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July 22, 2015July 21, 2016 MaryO

15 years of life saving information you cannot duplicate anywhere else! A good day for all who are able to make a donation to keep this site up and running. Will do so right now!

From the message boards

✍️ Actress Charly Clive, Pituitary Adenoma
In 2015, Charly came home for a visit, and went to see her GP about her lack of periods and a blind spot in her peripheral vision. An MRI scan showed a mass on her brain. ‘They said it had eroded the bone in my nose and was pressing on the optic nerve, and it […]
📰 Desmopressin Stimulation Test in a Pregnant Patient with Cushing’s Disease
The hypothalamic-pituitary-adrenal axis stimulation during pregnancy complicates the investigation of Cushing's syndrome. Our objective is to present a pregnant patient with Cushing syndrome caused by pituitary tumor in which the desmopressin stimulation test helped in the diagnosis and led to appropriate management.
⭐️ Top Picks on the Message Boards updated December 1, 2021
Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
👥 Cushie Helper
Can you go the extra mile and maybe help another Cushie out? They all seem to be so good at this in Oregon. We need to get other areas involved, too. If you can help in any of these areas, please post your info and I'll add it to the chart. Thanks! Volunteer to be […]
👍 Coronavirus Update
Wow - this post is from March of 2020 - and it's still relevant :(
✍️ Sushmita Sen's battle with Addison's disease
It was in 2014 when the actress left her fans shocked when she revealed that she was diagnosed with Addison's disease. Talking about her condition, Sushmita said that the years she battled Addison's disease "were pretty traumatising". After fighting for 4 long years with the chronic condition, the actress healed and emerged stronger by exercising […]
🖤 In Memory: Millie Niss ~ November 29, 2009
Millie is the first Cushing’s patient that I know of to have died from complications from Swine Flu. She was only 36. Millie developed a confirmed case of the H1N1 virus. She spent 29 days in the ICU of Millard Suburban Hospital before dying of complications of the flu, compounded by Behcet’s Disease and Cushings […]
🖤 In Memory: Hermina Dala ~ November 29, 2002
Hermina had Cushing’s Disease. She passed away November 29, 2002.
ℹ️ Basics: Testing: Dex Tests
Dexamethasone suppression test measures whether adrenocorticotrophic hormone (ACTH) secretion by the pituitary can be suppressed. How the Test is Performed During this test, you will receive dexamethasone. This is a strong man-made (synthetic) glucocorticoid medicine. Afterward, your blood is drawn so that the cortisol level in your blood can be measured.
❓Do you Live with Congenital Adrenal Hyperplasia (CAH)?
CAHmelia 203 and CAHmelia 204 are clinical trials to test tildacerfont in adults with classic CAH, which may offer you and your loved ones hope of a brighter future – one where you may not have to choose between symptom management and long-term health.

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