Home＄Growth Hormone Study Opportunity

＄Growth Hormone Study Opportunity

March 24, 2021March 26, 2021 MaryO Interviews, Meetings and Conferences, What do you think?Growth Hormone Deficiency, RareVoice, study

Here’s your chance to make your voice heard on Growth Hormone Issues.

Anyone interested would sign up with Rare Patient Voice using the CushingsHelp referral Link. You would then get an email invite to the actual study.

Study Opportunity for Idiopathic Short Stature (ISS) Caregivers

This is a 30 min online survey and Compensation is $50

Please sign up at the link below for more information or to see if you qualify

https://rarepatientvoice.com/CushingsHelp/

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🦓 Day 24: Cushing’s Awareness Challenge
I’ll never know if that hit on my head contributed to my Cushing's but I have seen several people mention on the message boards that they had a traumatic head injury of some type in their earlier lives.
🦓 Day 23, Cushing’s Awareness Challenge
Saturday, 4/23/16 really was one of the best days I’ve had in a long time. Suffice it to say, we arrived at the Tattoo and I got no nap at all, all day!
📰 Unveiling the Uncommon: Cushing’s Syndrome (CS) Masquerading as Severe Hypokalemia
This case report presents an unusual manifestation of CS in a 48-year-old male with a history of hypertension, where severe hypokalemia was the primary presentation.
🦓 Comment added to Day 22, Cushing’s Awareness Challenge
A couple years later and "My Dream Day" is substantially the same but now it would include playing with my grandchildren and, instead of practicing the aerophone, practicing the balalaika.
🦓 Day 22, Cushing’s Awareness Challenge
This is a tough one. Sometimes I’m in “why me” mode. Why Cushing’s? Why cancer? Unfortunately, there’s not a thing I can do about either. Cushing’s, who knows the risk factors? For kidney cancer I found out the risk factors and nearly none apply to me. So why? But why not? No particular reason why […]
📰 From Knee Pain Consultation to Pituitary Surgery: The Challenge of Cushing Disease Diagnosis
We present the case of a 66-year-old female patient who received a referral to endocrinology for an evaluation of obesity due to right knee arthropathy. Taking into consideration her age, she was screened for osteoporosis, with results that showed diminished bone density. Considering this, combined with other clinical features of the patient, suspicion turned toward […]
🖤 In Memory of Natalie Fay ~ April 21, 2008
Natalie had a BLA in March, 2008. She died April 21, 2008. She was only 42 and had recently had a BLA. I first met Natalie at a local lunch in November of 2001 and have seen her several times since then.
🦓 Day 21, Cushing’s Awareness Challenge
The image above is from our first local meeting, here in Northern VA – note the 6 Cushing St. sign behind us. Natalie was the Cushie in the middle.
🦓 Day 20, Cushing’s Awareness Challenge
And today, we talk about pink jeeps and ziplines… How in the world did we get here in a Cushing’s Challenge? I’m sliding these in because earlier I linked (possibly!) my growth hormone use as a cause of my cancer – and I took the GH due to Cushing’s issues. Clear? LOL
💊 National Clean Out Your Medicine Cabinet Day
Gear up for National Clean Out Your Medicine Cabinet Day! Happening every third Friday in April, this crucial day is all about purging your home of unused or expired medications that could pose serious risks.

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