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July 22, 2015July 21, 2016 MaryO

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From the message boards

📰 Radiation to the Whole Pituitary Compartment Effective at Controlling Cushing’s
Radiation therapy targeting the entire sella — the compartment where the pituitary gland resides at the base of the brain — is effective at controlling Cushing’s disease and should be considered for patients with suspected invasive adenoma tumors, a new study shows.
📰 Comment added to Relacorilant Effectively Manages Cortisol Effects in Cushing’s Patients
Those are some really useful findings and a big relief for patients suffering from cushing syndrome. Seems like the relacorilant treatment will reduce the time taken to give relief to these patients through Korlym treatment by half.
❓Comment adderd to Guest Question: Is Itching Common with Cushing’s Syndrome?
I itched for a year…it was horrible. Flushed face, high blood pressure…
❓Guest Question: Is Itching Common with Cushing’s Syndrome?
Is itching common with Cushing’s Syndrome? Is it common to feel somewhat good for a day and then have itching, high blood pressure, nausea, flushed red face?
❓Guest Question: Vision Issues Post Surgery!
I have been a recovering Cushings patient for 20 years, I still get all of the vision issues that I had before surgery, it comes and goes, normally last a month or 2 then goes away for a while. Is anyone else having the same issues?
📞 Webinar: Oxytocin and Hypopituitarism: A Missing Forgotten Hormone?
Learning Objectives: 1) Review the functions of oxytocin in humans 2) Describe areas of active research on oxytocin effects 3) Review the relevant oxytocin and hypopituitarism literature
📰 Endoscopic Surgery Should Be Standard for Cushing’s Patients with Large Tumors
When classifying patients by tumor size, however, researchers found that patients with macroadenomas — tumors larger than 10 mm — had higher rates of remission and lower recurrence rates after endoscopic surgery. Patients with microadenomas (tumors smaller than 10 mm) had comparable outcomes with either technique.
📰 Etomidate Found Effective in Severe Cushing’s Syndrome
In April 2017, the patient arrived at the emergency room with sepsis — a potentially life-threatening complication of an infection — that originated in the gut. Because ketoconazole had failed to lower cortisol levels, the patient started receiving infused etomidate, an inhibitor of the enzyme 11‐beta‐hydroxylase that prevents cortisol synthesis. This treatm […]
📅 Tenth Annual Johns Hopkins Pituitary Patient Day
Register now for the 10th Annual Johns Hopkins Pituitary Patient Day Saturday, October 13, 2018, 9:00 a.m. to 3:00 p.m.
📰 Study Describes 6 Common Surgical Failures in Cushing’s Disease Treatment
Relacorilant, an investigational therapy developed by Corcept Therapeutics, may effectively manage the effects of excess cortisol in patients with Cushing’s syndrome, interim data from an ongoing Phase 2 trial show. In particular, the treatment significantly improved sugar tolerance and the levels of osteocalcin, a bone growth biomarker commonly suppressed […]

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