Home🔵 New on the Message Boards ~ July 29, 2017

🔵 New on the Message Boards ~ July 29, 2017

July 29, 2017July 29, 2017 MaryO UncategorizedCushing’s Help, Dr. F, Guest Questions, insurance, introduction, message boards, Osilodrostat

A quick summary of some of this week’s activity on the Cushing’s Help message boards.

The Guest Questions have returned on a trial basis. At the moment, new guest questions are not moderated. Guests may ask for information and (hopefully!) board members will answer.

There is one question so far on How to search the boards?

A New Introduction at Jasmine, Possible Cushie, Stressed Beyond Belief!

More on an insurance issue in Dr F Update

Just for fun, I’ve added other images to Announcements, Questions About How These Boards Work? and Introduce Yourself to help newcomers find their way.

Information about A Phase III Study of Osilodrostat to Treat Cushing’s Disease

A long-time board member reports that she is Cured! No Surgery 🙂

The ups and downs of Blood Pressure

There’s other stuff happening but you’ll just have to read the boards to find out what!

(Please note that I’m sharing these from the Cushings-Help.com message boards. You must be a logged-in member of that board to read them. Log in or register at http://cushings.invisionzone.com )

Please join us!

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🦓 Day 18: Cushing’s Awareness Challenge 2022
Cushie Crusader, that’s me…and many others. I think we all have an opportunity to be Cushie Crusaders every time we tell others about our illness, share our story on or offline, post about our struggles – and triumphs – on the message boards, write blog posts in this Cushing’s Awareness Challenge…
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Cushing’s disease (CD) is associated with a specific form of metabolic syndrome that includes visceral obesity, which may affect cardiovascular hemodynamics by stimulating hypercortisolism-related metabolic activity. The purpose of this study was to evaluate the relationship between obesity and the hemodynamic profile of patients with CD.
🦓 Day 17, Cushing’s Awareness Challenge
I asked doctors for several years – PCP, gynecologist, neurologist, podiatrist – all said the now-famous refrain. “It’s too rare. You couldn’t have Cushing’s.” I kept persisting in my reading, making copies of library texts even when I didn’t understand them, keeping notes. I just knew that someone, somewhere would “discover” that I had Cushing’s.
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🦓 Comment added to Day 16, Cushing’s Awareness Challenge
Boy, I really needed to reread this again today. Many thanks again...to me!...for sharing. Except for my new "hobby" of learning the balalaika, everything is seeming painful, blah, boring and, at times, plain annoying.
🦓 Day 16, Cushing’s Awareness Challenge
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🦓 Comment added to Day 15, Cushing’s Awareness Challenge
So, I've been back on the growth hormone for about 8 years. I still don't feel like it's doing much/any good but it must be since tests come out ok, my endo still prescribes it and my insurance still pays for a huge chunk of it.
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