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Janet B

January 12, 2018 MaryO

Your Cushing’s site is very valuable to the medical community and should be looked at as a resource of knowledge from people experiencing first hand what the medical community writes.

From a comment on this post: CushieWiki

📞 eSummet: Quality of Life of Pituitary Patients March 19-20, 2021
We seek to empower and improve the Quality of Life of Pituitary Patients, by sharing knowledge and inform you about treatment choices.
⭐️ Top PIcks on the Message Boards updated March 3, 2021
Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
📰 New Drug Application for RECORLEV® (levoketoconazole) for the Treatment of Endogenous Cushing’s Syndrome
Nearly 40 Percent of Prescription-Treated Endogenous Cushing’s Syndrome Patients in the U.S. Are Not Well-Controlled, Underscoring Need for New, Safe and Effective Pharmaceutical Options to Help Regulate Cortisol Levels.
🖤 Comment added to In Memory: Liz Raftery, March 2012
This breaks my heart. Liz was so young. She was finally so hopeful after way too long. We have to do something to change this. People especially doctors have to know what we go through. Mary is one person and look at all she has done to raise awareness. We are so many. There has to be something we all can do….
🖤 In Memory: Liz Raftery, March 2012
We sadly learned that Liz died in March 2012 at the age of 45. She was an active member of the Cushing’s Help Message Boards. She had a photo gallery there. The photo below is from that gallery. Liz in 2002The image at left is from 2002. Liz wrote in her bio: Hello, I’m from Hampton, just outside London. Same old story – at least 6 years of various illnesses […]
📰 COVID-19 and Cushing's syndrome: recommendations for a special population with endogenous glucocorticoid excess
Over the past few months, COVID-19, the pandemic disease caused by severe acute respiratory syndrome coronavirus 2, has been associated with a high rate of infection and lethality, especially in patients with comorbidities such as obesity, hypertension, diabetes, and immunodeficiency syndromes. These cardiometabolic and immune impairments are common comorbid […]
✍️ For Rare Disease Day: MaryO, Pituitary/Kidney Cancer Bio
As one can imagine, it hasn’t been all happiness and light. Most of my journey has been documented here and on the message boards – and elsewhere around the web.
📅 Today is Rare Disease Day
Today is Rare Disease Day. Learn all about Cushing's Disease at http://www.cushings-help.com/
📞 Cushing Syndrome and COVID-19
A Zoom call to discuss Cushing's Syndrome and COVID-19
📰 Psychotropic drugs in patients with Cushing’s disease before diagnosis and at long-term follow-up
Increased use of psychotropic drugs in CD was observed before diagnosis and remained elevated regardless of remission status, suggesting persisting negative effects on mental health. The study highlights the importance of early diagnosis of CD, and the need for long-term monitoring of mental health.

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