormone

📅 Tenth Annual Johns Hopkins Pituitary Patient Day

MaryO Interviews, Meetings and Conferences , , , , , ,

Join us on Saturday, October 13, 2018

10th Annual Johns Hopkins Pituitary Patient Day
Saturday, October 13, 2018, 9:00 a.m. to 3:00 p.m.

Location:
Johns Hopkins Mt. Washington Conference Center
5801 Smith Avenue
Baltimore, MD 21209
map and directions

Attendance and parking are free, but seating is limited. Reserve your space now: Please R.S.V.P. by email (preferred) to PituitaryDay@jhmi.edu  or by calling 410-670-7259.

Agenda

9:00 – 9:25 a.m.: Registration

9:25 – 9:30 a.m.: Welcome and acknowledgments (Roberto Salvatori, M.D.)

9:30 – 10:00 a.m.: Symptoms of Pituitary Tumors: Acromegaly, Cushing, and Non-Functioning Masses (Roberto Salvatori, M.D.)

10:00 – 10:30 a.m.: Effects of Pituitary Tumors on Vision (Amanda Henderson, M.D.)

10:30 – 11:00 a.m.: A Patient’s Story (to be announced)

11:00 – 11:30 a.m.: The Nose: the Door to Access the Pituitary Gland (Murray Ramanathan, M.D.)

11:30 a.m. – 12:00 p.m.: Surgery for Pituitary Tumors: Images from the Operating Room (Gary Gallia, M.D., Ph.D.)

12:00 – 12:30 p.m.: Radiation Therapy for Cushing, Acromegaly and Non-Functioning Tumors: When Needed, A Good Option (Kristin Redmond, M.D.)

12:30 – 1:25 p.m.: Lunch

1:30 – 3:00 p.m. Round Table Discussions:

  1. Acromegaly
  2. Cushing Disease
  3. Non-Functioning Adenomas
  4. Craniopharyngiomas and Rathke’s Cysts